The 6 values and principles for public involvement as set out in INVOLVE (2015) Public involvement in research: values and principles framework, which are:
- Respect: Researchers, research organisations and the public respect one another’s roles and perspectives.
- Support: Researchers, research organisations and the public have access to practical and organisational support to involve and be involved.
- Transparency: Researchers, research organisations and the public are clear and open about the aims and scope of involvement in the research.
- Responsiveness: Researchers and research organisations actively respond to the input of public members involved in research.
- Fairness of opportunity: Researchers and research organisations ensure that public involvement in research is open to individuals and communities without discrimination.
- Accountability: Researchers, research organisations and the public are accountable for their involvement in research and to people affected by the research.
You will also ensure:
- Members are treated as partners of research.
- PPIE activities with Members must be research that is carried out WITH or BY Members and not TAKING PART in research that is about or for them.
- Activities and opportunities and the level of contribution are always TAILORED to each Member’s interest and availability.
- Members to be reimbursed adequately and timely on terms no less generous than those set out in the PPIE national guidelines (https://www.nihr.ac.uk/documents/payment-guidance-for-researchers-and-professionals/27392#payment-rates).
- Appropriately acknowledge Member contribution.
- Demonstrate honesty, care, compassion, collaboration, equality and inclusion.
- Use person first language in all communications and support Obesity Institute to eliminate weight stigma and bias.
- Feed results of activity back to Members.
- All Member Personal Information will be held in the strictest confidence and in accordance with all Data Privacy Laws.
- Have in place and implement appropriate procedures to deal with complaints from Members, and in any event permit Members to withdraw from their projects should they no longer wish to participate.
For GDPR purposes we do not share contact details of our PPIE Members. The obesity Institute will share details of your PPIE opportunity to our members and the onus will be on them to contact you directly. Please see PPIE Roadmap diagram below.