• One Drop 2026 Application - Please read the section below 👇

    Scheduled: Friday - Sunday: November 13-15 2026. Sign up below to apply for this event. Location: Tampa Bay, Florida. Tampa Airport Marriott

  • PLEASE READ THIS ENTIRE SECTION, OUR ATTENDANCE ACCEPTANCE LIMITS HAVE CHANGED. 

    One Drop is a wonderful opportunity to connect, learn and share with other individuals impacted by ultra-rare bleeding disorders.  The weekend will connect you with new and veteran faces from our ultra-rare bleeding community, provide engaging educational sessions, and opportunities to share about your journey in a safe and unique space. Expect quite a bit of fun too!

    To apply, please commit to attending the event during the timeframes outlined below and to be present to participate in all sessions. Space is limited and we want to ensure those attending are ready and able to both take and make space!

    Arrival: Friday, November 13th by 3pm.

    Depart: Sunday November 15th after 2pm.

    Applicants must be a person diagnosed with an ultra-rare clotting factor/platelet deficiency. See notes below for qualifying support person.

    Qualifying Diagnoses Include, Factor I, II, V, VII, X, XI, XIII Deficiency, and any ultra-rare platelet disorder such as Glanzmann's Thrombasthenia, Bernard Soulier, storage pool disease, alpha and delta granule, plasminogen deficiency, PAI-1 etc...

    Medical Diagnosis Verification Forms will be Required for New Attendees. If you have been verified in the past, you do not need to complete this again.

    Due to another annual cut from funders, we can offer attendance to a 1 or 2-person party in the following manner: 

    • A parent with an affected minor. An adult may attend without their affected minor.

    • An affected adult that may be accompanied by a partner, spouse or immediate family member if assistance is needed for the affected to travel effectively

    Our application and selection process considers multiple factors, including the following:

    • Priority to new applicants
    • Number of Ultra-Rare patients in the household
    • Previous Number of Attendances 
    • Time Since Last Attendance

    Applications received after October 9th will be immediately waitlisted if we are at capacity. 

     Estimated completion time: Approx. ~15 minutes

    This is a live, in person event. Keynote sessions and content that does not consist of personal information will be recorded and uploaded to our YouTube post-event. 

  • Is the person affected by an Ultra-Rare condition an adult or under 18?*
  • Patients Date of Birth*
     - -
    2 digit month, 2 digit day, 4 digit year

  • Format: (000) 000-0000.
  • Have you attended any of the previously listed retreats?Please Select All that Apply*

  • Medical Information

    Please complete this PATIENT section for verification purposes. Medical Diagnosis Verification Forms will be Required for New Attendees
  • What type of bleeding disorder does the patient have?*
  • Format: (000) 000-0000.
  • Format: (000) 000-0000.
  • How did you hear about this program? (check all that apply)*
  • You can bring one additional person with you for support in the form of a partner, spouse or immediate family member. Would you like to add someone to attend with you?*
  • Parent/Guardian or Additional GuestDOB*
     - -
    2 digit month, 2 digit day, 4 digit year
  • Your Relationship to Patient:*
  • Do you have a bleeding disorder?*
  • Your bleeding disorder:*
  • Factor 10 Council Meeting - Pre One Drop 11/13 from 12pm-3:30pm - Lunch Provided - Hosted by Kedrion*

  • ATHN 10 testing at One Drop 2025

  • In collaboration with the Tampa HTC and the ATHN team, CHES Foundation is excited to offer ATHN testing again at this year's consortium. More about ATHN10 Here

    Please note that this testing is for patients who already have a diagnosis as well as a submitted diagnosis verification form. 

    If you participated last year at One Drop 2024, you cannot participate in ATHN again. 

  • Did you/your family member(s) participate in ATHN testing last year?*
  • Would you or a family member with a verified Ultra-Rare bleeding disorder like to participate in ATHN this year?*
  • Does this person(s) have a verifiable Ultra-Rare bleeding disorder and has submitted a verification form?*
  • I agree that by electing to participate in ATHN testing that necessary contact information, diagnosis, and verification forms for myself and members of my attending party will be shared with ATHN, CIBD and the BayCare Tampa team for sole purpose of enrolling in the ATHN studies provided at One Drop 2025*

  • A One Drop Ultra Rare Verification Form to be verified can be found at https://ches.education/document-center

    The form must be started by you and finished by the provider of care, ie HTC, Hematologist

  • Confidentiality Agreement

    CHES Foundation (a 501c3 organized and existing out of the State of Massachusetts and all of its affiliates used to facilitate the program) shall be referred to in this agreement as “CHES”.  I, (Participant) acknowledge and agree by signing and initialing that:

    I have come to One Drop to learn and to share information about bleeding disorders, and in that spirit, I recognize that there may be discussions that are personal in nature (e.g., specifics relating to a patient’s condition). I will keep anything that I hear confidential and will not discuss it outside of the meeting.


