Dear Participant,
You are being asked to take part in a scoping survey conducted by The Smith-Magenis Syndrome Foundation UK. If you choose to participate in this study, you will complete an anonymous survey with the option to provide your details at the end. This survey will help us learn more about the living situations for individuals with Smith-Magenis Syndrome.
Please complete this survey if you are the primary caregiver of an individual with Smith-Magenis Syndrome who is fourteen years of age and older.
Most of the questions within the survey will give you the opinion to skip if you do not wish to answer it. You can withdraw at any time without giving a reason and with no adverse consequences. If you do decide to withdraw, any unprocessed data relating to you and your child will be destroyed.
On the next page there is an option to look at a PDF that describes each residential option.
If you have any questions or concerns about this survey please direct your queries to:
Susan Over
Research intern
The Smith-Magenis Syndrome (SMS) Foundation UK
sd.over@btinternet.com
Mob: 07857 192037
or
Nigel Over
Chief Executive Officer
The Smith-Magenis Syndrome (SMS) Foundation UK
12 Bankton Brae, Murieston, Livingston, EH54 9LA
nigel@smith-magenis.co.uk
Tel: 01506 429970 Mob: 07803 605739
Registered UK Charity 1186647 | Registered Scottish Charity SCIO SC050921
If you agree to participate in this survey, please click Next to begin.