I Want to Tell My Sickle Cell Story!
Thank you for your interest in sharing your story with the Sickle Cell Disease Association of America. We have a variety of opportunities for you to stand up and speak out about your experiences with sickle cell, including but not limited to press and media interviews, social media spotlights, video appearances and blog mentions. Please share your information below and we will reach out to you with more. For questions or concerns, please reach out to eday@sicklecelldisease.org.
Name
*
First Name
Last Name
Email
*
example@example.com
Phone Number
*
Please enter a valid phone number.
Address
*
Street Address
Street Address Line 2
City
State / Province
Postal / Zip Code
Age Range
18-29
30-49
50+
Date of Birth
*
-
Month
-
Day
Year
Date
I am a sickle cell...
*
Warrior
Caregiver
Parent
Spouse/partner/family member
Medical provider
Researcher
CHW
Other
I am comfortable...
Being interviewed by a reporter for a print or web article
Being interviewed on camera for SCDAA videos
Being interviewed by a reporter on camera
Having my story highlighted on social media/on the SCDAA website
Having my quote/picture used in SCDAA marketing materials
Using my social media reach to share SCDAA news, events, initiatives
All of the above
I can speak about:
Clinical trials
Gene Therapy (participant)
Gene Therapy (considering participating)
Mental Health
Emergency room experiences
Caregiving
Advocacy
Stigma
Pain crises
Transition from pediatric to adult care
Transfusions/Blood Donation Importance
Any other topics you would like to speak to?
Tell us anything about yourself you want us to know:
Submit
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