Whether you landed here purposefully or serendipitously, you are invited to introduce yourself to RAM House!
If you are a person living with a rare medical condition or you are the current carer of a person living with a rare medical condition, and you are interested in getting involved in community-based activism, you are encouraged to submit your request to join RAM House.
RAM House is an exclusive, by invite-only, virtual home hosted by the Adults Living Rare Initiative. There are strict eligibility guidelines to protect the Living Rare community from having their personal (and valuable) data mined and/or sold to third-party entities. RAM House will never allow third-party entities to data-mine within our servers. Everyone within RAM House are Living Rare and dedicated to the good of the community.
RAM House is located within the Living Rare Estate. The Living Rare Estate exists within the Community Landscape, which is separate from the Advocacy Landscape.
Unlike the current Advocacy Landscape, the Living Rare Community functions on the collaborative mindset and does not believe in silos. We believe in supporting each other's dreams and goals.
The Living Rare Community exists because of community-focused stakeholders that are based across the Rare Disease Ecosystem. As a result, RAM House partners with community-dedicated allies that are actively working to serve the best interests of the people of the community.
Our community is a safe space for people of all abilities, cultural backgrounds, sexual preferences, genders, skin shades, hair textures, and biological sex. If you are non-comfortable with open, honest discussions about human variation, our community is not for you.
We look forward to learning more about you.