Make NF Visible

Your video will be added to the Children's Tumor Foundation Make NF Visible Gallery.

Simply use your smartphone, computer, or camera to record a video and upload it here. No fancy lighting or editing needed - just a simple video of yourself, about something not-so-simple to talk about.

A portion of ALL ALL ENTRIES will be included in our montage video that will be social media channels. ALL ENTRIES will be included on the Make NF Visible YouTube gallery.

About Make NF Visible: Often patients with visible signs of NF struggle to be seen as more than just their NF, while patients whose NF is invisible struggle to make others understand. Make NF Visible is about seeing NF and seeing the person living with it.

If needed, please change these questions so they work for you and your specific situation - or only answer the questions right for you. To view or print the questions, CLICK HERE.

Name*

First NameLast Name

E-mail*

If we have questions. You will not be added to any CTF mailing lists.

Address (optional)

Street Address

Street Address Line 2

CityState / Province

Postal / Zip Code

Where do you live? *

For example, Albany, New York, USA

What is your relationship to neurofibromatosis or schwannomatosis? *

Please choose the answer that best reflects you.

SIGN HERE USING YOUR MOUSE OR FINGER - By signing here I agree that the Children's Tumor Foundation, or Children's Tumor Foundation Europe is allowed to use my video as part of the Make NF Visible campaign to bring awareness to neurofibromatosis. This usage includes on the Children's Tumor Foundation Make NF Visible YouTube Gallery, at our World NF Awarness Day LIVE event, and on all social media platforms, including Facebook, LinkedIn, Twitter, Instagram, and TikTok (see opt out below). If a child is pictured in my video, my signature confirms that I am this child's legal guardian and I give my permission for this child's video to be used for this purpose. *

OPTIONAL: Is there anything you would like to tell us about you or your video submission? If your video is larger than 300MB, you may also paste a link to your video here.

TIKTOK OPT OUT: I would like to opt out of my video being used on TikTok

I opt out of TikTok

If you are on TikTok, please type in your handle below so we can tag you if your video is shared.

If you are on Instagram, please type in your handle below so we can tag you if your video is shared.

UPLOAD YOUR VIDEO HERE*

Upload a File

You can upload one file, of any type. We'd appreciate the largest version you have up to 300 MB.

If you have questions or need assistance, we can help! Email us at media@ctf.org. Thank you for helping to Make NF Visible!