2024 Contact Registry

Application
CASK Gene Foundation aims to facilitate connections for the benefit of all those impacted by the CASK Gene - personally or professionally. We value collaboration among research teams, and we recognize that patient care can improve when providers can lean on the experience of those who have worked more closely with CASK gene disorders previously. Professionals are invited to join our Professional Network, so they can be notified with topics of interest to them.
We're happy you found us, and grateful for your interest in learning about and spreading awareness of CASK gene disorders. We welcome you to register for our newsletter and updates, to stay informed as we all learn more together.
CASK Gene Foundation could not operate without our volunteers.

They come from all backgrounds, and care about contributing their time to ensure that donations can primarily serve the CASK gene community, rather than operating costs of the foundation itself. At this time, every position within the foundation is a volunteer role, and each has a meaningful connection to the CASK gene.

We occasionally request applications for specific volunteer roles, which are listed below, but you are welcome to fill out a volunteer application at any time. A wide variety of volunteer roles may be made available, based on the interests, talents, skills, and availability you wish to offer.

Click on "Start Here" to fill out your application!

About You

We use this information to determine which sections of this form need your attention, and how we can help improve communication with our subscribers.
Registration Type*

NewUpdateUnsure
Please feel free to submit a new form. If we find you have previously registered, we will merge the records.
Your Name*

First NameLast Name
So that we can improve our future offerings, what is your preferred language? *

Your Contact Information

We use your email to deliver your newsletter and any notifications you opt in to receive. Your specific street address and phone number are optional. Your city, state / province, and country / union details are used to help us learn about the location of the CASK communities and supports.
Email*

Confirmation Emailexample@example.com
Phone Number (optional)

Area CodePhone Number
Address*

Street Address

Street Address Line 2

City / MunicipalityState / Province

Post / Zip CodeCountry / Union

Contact Preferences

In addition to your newsletter subscription, would you like to be notified about any of the following?

Welcome to the CASK Family Network

Use this section to tell us which additional types of connections you would like to make.
Would you like to join the private CASK Family Network group on Facebook?*

YesNo
Your name, as it appears on Facebook

Professional Experience

Use this section to tell us a bit more about your professional experience.
Title / Position*
Company / Institution / Employer*
Professional Experience*
Please use this section to describe your professional connection with the CASK gene further, and / or to provide links to your LinkedIn or other online professional profile(s).
Would you like to receive an invitation to join the CASK Gene Foundation Professional Network Slack channel?*

YesNo

Optional Add-Ons

Please feel free to enrich your file with a photo and CV or other documentation.
Profile Photo
File Upload

You may use this block to upload any resume / CV / certificate you would like to add.
Cancelof

How did you first hear about the CASK gene? *
How did you first learn about CASK Gene Foundation? *
If you could offer one piece of advice to another parent raising a child with a CASK gene disorder, what would you say?*
Should be Empty:

	Not Interested	Somewhat Interested	Very Interested
Clerical / Administrative
Tech / User Testing
Language Translation
Event Planning / Management
Social Media / Content Creation
Parent Advocate Board
Medical / Science / Tech Advisory
Governing Board
Financial / Fundraising

About You