    If, along with being a person with a bleeding disorder, caregiver, family member, or healthcare provider I have a commercial interest in the supply of products (e.g., am employed by a home care company or similar organization) or services related to patient care, I agree to:

     Respect the confidentiality of the consumer participants and will not promote my company’s/organization’s products or services now or in the future. My relationships will be strictly as consumer to consumer.

     I will not steer conversation in the direction of bleeding disorders business. If I am asked directly about my company’s products or services,

     I will state that this educational event is not the place for me to discuss any commercial interest and will notify CHES staff immediately about this inquiry.

     In attending this meeting, I recognize that information regarding my disease-state may be made available to other participants. This information will not be used in a commercial manner by CHES (or their agents) without my expressed permission.

     I understand I may be asked to cease from participation of One Drop if I do not honor the Confidentiality Statement in its entirety.

     

    Release of Images

    I hereby authorize representatives of CHES to photograph, or video record images of all accompanying family members and myself.

    I also agree that the program and persons may use, and permit other persons to use the negatives, prints, digital photos, or video prepared in such a manner as either may deem appropriate. I grant CHES the absolute right and permission to copyright and/or use pictures of us in which they may be included in whole or in part, in advertising, business, or trade or any other lawful purpose whatsoever including publication to the CHES websites and marketing materials.

    The term "photograph" as used in the foregoing agreement, shall mean motion picture or still photography in any format, as well as videotape, videodisc and any other mechanical means of recording and reproducing images. I have entered into this agreement willfully and hereby waive any right to compensation for such uses by reason of the foregoing authorizations.

    Acknowledgment and Assumption of Risks

    Understanding the nature of the activities and their risks, and that other risks may beencountered which cannot be reasonably anticipated, I acknowledge and expressly assume all risks of CHES Foundation activities, whether or not described in this agreement, known or unknown and inherent or not. I take full responsibility for any injury or loss, including death, which I may suffer, arising in whole or part out of my enrollment or participation in the activities of a CHES Foundation program.

    Release and Indemnity

    If I am an adult Participant, I hereby agree, for myself and additional guest, TO RELEASE, INDEMNIFY (that is, defend, protect and pay claims, including costs and attorneys’ fees), AND HOLD HARMLESS CHES, their owners, officers, partners, agents, and employees, (“Released Parties”), with respect to any and all claims of injury, disability, death, or other loss or damage to person or property suffered by me, by any member of my family, rescuers, co-participants, or any other person, arising in whole or part from my participation in CHES program activities or any related activity, WHETHER ARISING FROM THE NEGLIGENCE OF A RELEASED PARTY OR OTHERWISE, and to the fullest extent permitted by law.

    Additional Provisions

    I, an adult Participant, and/or the guardian/parent of a minor child, authorize CHES Foundation to provide or obtain for me and/or my child(ren) such medical care as it considers necessary and appropriate, and I agree to pay all costs associated with such care and related transportation. CHES Foundation and any third-party medical caregiver are authorized to exchange medical information concerning my, or the minor’s, medical condition. Any dispute between a Released Party and Parent or Participant will be governed by the substantive laws of the State of Massachusetts only. If the dispute cannot be resolved by mutual agreement, I agree to submit it to an arbitrator recognized by the Courts of that State and County. I will pay all costs and attorney's fees incurred by any Released Party in defending a claim or suit brought by me if the claim or suit is withdrawn or to the extent a court or arbitrator determines that the Released Party is not responsible for the claimed injury or loss.
    This agreement is entered into voluntarily, and after careful consideration. Its terms cannot be supplemented or amended except in writing. I understand and agree that it is binding, to the fullest extent allowed by law, upon all persons signing below, their respective heirs, executors, administrators, wards, minor children (whether or not they are Participants) and other family members. If any part of this agreement is found by a Court or other appropriate authority to be invalid, the remainder of this agreement nevertheless shall be in full force and effect.

  • By submitting this form, you are agreeing to receive periodic mailings about CHES Foundation programs that are relevant to your medical condition. If you wish to unsubscribe or edit your preferences, you may visit https://ches.education/communications-profile-form
  • Should be Empty: