SATB2 Awareness Story Collection
We want to share your SASsy story all throughout the year! Raising awareness about our loved ones with SAS helps for more people to know about our amazing community and SATB2-associated syndrome. We are looking for stories about your SAS family member - their accomplishments, milestones hit, a day in the life of your child, and more. Below you will find some sample prompt questions to answer. Or you can share other stories with us. Questions or additional follow up? Send us an email at info@satb2gene.org
Name of person completing this form
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First Name
Last Name
Email
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example@example.com
Relationship to person with SAS
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Please Select
Parent/Caregiver
Grandparent
Sibling
Other
General SAS Individual Information:
SAS Individual's Name:
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First Name
Last Name
Nickname (if applicable):
Birthday:
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Month
-
Day
Year
Date
City & State or Country:
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Favorite Food:
Hobbies/Interests:
Year your Child Received his/her SAS diagnosis:
General Questions to Help Us Get to Know Your SAS Child and Family:
These are example questions only and you DO NOT need to answer them all. We suggest that you choose one or two that you want to share, but you are welcome to fill out as many questions as you wish below.
Share a recent memory that captures the essence of your SAS family member and his/her personality.
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Tell us about something your SAS family member has accomplished that you did not previously think he/she would.
0/200
List three words to describe your SAS family member.
0/100
What do you want the rest of the world to know about your SAS family member?
0/200
What advice do you have for new parents grappling with a SAS diagnosis?
0/200
What has the SAS community and/or the SATB2 Gene Foundation meant to you?
0/200
What is the relationship like with your SAS child and his/her neurotypical siblings (if applicable)?
0/200
What do you know now that you wish you knew when you first received your SAS diagnosis?
0/200
Consent Agreement:
I agree to allow the SATB2 Gene Foundation to post a photo, video, and/or story on the Foundation's social media channels and/or website.
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Yes
No
Uploads
Upload a favorite video of your SAS family member (less than 30 seconds).
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Upload pictures of the following (2-3 photos max): Please make sure that the photos submitted are clear, that those individuals featured in them are centered within the image, and fully clothed. Photos should not include other children who are not family members. Photos with families celebrating Rare Disease Day or SAS Awareness Day are welcomed. Example photos can include: a favorite/recent picture of your SAS child, a favorite/recent picture of your family, a favorite picture of your child/family with another SAS family
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Photo 2
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Photo 3
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Submit
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