Carers from Ethnic Minority Communities Questionnaire

New survey launched for people from ethnic minority backgrounds caring for family members, loved ones and friends.

The contribution unpaid care adds to our economy is vital and we want to recognise and value what you do and put things in place that support you throughout your journey as a carer. This survey is for carers from ethnic minority backgrounds who care for a family member, loved one or friend, who has a long term illness, disability, mental ill health and/or addiction. Following on from the survey, we will collate all responses which will form a report to improve carer identification and support across Derbyshire. If you are a carer and require support, please call Derbyshire Carers Association on 01773 833833. If you would like help with completing this survey, please ask for Tina Curran.
Who do you care for ? (Please tick all that apply)

Spouse or PartnerParentChildOther family memberFriendNeighbourOther
Ethnicity, please tick one as appropriate.

White, IrishWhite, Gypsy or Irish TravellerWhite, RomaWhite, any other white backgroundMixed/multiple ethnic group - White and BlackCaribbeanMixed/multiple ethnic group - White and Black AfricanMixed/multiple ethnic group - White and AsianMixed/multiple ethnic group - Any othermixed/multiple ethnic backgroundAsian/Asian British - IndianAsian/Asian British - PakistaniAsian/Asian British - BangladeshiAsian/Asian British - ChineseAsian/Asian British - Any other Asian backgroundBlack/African/Caribbean/Black British - AfricanBlack/African/Caribbean/Black British -CaribbeanBlack/African/Caribbean/Black British - Anyother Black/African/Caribbean backgroundAny other ethnic group - ArabAny other ethnic group - Any other ethnic groupUnknown ethnicity
Why does the person (or people) you care for, need your support? (Please select all that apply)

Physical health conditionMental health conditionSensory impairmentLearning disabilityAutismDependence on alcohol or drugsOther
How many years have you been caring for?
How many hours a week do you provide care/support?

0-9 hours10-19 hours20-34 hours35-49 hours50-100 hoursMore than 100 hours
How well do you feel that you are coping with your caring responsibilities?

Very wellFairly wellCoping some of the timeNot very wellNot at all
Do you feel that caring has had impact on your own mental health?

Significantly improved my mental healthSlightly improved my mental healthNeither negatively nor positively affected on my mental healthSlightly worsened my mental healthSignificantly worsened my mental health
Do you feel that caring has had impact on your own physical health?

Significantly improved my physical healthSlightly improved my physical healthNeither negatively nor positively affected my physical healthSlightly worsened my physical healthSignificantly worsened my physical health
Do you have a disability?

YesNoPrefer not to say
Are you happy to continue caring in the future?

YesYes, with the right support in placeNoMaybeSometimes
Do you worry about your ability to continue caring in the future? (Please tick all that apply)

Yes, because of my own mental healthYes, because of my own physical healthYes, because of a deterioration of the mental health of the person I supportYes, because of the deterioration in physical health of the person I supportNo
Do you have a plan in place for what happens to the person you look after if you become unable to support them? (e.g. Emergency plan/ agreement with another relative etc.)

YesNo, I do not worry about becoming unable to support themNo, but I do worry about what would happen if I became unable to support themNo, but I would like to put a plan in place
Have you had any respite in the last 12 months?

Yes, daytime onlyYes, overnightNo, I haven’t wanted anyNo, I haven’t been able to access any
If yes, how was this respite organised?

Through Adult Social CareThrough the NHSPrivately, through an agencyThrough a charity (such as Carefree)Another friend or family member took overOther
If respite was organised through Adult Social Care or the NHS, were you given enough notice of when the respite would be available?

Yes, plenty of noticeYes, some noticeNo, not enough noticeNo notice
Do you feel that the respite offered catered to the needs of your cared for?

YesNo
If you answered no, please state why
Do you feel well supported in your caring role?

YesNoSometimes
Who do you think offers you the most support as a carer? (please tick all that apply)

Peer supportFriends, family and neighboursDerbyshire Carers AssociationAnother charityGPAdult Social CareHospital teamCommunity teams (including Community Mental Health Teams and SaltDistrict nursesAdmiral nursesPalliative care / hospice supportWebsiteHelplinesOtherI do not get support as a carer
Do you feel let down by the support offered by any of the following? (please tick all that apply)

Peer supportFriends, family and neighboursDerbyshire Carers AssociationAnother charityGPAdult Social CareHospital teamDistrict nursesAdmiral nursesPalliative care / hospice supportWebsitesHelplinesOtherI do not get any support as a carer
Do you feel adequately consulted, and that your opinion is respected, when professionals are making decisions about your friend/family-member’s care?

YesNoSometimesDepends on the service
Do you feel that there is good communication between all professionals involved in your friend or family member’s care?

YesNoSometimes
Do you feel well informed about what support is available to you?

YesNo
Do you feel well informed about what support is available to your friend or family member?

YesNo
How would you like information about support services to be communicated?

Over the phoneVia Text messageVia WhatsAppVia emailOn the webIn personVia postOther
If you ticked other, please specify
What is most likely to stop you accessing a support service?

DistanceCostAppropriateness of supportResistance of friend/family member that I am caring forLack of timeInability to leave friend/family-member unattendedLack of interestOther
If you ticked other, please specify
Do you worry about money?

YesNoSometimesPrefer not to answer
If you have completed any benefit forms on behalf of yourself, or your cared for, did you find them easy to understand and complete? (e.g. Carers’ Allowance, PIP, Attendance Allowance)

YesNo
If you ticked no, please say why
Has being a carer had a positive impact on your own life?

YesSometimesIn some waysNo
If you answered a), b) or c) to the above question, what is the greatest positive about being a carer?
What do you find most challenging about being a carer?
What single change would make the biggest difference to your ability to care in the future?
If you would like to talk to someone about what support is available for carers, then please ring Derbyshire Carers Association on 01773 833833 between 9am and 4.30pm, Monday-Friday or visit www.derbyshirecarers.co.uk.
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New survey launched for people from ethnic minority backgrounds caring for family members, loved ones and friends.