• Legislative Advocacy Training Activity 6 

  • The HAEA Youth Advocacy Program encourages young people to be active players in shaping the perspectives of elected representatives in both the House and Senate. By participating in HAEA Youth Advocacy initiatives, we can amplify our collective voices to ensure that issues important to HAE patients are heard in the states and federal governments.

    Use this form to document and save and submit your answers for the activities. You will receive an email with all your answers when you submit the form.

    Note: Some of the legislative advocacy training activities may require discussion with your family members. Feel free to reach out to a family member to provide additional insight if you are unsure about how some of the issues impact your family.

  • Legislative Advocacy Training Activity 6: Crafting An Effective Elevator Pitch

    Now that you’ve done your research and reflected on the issues affecting the HAE community, you can begin to craft an Elevator Pitch. An Elevator Pitch is a clear, brief message about you or your cause, to be shared quickly and effectively with people who don’t know you.  An Elevator Pitch must be short, specific, and memorable. It is important to have your elevator pitch rehearsed and ready because you never know when you'll have an opportunity to use it!
  • A good elevator pitch should not be longer than a short elevator ride of 20 to 30 seconds, hence the name.


    Here are some links that will provide helpful tips on creating a good elevator pitch:

    https://pacific-alliance.org/wp-content/uploads/2014/04/PADSA-Legislative-Advocacy-101.pdf


    https://id.iste.org/docs/pdfs/iste-advocacy-toolkit---elevator-pitch-template.pdf


    We have developed an example elevator pitch for you to reference:

    Hi, I’m (your name) and I am an advocate with the US Hereditary Angioedema Association and live in (City, State). The HAEA is a patient advocacy organization dedicated to individuals with Hereditary Angioedema, a rare and potentially fatal genetic disease. The Hereditary Angioedema community here in (your state) is facing difficult challenges with the cost of health care that is needed to manage my condition. It is costing my family thousands of dollars out of pocket a month for life saving medication to treat my Hereditary Angioedema. With your support my family and I would benefit from legislation to ease the financial burden we are currently facing.May I set up a meeting with you at your office to discuss this initiative further with you? 

  • Should be Empty:
Jotform Logo
Now create your own Jotform - It's free! Create your own Jotform