Pharmacy Operations and the Treatment of Rare Diseases

Pharmacy Operations and the Treatment of Rare Diseases — A Leadership Survey

In appreciation of completing the survey, you will receive a summary of the survey results. Additionally, all survey participants that are currently employed by a hospital or health system will receive a complimentary registration to Becker's Hospital Review 14th Annual Meeting. If you will not be attending, you are welcome to designate a hospital or health system employee to attend in your place.

To confirm the validity of the survey and to send you your complimentary registration, we are collecting contact information of the participants.

If you have any questions regarding this survey, please contact Liz at lengman@beckershealthcare.com.
Email*
Name*

First NameLast Name
Job Title*
Organization Name*

Which of the below best describes your role?*

Finance directorClinic directorPopulation health – manager or abovePatient access – manager or aboveDirector of pharmacyClinical integration director (pharmacy)Medical directorPharmacy & therapeutics (P&T) committee memberVice president of infusion operationsDirector of infusion servicesRevenue cycle – manager or aboveSpecialty pharmacy directorConsultant pharmacistDrug supply/procurement – manager or aboveOther
Please select the most accurate description of your organization. Please select all that apply*

Health systemHospital340B qualified entityFor-profitNonprofitI am not employed by a medical providerOther
How many hospitals are in your health system?*

1 to 2526 to 5051 to 7576 to 100101 to 125126 to 150151 to 175176 to 200More than 200I don't knowMy organization is a stand-alone, independent hospitalN/A
What is the size of your hospital(s) or flagship facilities?*

25 beds or less26 to 50 beds51 to 100 beds101 to 300 beds301 to 500 beds501 beds or moreI don't knowN/A
Approximately how many patients does your health system/organization serve each year?*

100,000 to 500,000501,000 to 1,000,000More than 1,000,000I don't knowN/A
Does your health system have/own in-house specialty pharmacy services?*

YesNoI don't knowN/A
At what sites of care does your organization administer infusion services? Please select all that apply*

Physician's officeOutpatient/ambulatory clinicStand-alone infusion centerAt the patient's homeI don't knowN/AOther
What best describes your responsibilities related to provider-administered drugs? Please select all that apply*

I prescribe themI order/procure/stock drugsI’m involved in the administration proceduresI’m involved in the claims/reimbursement processI’m involved in the P&T review processI’m involved in hospital/clinic services that use provider-administered drugsOther
How does your health system identify patients who need appropriate treatment for rare/specialty diseases? Please select all that apply*

Clinician questionnaires for each specialty departmentFamily cascade screeningGenetic Department/TeamEMR search by Pharmacy DeptEMR search by individual clinicI don't knowOther
What infrastructure and processes do you have in place to diagnose and manage rare/specialty disease patients? Please select all that apply*

Treatment algorithms/pathwaysDefined referral pattern to appropriate internal specialistSpecialist consult through telemedicineRare/Specialty disease clinicRare/Specialty disease Center of ExcellenceSpecialty pharmacy operationsOther
Once diagnosed, what site of care do you use to treat patients who need administration of high list price drugs? Please select all that apply*

The prescriber’s clinicOur local hospital’s outpatient infusion clinicHome infusion program/Hospital-at-homeOur main/flagship hospital campusNon-affiliated Ambulatory Infusion ClinicAn external Center of Excellence when availableOther

What are the advantages of employing the buy & bill model for rare/specialty diseases compared to sending referrals to an external provider? Please rank the answers from greatest advantage (#1) to lowest (#6)*

	1 - Greatest Advantage	2	3	4	5	6 - Lowest Advantage
Continuity/quality of patient care
Capture potential revenue
Complete treatment history captured in the EHR/EMR
Patient satisfaction
Integrity of the drug supply chain
We don’t see an advantage to buy & bill in treating rare/specialty diseases

Which of these strategies are employed to maintain care of patients needing administration of high list price drugs within your health system? Please select all that apply*

Health system specialty pharmacy operationInfusion capability in specific Specialty ClinicsHome infusion operationReferral to affiliated alternative sites of careWe don’t specifically seek to administer drugs our clinicians prescribeOther
How does a drug’s list price impact your decision to buy & bill? Please select all that apply*

A drug’s list price has minimal bearing on the decisionWe have a hard cap on a drug’s list price that we won’t exceedWe take an extra step in benefit determination for high list price drugsWe will consider buy & bill as long as the payer will adequately reimburse for a drugOther
This is a list of potential barriers to conducting buy & bill in rare/specialty diseases. Please rank them in order of their impact on your health system (from highest impact to lowest). Responses at the top of the list will be treated as most important and ones at the bottom will be treated as the least important. You can drag responses towards the top of the list to increase their importance.
If there is another barrier to conducting buy & bill in rare/specialty diseases that has an impact on your health system, please elaborate here.
How do you confirm payer coverage of high list price buy & bill drugs? Please select all that apply*

The pharmacy department’s benefit investigation teamThe prescribing clinic’s benefit investigation teamA manufacturer’s HUB serviceAppropriate Health system team(s) merge efforts with a manufacturer’s HUBOther
Which of these selections best describes your accounting process for buy & bill revenue?*

Revenue is tracked to the prescribing clinicRevenue is tracked to the pharmacy departmentRevenue is tracked at the administration site (e.g., infusion clinic)Revenue is only tracked by the Finance Department/Revenue cycle managementI don’t knowOther
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