Legislative Advocacy Training: Activity 1

Legislative Advocacy Training Activity 1
The HAEA Youth Advocacy Program encourages young people to be active players in shaping the perspectives of elected representatives in both the House and Senate. By participating in HAEA Youth Advocacy initiatives, we can amplify our collective voices to ensure that issues important to HAE patients are heard in the states and federal governments.

Use this form to document and save and submit your answers for the activities. You will receive an email with all your answers when you submit the form.

Note: Some of the legislative advocacy training activities may require discussion with your family members. Feel free to reach out to a family member to provide additional insight if you are unsure about how some of the issues impact your family.
I understand that my responses, testimonials, and images may be stored, used, processed, published, distributed, and otherwise disclosed for HAEA’s internal purposes or for educational purposes.
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Your HAE Story: Activity 1

Have you ever taken the time to write about your personal HAE story? For this activity, think about your personal HAE story and write a couple of paragraphs that include the following topics:
1. Your road to diagnosis: When were you diagnosed? How did this diagnosis journey impact your life?
2. Do you have other family members who are diagnosed? What is the impact that HAE has had on your family?
3. How has your daily life been impacted by HAE? Did your life change when you found an effective treatment option?
4. What are some challenges that you have had to face due to HAE?
5. What impact have modern treatment options had in your life?
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Legislative Advocacy Training Activity 1

Your HAE Story: Activity 1