Make NF Visible

Your video will be added to the Children's Tumor Foundation Make NF Visible Gallery.

Simply use your smartphone, computer, or camera to record a video and upload it here. No fancy lighting or editing needed - just a simple video of yourself, about something not-so-simple to talk about.

The Children’s Tumor Foundation works to increase knowledge of neurofibromatosis and schwannomatosis, and you play a crucial role in this effort. We’re looking to collect as many Stories of NF as possible for potential use on the CTF YouTube channel, website, social media channels, and more.

USE THIS VIDEO TO TELL US YOUR STORY OF NF. Here are some optional questions to help you frame your story:

- Tell us about the early days of your diagnosis.

- How does living with NF impact your life? How does it impact the plans you have for your future?

- Has there been a defining moment in your NF journey?

- Are you currently participating on a clinical trial? Have you in the past?

While we cannot guarantee the use and publication of every video submitted, every story of NF is important. While we hope to use your video in its entirety, we reserve the right to edit it as necessary.

Thank you for sharing your story of NF with us!

Name*

First NameLast Name

E-mail*

If we have questions. You will not be added to any CTF mailing lists.

Address (optional)

Street Address

Street Address Line 2

CityState / Province

Postal / Zip Code

Where do you live? *

For example, Albany, New York, USA

What is your relationship to neurofibromatosis or schwannomatosis? *

Please choose the answer that best reflects you.

SIGN HERE USING YOUR MOUSE OR FINGER - By signing here I agree that the Children's Tumor Foundation, or Children's Tumor Foundation Europe is allowed to use my video to bring awareness to NF. This usage includes on the Children's Tumor Foundation Make NF Visible YouTube Gallery, on any CTF websites, and on all social media platforms, including Facebook, LinkedIn, Twitter, Instagram, and TikTok (see opt out below). If a child is pictured in my video, my signature confirms that I am this child's legal guardian and I give my permission for this child's video to be used for this purpose. *

OPTIONAL: Is there anything you would like to tell us about you or your video submission? If your video is larger than 300MB, you may also paste a link to your video here.

TIKTOK OPT OUT: I would like to opt out of my video being used on TikTok

I opt out of TikTok

If you are on TikTok, please type in your handle below so we can tag you if your video is shared.

If you are on Instagram, please type in your handle below so we can tag you if your video is shared.

UPLOAD YOUR VIDEO HERE*

Upload a File

You can upload one file, of any type. We'd appreciate the largest version you have up to 300 MB.

UPLOAD YOUR VIDEO HERE*

Browse Files

If you have questions or need assistance, we can help! Email us at media@ctf.org. Thank you for helping to Make NF Visible!