If your child has been diagnosed with a rare disease or you are yet to formally receive a diagnosis for your child's condition, Jack's Butterfies would like to invite you to become a part of our village.
Family Membership is free of charge to eligible Rare Disease Families.
In 2019 we started the Weekly Focus Series. Our aim is to raise awareness for all rare diseases. If you are unsure if you would like to be involved, have a look at three examples of the types of posts we do. You are actually in control of what you share with us. Share your story, share your precious photos, let the JB followers fall in love with your child.
https://www.facebook.com/JacksButterflies/posts/379368762556083
https://www.facebook.com/JacksButterflies/posts/358363121323314
https://www.facebook.com/JacksButterflies/posts/357468641412762
THE AURELAIN PROJECT
If you would like to know more about the Aurelain project here's a link to the website:
https://www.jacksbutterflies.com.au/aurelian-project
I give permission for my personal information to be used by Jack's Butterflies staff and committee members to notify me of events, research proects, media opportunities and to receive communications by Jack's Butterflies.