Care4ASH1L Registration Form

Care4ASH1L Registration Form

Register to receive latest news and updates.
Please note that the details captured using this form will not be shared with researchers, scientists, universities, medical professionals and/or pharmaceutical companies. This data is not for scientific purpose and we condemn any misuse. This data is solely for Care4ASH1L and is not meant for commercial pruposes.
Name*

First NameLast Name
Email*
example@example.com
Date of Birth*

MonthDayYear
Gender*
Enter your gender
Enter Location Details*
Your relationship with ASH1L patient*

SelfBiological ParentCaregiverLegal GuardianPatient AdvocateOther
For the next question below, please fill details of individual child with their ASH1L details. If you have multiple children with ASH1L mutation, then in each row enter their mutation details individually.

For the column, Coding Change and Protein Change, please refer to your genetic report and look for those details. Usually, they should look like this:
CODING/DNA CHANGE : c.4902_4903del het
PROTEIN CHANGE: p.S1635Cfs*18
ASH1L Mutation Details - Add details of each child with ASH1L mutation*
Is English your first language?*

YesNo
What is your level of proficiency in English?*
Other Languages
Are you a member of Care4ASH1L Facebook Group?*

YesNo
Subscribe for Care4ASH1L news & updates*

YesNo - You will not receive any news, event updates or access to presentation videos
REGISTRATION CONFIRMATION NUMBER - Please make a note of this number in order to join our Facebook group. You will need to provide this number in order to be accepted in our Facebook group.
Should be Empty: