• SATB2 Gene Foundation Survey

  • SATB2 Strategic Plan Survey

    The Board of the SATB2 Gene Foundation would please ask you to support our common cause of enriching the lives of individuals diagnosed with SATB2-associated syndrome and their families, by completing this short survey. Your responses will further guide implementation of our current strategic plan, which expires at the end of this year, and will help inform our upcoming three-year strategic plan for 2022-2024.  There will be a random drawing for five (5) individuals completing the survey, with each winning a $50.00 Amazon Gift Card.  The Survey begins with a few questions about you, followed by four sections that reflect our primary pursuits.

  • ***To be included in the gift card drawing, please complete this survey by end of day February 14, 2021!***

  • *** For best results, you are encouraged to take this survey using Google Chrome ***

  • I. FAMILY SUPPORT

  • Part of our mission looks to connect individuals/families to other families and the medical professionals, advocates, and industry partners they need to feel supported, enhance care, and optimize quality of life.  

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  • II. RAISING AWARENESS THROUGH DIVERSE PROGRAMMING

  • In the interest of safety, the SATB2 Gene Foundation cancelled the 2021 Family Conference and has voted to reschedule it for the summer of 2022. During the global pandemic, the Foundation has prioritized the production of online family resource videos and webinars.

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  • III. SUPPORTING RESEARCH

    A top priority and focus of the Foundation is to develop and fund a research agenda that aligns with the needs of both the family and scientific communities.
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  • IV. SATB2 ORGANIZATIONAL DEVELOPMENT

    Our Foundation is always looking to strengthen our volunteer leadership, in committee initiatives, networking and organizing within our international communities, and helping with our social media and web presence.  We are currently seeking volunteers to engage in the four primary pursuits listed below.  

  • If you affirmatively responded to volunteering for 1 or more of SATB2’s primary pursuits from above, please check off below all personal attributes, resources and connections you possess.

  • THANK YOU!

    You have completed the survey. We appreciate your responses!
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