Submit your personal story for Severe ME Day

Submit your personal story for Severe ME Day

Australians living with Myalgic Encephalomyelitis (M.E.) / Chronic Fatigue Syndrome
Use this form to submit your personal story or a few sentences about living with severe or very severe ME, or ME/CFS as it is commonly known in Australia. About 25% of people living with ME/CFS have a severe form of the illness and may be housebound or bedbound.

Your story may be published and used for awareness and advocacy purposes. Here is an example of someone's personal story.

Carers, partners and family members are also welcome to share their own story.
About you
I am writing my story as*

an individual living with severe ME/CFSa carer of a person living with severe ME/CFS
I have (or the person I care for has) a medical diagnosis of*

Myalgic Encephalomyelitis (M.E.)ME/CFS (Myalgic Encephalomyelitis / Chronic fatigue syndrome)Chronic fatigue syndrome (CFS)
I identify (or the person I care for identifies) as having:*

Severe ME– “Will be able to carry out minimal daily tasks only, face washing, cleaning teeth, have severe cognitive difficulties and be wheelchair dependent for mobility. These people are often unable to leave the house except on rare occasions with severe prolonged after-effect from effort.” (Source: 'The 25% ME Group')Very Severe ME– “Will be unable to mobilise or carry out any daily tasks for themselves and are in bed for the majority of the time. These people are often unable to tolerate any noise and are generally extremely sensitive to light.” (Source: 'The 25% ME Group')
Your Australian state or territory*

ACTNSWNTQLDSATASVICWA
My story
What name would you like us to use publicly? If you would like to remain anonymous, write "Anonymous"*
Your story

2,000 word limit0/2000
Or attach your story as a document (optional)

Browse Files
Accepted file types: pdf, doc, docx, txt. Submit up to 2 files. Cancelof
Submit photos (optional)

Browse Files
Accepted file types: png. jpg. Submit up to 4 files. Cancelof
Consent
Consent*

I consent to the above information, and any attached story or photos, being used and published by ME/CFS and Lyme Association of WA Inc and ME/CFS Australia Ltd, including publicly on a website, social media, and shared or published anywhere else as appropriate. This includes using it, in full or in part, for awareness, advocacy, and general purposes, both online and offline, without payment or further permission.
Your contact information

This information will not be published and is for record keeping purposes only, as well as to contact you where needed.
Your first name*
Your last name*
Your e-mail address*
example@example.com
Comments (if any)

0/100
Ready to submit

Thank you for taking the time to share your story, help raise awareness, and assist with advocacy.

Please click the Submit button below.
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