Nuclear Descendants - Adaption to Trauma

  • Nuclear Descendants - Adaption to Trauma

    • Consent 

    • Informed Consent Form

      Intergenerational Legacies of Nuclear Radiation/Fallout Exposure: An International Comparative Study Informed Consent Form TITLE:​ Intergenerational Legacies of Nuclear Radiation/Fallout Exposure: An International Comparative Study PROTOCOL NO.:​ None​IRB Protocol #20221552 SPONSOR:​ Ferkauf Graduate School of Psychology at Yeshiva University PRINCIPAL INVESTIGATOR: Yael Danieli, PhD​Founder and Executive Director, International Center for MultiGenerational Legacies of Trauma​345 East 80th Street (Apt. 31-J)​New York, NY 10075 STUDY-RELATED PHONE NUMBER(S): +1-​212-737-8524 (24 hours) The principal investigator of this study is Dr. Yael Danieli, Founder and CEO of the International Center for the Study, Prevention and Treatment of MultiGenerational Legacies of Trauma. The purpose of this research study: Is to explore adaptational patterns in families of parent(s) exposed to nuclear radiation/fallout to better understand how their children's lives are affected. What will be done: You will be asked to complete a three-part questionnaire about (1) interactions in your family (both parents), (2) your own responses to them, and (3) your family history and demographics. Survey Duration: The full survey will take approximately 90 minutes to complete.Participation is voluntary.  You may refuse to participate or discontinue participation at any time without penalty or loss of benefits to which you are otherwise entitled.   Benefits of this Study: While it might not benefit you directly, it should contribute to knowledge about family adaptation to trauma.Alternative of this study: Your alternative is not to participate in the study. Confidentiality: The information will not be shared with anyone outside the research team or in any way that personally identifies you.  Your information will be shared with WCG IRB.  It is for the sole purpose of understanding family adaptation to trauma via the use of this three-part questionnaire. According to data protection laws, each use we make of personal information must have a “legal basis”. The relevant legal bases are set out in the General Data Protection Regulation (EU Regulation 2016/679) and in current UK data protection legislation.We may publish the results of this research. However, we will keep your name and other identifying information confidential. We protect your information from disclosure to others to the extent required by law. We cannot promise complete secrecy. Risks or discomforts: Some of the questions are personal and they may cause you to experience some distress upon remembering unpleasant things.  You can stop at any time. If you experience significant distress, please contact Dr. Danieli (contact information below), your local trusted support, or your national helpline. There is the risk of a loss of confidentiality, but there are procedures in place to minimize this risk. How the findings will be used: To help understand family adaptation to trauma in general and to nuclear radiation/fallout exposure, in particular. You will not be paid for being in this study. There is no cost for you in the study. Contact Information: For any complaints, concerns or questions about this study or to opt-out at any time, please, contact Dr. Yael Danieli at +1-212-737-8524 (24 hours) or at yaeld@aol.com. This research is being overseen by WCG IRB. An IRB is a group of people who perform independent review of research studies. You may talk to them at 855-818-2289 or researchquestions@wcgirb.com if:o You have questions, concerns, or complaints that are not being answered by the research team.o You are not getting answers from the research team.o You cannot reach the research team.o You want to talk to someone else about the research.o You have questions about your rights as a research subject. CONSENTI have read and understand the information provided above. All my questions about the study and my part in it have been answered. I freely consent to participate in this research study. By signing this form, I have not given up any of my legal rights. By signing below, I acknowledge:⎯ My participation in this study is voluntary⎯ I am 18 years of age or older⎯ I am aware that I may choose to terminate my participation at any time for any reason
    • Date*
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    • Section 1 - About You 
    • 1. On the basis of their (a) experiences during the nuclear radiation/fallout exposure and/or (b) years and places of birth, who among the following are/were victim/survivors?*
    • Section 2- Your Family of Origin 

    • The statements below describe ways of life in some families. You will be asked to state how much you agree or disagree with the statements as they apply to your family of origin. To indicate your level of agreement, please click the button next to your chosen response. First answer the question as it applies to your father, then as it applies to your mother.

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    • Section 3 - The statements below describe you and your way of life.  

    • You will be asked to state how much you agree or disagree with the statements as they apply to you. To indicate your level of agreement, please click the button next to your chosen response.

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    • Section 4 - Four Generation Family History and Demographics 

    • The following questions are about your family’s history, characteristics, and circumstances. Please answer all questions to the best of your ability.

