Dear Participant,
You are being asked to take part in a questionnaire conducted by The Smith-Magenis Syndrome Foundation UK. If you choose to participate in this study, you will complete an anonymous survey. This survey will help us learn more about the experiences of health and behaviour of individuals with Smith-Magenis Syndrome.
Please complete this survey if you are the primary caregiver of an individual with Smith-Magenis Syndrome.
Most of the questions within the survey will give you the opinion to skip if you do not wish to answer it. You can withdraw at any time without giving a reason and with no adverse consequences. If you do decide to withdraw, any unprocessed data relating to you and your child will be destroyed.
If you have any questions or concerns about this survey please direct your queries to:
Natasha Craven
Research and Administrative Assistant
The Smith-Magenis Syndrome (SMS) Foundation UK
natasha@smith-magenis.co.uk
Mob: 07748 708 788