Community-based specialist palliative care for adults: Co-designing a new and improved model of care

Your views on the recommended model of care

The engagement document sets out why we need to make changes to community-based specialist and end-of-life care and the recommended model of care for people living in North West London (NW London).

The new model of care builds on previous engagement and local residents are being given the opportunity to review and respond to the proposed new model of care for community-based specialist palliative care for adults in NW London.

The new model of care has been co-designed over the last year by a working group of NW London residents, along with clinicians, NHS providers and charitable hospices with the ultimate goal of making sure there is improved access to high quality services.

The model covers a wide range of community-based specialist palliative care services that will help patients to stay in their own home or usual place of residence, whilst allowing them the flexibility to move to a different care setting if needed.

It increases the range and number of inpatient bed care options available by introducing enhanced end-of-life care beds, for people with less complex specialist palliative care needs who still require inpatient care, on top of the existing hospice inpatient beds currently in place and projected to be required over the next five years and beyond.

The model also includes an extension of a number of existing services to level-up provision and availability across all eight NW London boroughs, including:

• Extended provision of 24/7 telephone advice lines for existing and new patients
• Extended days and hours of care provision by specialist teams
• Increased support to care homes
• Expansion of Hospice at Home services to all boroughs, supporting up to 24-hour care in patients’ homes
• The introduction of new common standards for psychological and bereavement support services 
• Expansion of lymphoedema services

We are pleased that the model of care is supported by the NW London community-based specialist palliative care steering group, which includes all hospice and NHS providers of community-based specialist palliative care services in NW London.

We now want to get your feedback on our recommended model of care and thank you for your time in completing the survey.

Your views on the enablers we need to put in place to deliver the model of care

A key feature in the feedback we received from local people was the need to make sure we put in place effective ways of working and the systems and processes that are needed to support the delivery of high quality palliative and end-of-life care. 

There was a particular emphasis on the need to reduce health inequalities and have a palliative care workforce (generalist and specialist) that is both sustainable and understands the cultural and faith requirements of our diverse communities.

We have identified the following five key enablers that we will need to develop and put in place to support the successful implementation and delivery of our new model of care and achieve the improvements in care we are aim to deliver:

• Workforce development
• Reducing inequalities
• Data, digital and technology
• Organisational development
• Leadership, governance and integration

About you

We are committed to making sure everyone has the chance to participate fully in the activities of our organisations. By completing the following section, you will help us to understand who we are reaching and how we can best serve everyone in our community. We will cross-reference this information with your answers to help us understand the views of different groups within our community.

Please tick ONE option for each question. All responses are optional and will remain anonymous. 

Keeping in touch with you

Please note we will not link your email address to the answers you have given to the consultation questions.

You can read our privacy policy by visiting our website.