    • Your Mother

    • 3. Is your mother living now?*
    • 3a. If no, do you believe her death was the result of the nuclear radiation/fallout exposure

    • Your Father

    • 6. Is your father living now?*
    • 6a. If no, do you believe his death was the result of the nuclear radiation/fallout exposure

    • Your siblings

    • 8. Were any of your own brothers and sisters, including half-brothers and sisters, born before/living during the nuclear radiation/fallout exposure?*

    • Your mother's mother (maternal grandmother)

    • 12. Is she living now?*
    • 12a. If no, do you believe her death was the result of the nuclear radiation/fallout exposure?*

    • Your mother's father (maternal grandfather)

    • 15. Is he living now?*
    • 15a. If no, do you believe his death was the result of the nuclear radiation/fallout exposure?*

    • Your father's mother (paternal grandmother)

    • 18. Is she living now?*
    • 18a. If no, do you believe her death was the result of the nuclear radiation/fallout exposure?

    • Your father's father (paternal grandfather)

    • 21. Is he living now?*
    • 21a. If no, do you believe his death was the result of the nuclear radiation/fallout exposure?

    • Your aunts and uncles

    • 22a. Were any of your mother's brothers/sisters born before/living during the nuclear radiation/fallout exposure?*
    • 22b. Were any of your father's brothers/sisters born before/living during the nuclear radiation/fallout exposure?*

    • The next questions are about experiences your Mother had during and after the nuclear radiation/fallout exposure.

    • 23. Was your mother's nuclear radiation/fallout exposure event officially recorded?*
    • 24. Was she told not to speak about the experience?*
    • 25. Was your mother asked to participate?*
    • 26. Was your mother informed of the possible consequences?*
    • 26a. If yes: Did she have an option to avoid these consequences?
    • 26b. If no, when did she find out?
    • 28. Was she evacuated?*
    • 29. Was she relocated?*
    • 29a. If yes, was the relocation voluntary?
    • 29b. Was the relocation temporary?
    • 29c. Were there more than one relocations?
    • 29d. Was there financial support for relocation?
    • 30. Did your mother require hospitalization due to the nuclear radiation/fallout exposure event?*
    • 30a. If yes, was this immediately after the exposure event?
    • 31. Was your mother involved in an operational role(for example, clean-up-related activities, contaminated soil/debris removal) following the nuclear radiation/fallout exposure event?*
    • 32. Was your mother involved in a support role(for example, food services, transportation, communications, equipment maintenance)  following the nuclear radiation/fallout exposure?*
    • 35. Did your mother have difficulty with pregnancy?*
    • 35a. Difficulty becoming pregnant*
    • 35b. Difficulty keeping the pregnancy*
    • 35c. Abnormality of fetus/child*
    • 36. Did your mother participate in a legal, political other advocacy in relation to the nuclear radiation/fallout exposure event?*
    • 37. In subsequent years, did your mother have affiliations with formal nuclear radiation/fallout exposure survivor organizations?*
    • 38. Affiliations with anti-nuclear radiation/fallout exposure communities?*
    • 39. Informal affiliations (friendships) with nuclear radiation/fallout exposure people?*

    • The next questions are about experiences your Father had during the nuclear radiation/fallout exposure.

    • 40. Was your father's nuclear radiation/fallout exposure event officially recorded?*
    • 41. Was he told not to speak about the experience?*
    • 42. Was he asked to participate?*
    • 43. Was he informed of the possible consequences?*
    • 43a. If yes, did he have an option to avoid these consequences?
    • 43b. If no, when did he find out?
    • 44. How did he find out?
    • 45. Was he evacuated?*
    • 46. Was he relocated?*
    • 46a. If yes, was the relocation voluntary?
    • 46b. If yes, was the relocation temporary?
    • 46c. If yes, were there more than one relocations
    • 46c. If yes, were there more than one relocations
    • 46d. Was there financial support for relocation?
    • 47. Did your father require hospitalization due to the nuclear radiation/fallout exposure event?*
    • 47a. If yes was this immediately after the exposure event?
    • 48. Was your father involved in an operational role(for example, clean-up-related activities, contaminated soil/debris removal) following the nuclear radiation/fallout exposure event?*
    • 49. Was your father ever involved in a support role(for example, food services, transportation, communications, equipment maintenance) following the nuclear radiation/fallout exposure event?
    • 51. Did your father have misgivings about having children?*
    • 52. Did your father participate in a legal, political or other advocacy in relation to the nuclear radiation/fallout exposure event?*
    • 53. In subsequent years, did your father have affiliations with formal nuclear radiation/fallout exposure survivor organizations?*
    • 54. Affiliations with anti-nuclear radiation organizations?*
    • 55. Informal affiliations (friendships) with nuclear radiation/fallout exposure survivors?*
    • Other Family Information 

