EUCAIM Stakeholder Survey Questions

Country*

Profile*

Researcher (medical, academic)Researcher (artificial intelligence)Health care professional (e.g. clinician)Innovator or health technology developer (industry)Policy-maker or regulatorPatient organisations or patientData Protection OfficerOther (please specify)

Have you heard of the EUCAIM project or the Cancer Image Europe platform before today?*

YesNo

The EUropean Federation for CAncer IMages project, EUCAIM, is the cornerstone of the European Commission-initiated European Cancer Imaging Initiative, a flagship of Europe’s Beating Cancer Plan (EBCP), which aims to foster innovation of digital technologies in cancer treatment and care to achieve more precise and faster clinical decision making, diagnostics, treatment and predictive medicine for cancer patients.

Health data, including medical images, are highly distributed and fragmented in Europe. Artificial Intelligence (AI) offers a paradigm shift towards data-driven decision making that is revolutionising medicine. In medical imaging, an increasing number of studies are appearing in which AI tools are making important contributions towards a more accurate diagnosis or a more reliable treatment response and prognostic prediction. However, there can be a significant difference between the design and the real-world performance of algorithms, leading to ethical and safety issues. The aim of EUCAIM is to address this issue: to deploy a federated, pan-European research infrastructure in order to address the fragmentation of the health data and medical images in Europe.

This research infrastructure will support the development and validation of AI tools toward Precision Medicine. Such AI tools will support and enhance the (cancer) diagnosis procedure, treatment and the identification of the need for predictive medicine. Overall, this infrastructure will provide a platform for developing AI tools that aim to enhance cancer treatment and the diagnosis procedure for patients.

EUCAIM builds on the already existing, but fragmented data repositories of cancer images developed through the projects of the AI4HI initiative. Furthermore, we will also define the legal grounds for the operation of the federated data repository on the European scale by adapting to the particularities of the data management regulations of the different European countries. Preserving the data sovereignty of the data providers has a high priority in EUCAIM.

For more informartion visit our website today: https://cancerimage.eu/

On a scale from 1 to 5, how would you rate your understanding of the EUCAIM project's goals and potential impact?*

Which aspect of the EUCAIM project and the Cancer Image Europe platform interest you?*

Sharing cancer imagesAccessing cancer images for academic researchAccessing cancer images for for-profit research and exploitationUsing analysis and processing capabilitiesEstablish a collaborative network with other researchers

In your view, what should be the primary goal of EUCAIM?*

Enhancing cancer diagnosis accuracyFacilitating cross-border data sharingAdvancing AI research in healthcareOther (please specify)

The EUCAIM platform will increase the overall quality of cancer treatment and care for patients across Europe.*

Do you think EUCAIM and the Cancer Image Europe platform can incorporate patient perspectives effectively in its research and development processes, considering the sensitive nature of cancer-related data?*

YesNo

Do you think EUCAIM and the Cancer Image Europe platform can foster collaboration between researchers, clinicians, and other stakeholders, including patients, to facilitate the development of more effective and personalized cancer treatment approaches?*

YesNo

If yes, please elaborate how:

How important are data privacy and security measures in projects like EUCAIM to you?*

What are your main concerns regarding data privacy and security in the EUCAIM project?

What do you perceive as the biggest potential barriers to implementing EUCAIM's outcomes in the healthcare system?*

Would you consider using or contributing to the Cancer Image Platform?*

Yes, as a data holder, providing access to cancer image dataYes, as a researcher, using data and/or tools, processingYes, as an innovator, using data and/or tools, processingYes, as a data holder and data userYes, in policy-makingNoOther (please specify)

An infrastructure that enables secure access to cancer image data would be valuable to my organisation.*

The Cancer Image Europe platform will facilitate my organisation to have access to multicentric cancer image data.*

The Cancer Image Europe platform will reduce the time (and associated costs) needed for my organisation to generate new multicentric data collections in response to a specific Research Question.*

Cancer Image Europe will provide my organisation with tools to facilitate data discovery and data access.*

Cancer Image Europe will provide my organisation with tools for distributed processing.*

The secure processing environment will facilitate and simplify my organisation's legal and ethical complience in the use of cancer image data.*

An infrastructure that enables secure and controlled data sharing would be valuable to my organisation.*

The Cancer Image Europe platform will make my organisation's datasets (more) FAIR (findable, accessible, interoperable and re-useable), through the mapping to a common hyperontology and the harmonisation of multicentric imaging data. This attracts the interest of potential data users.*

EUCAIM and Cancer Image Europe platform will facilitate that my organisation achieves long-term sustainability for the data collections generated in the context of European or publicly funded research projects, after the project ends.*

Cancer Image Europe will facilitate that my organisation is better aligned with an institutional, regional or national positioning on contributing our healh data for secondary use.*

EUCAIM will facilitate that my organisation complies with the future European Health DataSpace (EHDS) regulation.*

Access to the infrastructure will promote participation of my organisation in large-scale, multicentric studies, contributing to my organisation's recognition and collaboration opportunities.*

Are you interested in participating in future EUCAIM workshops or training sessions?*

YesNo

If yes, please provide your e-mail address:*

example@example.com

Would you or your organisation be willing to pay for access to advanced features or services provided by the EUCAIM platform?*

What incentives would most encourage you to contribute data or tools to the EUCAIM platform?*

Financial compensationAccess to exclusive research and toolsRecognition and citationsRegulatory supportMaking my datasets more compliant with international Common Data FrameworksNew opportunities for collaborationsPartners in projects that are/will be fundedOther (please specify)

What additional areas or features would you like to see included in the EUCAIM project?

Please feel free to share any other thoughts, feedback or suggestions about the EUCAIM project and the Cancer Image Europe platform:

EUCAIM Stakeholder Survey Questions

General Information

Understanding and awareness

Expectations and priorities

Data Management Privacy

Usability and Implementation

Engagement and Collaboration

Sustainability

Incentives for Contribution

Future Direction

Final thoughts