KLF Share Story

1
Parent / Guardian First & Last Name* This field is required.
First Name
Last Name
2
Parent / Guardian Email* This field is required.
example@example.com
3
Phone Number* This field is required.
Please enter a valid phone number.
4
Name of MPS Hero* This field is required.
First Name
Last Name
5
Age at Diagnosis* This field is required.
6
Current Age* This field is required.
7
MPS1 Type* This field is required.
Hurler
Hurler-Scheie
Scheie
8
Any siblings with MPS? If so, please list their names and ages below.Leave blank if your MPS hero does not have any siblings with MPS1.
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9
Please describe your diagnosis journey.* This field is required.
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10
Please describe what it felt like when you received the diagnosis.* This field is required.
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11
How has MPS1 affected your child/children?* This field is required.
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How has MPS1 affected your family as a whole?* This field is required.
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13
What is the hardest part about being a parent of a child or children with MPS1?* This field is required.
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14
What is the biggest misconception people have about being an MPS1 parent? * This field is required.
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15
If you could tell people just one thing about MPS, what would it be?* This field is required.
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16
Please provide a convincing statement from your family as to why others should join, share, advocate or donate to The Kennedy Ladd foundation.* This field is required.
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Please provide links to your story online. That could be your website, social media page, or anywhere that we can learn more about you and your families story to share with others.* This field is required.
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18
Please upload any pictures, videos, or other material we can use to help further your story. Doing so gives us consent to share for marketing efforts and awareness. * This field is required.
Drag and drop files here
Select files to upload
Max. file size: 10.6MB
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19
Do you agree that we can share any of the information you provided to further the cause of MPS1 awareness through The Kennedy Ladd foundation or any of its partners / affiliates. * This field is required.
YESNO
20
How did you hear about the Kennedy Ladd Foundation?* This field is required.
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