    • Parents' marriage

    • 57. Did they subsequently either divorce or separate permanently?*
    • 57b. If yes, did your mother remarry?
    • 57c. If yes, did your father remarry?
    • 58. Was this your mother's first marriage (IF YES, SKIP TO #59)*
    • 58b. If she was married before the exposure event, did her first husband survive the nuclear radiation/fallout exposure?
    • 59. Was this your father's first marriage? (IF YES, SKIP TO #60)*
    • 59b. If he was married before the exposure event, did his first wife survive the nuclear radiation/fallout exposure?

    • Parents' Ethnicity/Religion/Faith/Spirituality

    • 61. Which of the following options best describes your mother's religious/faith/spirituality affiliation and practice?*
    • 63. Which of the following options best describes your mother's PARENTS' religious/faith/spirituality affiliation and practice?*
    • 65. Which of the following options best describes your father religious/faith/spirituality affiliation and practice?*
    • 67. Which of the following options best describes your father's PARENTS' religious/faith/spirituality affiliation and practice?*

    • Parents' Education/Occupation/Socioeconomic Status

    • 68. What was the highest year of education your mother achieved?*
    • 69. Which of the following statements best describes your mother's education*
    • 70. What was the highest year of education your father achieved?*
    • 71. Which of the following statements best describes your father's education*
    • 74. Which of the following statements best describes how your mother made a living?*
    • 77. Which of the following statements best describes how your father made a living?*
    • 78. Which of the following statements best describes your family's socioeconomic situation before the nuclear radiation/fallout exposure?*
    • 79. Which of the following statements best describes your family's socioeconomic situation after the nuclear radiation/fallout exposure?*
    • 80. How did your mother spend her free time?*
    • 81. How much did your mother value/enjoy her free-time activities?*
    • 82. Did she have interests before the nuclear radiation/fallout exposure that she no longer pursued after the nuclear radiation/fallout exposure?*
    • 83. How did your father spend his free time?*
    • 84. How much did your father value/enjoy his free-time activities?*
    • 85. Did he have interests before the nuclear radiation/fallout exposure that he no longer pursued after the nuclear radiation/fallout exposure?*

    • Generational Linkages

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    • Information about yourself

    • 88. Were you named after a family member?*
    • 88a. If yes , what was that person's relationship to you
    • 88b. If yes, were you told that the family member for whom you were named died because of the nuclear radiation/exposure fallout?
    • 89. Which of the following best describes your birth order?*
    • 90. Has your own health been impacted by nuclear radiation/fallout exposure or that of your family member(s)*
    • 91. What is your present marital status?*
    • 92. Do/did you have misgivings about having children?*
    • 93. Do/did you have children?*
    • 93b. Were any of your own children named after a family member?
    • 93bi. If yes, what was that person's relationship to you? (check all that apply)
    • 93bii. If yes, were you told that the family member for whom your child was named died because of the nuclear radiation/exposure fallout?
    • 94. Has nuclear radiation/fallout exposure continued to endanger your family?*
    • 94a. If yes, is there ongoing contamination of air, food, water in the area where you live or work?
    • 95. Have you participated in a legal, political or other advocacy in relation to the nuclear radiation/fallout exposure event?*
    • 96. Are you actively participating in a legal, political or other advocacy in relation to the nuclear radiation/fallout exposure event?*
    • 97. Do you presently have affiliations with formal children (grandchildren) of survivor groups?*
    • 98. Affiliations with general nuclear radiation/exposure fallout organizations?*
    • 99. Informal affiliations (friendships) with children or grandchildren of nuclear radiation/fallout exposure survivors?*
    • 100. Is recognition, in any form, of your parent’s’ nuclear radiation/fallout experience/s important to you or your family*

    • Ethnicity/Religion/Faith/Spirituality

    • 102. Which of the following options best describes your religious/faith/spirituality affiliation and practice?*

    • Your Education/Occupation/Socioeconomic Status

    • 103. What was the highest year of education you achieved?*
    • 104. What is your present employment status?*
    • 105. Which of the following best describes your current occupation/profession? If retired, disabled, or not employed but seeking work, please answer according to your last paid job.*
    • 106. Which statement best describes your present socioeconomic situation?*
    • 107. How do you spend your free time? (check all that apply)*
    • 108. How much do you value/enjoy your free-time activities?*
    • Should be Empty: