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  • Ilene's Caregivers Application

  • Ilene’s Caregivers was launched in 2022 to complete the circle of caring at Lucy’s Love Bus by providing essential support services for our Love Bus children’s parents, guardians, or caregivers. Ilene’s Caregivers offers a menu of self-care and respite options to support parents and caregivers through the long journey of caring for a very sick child and their sibling/s. This program is generously funded by The Ilene Beal Foundation and Parmenter Foundation.

    ALL parents who have or had children with cancer, and who live in New England, are encouraged to apply to this program-- we have special support services for everyone!

    Haga clic aquí para rellenar la solicitud en español.

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  • Love Bus Caregiver Peer-Led Support Group Agreement

    Lucy’s Love Bus provides peer-led virtual support groups as a safe, compassionate space for caregivers navigating the challenges of childhood cancer, survivorship, and bereavement. To ensure the safety and well-being of all participants, we ask that you read and agree to the following guidelines before joining the group.

    1. Group Expectations
    By participating in this group, I agree to:
    ✔ Treat all members with respect and confidentiality.
    ✔ Share my experiences in a way that is supportive and non-judgmental.
    ✔ Refrain from giving medical advice or suggesting specific treatments.
    ✔ Avoid discussing religious or political topics unless directly related to caregiving.
    ✔ Not record, screenshot, or share any content from the group.

    2. Crisis & Safety Protocols
    Our group is a peer support space, not a substitute for professional mental health services. If a participant uses language that suggests:

    • Self-harm or suicidal thoughts
    • Harm to others
    • Abuse or neglect of a child or dependent adult

    The following steps will be taken:

    Immediate Check-In
    A facilitator will acknowledge the concern and encourage the participant to seek professional help.

    Resource Referral
    The facilitator will provide crisis support resources such as 988 (Suicide & Crisis Lifeline), 911, 1-800-273-TALK (8255), or local crisis services.

    Emergency Contact Notification
    If there is a clear safety risk and the individual does not indicate they are safe, their listed emergency contact (listed below) may be notified. In extreme situations, emergency services may be contacted.

    Hospital Social Worker Contact (if applicable)
    If the participant has a hospital social worker, they may be contacted to provide additional support.

    Disconnection During a Crisis
    If a participant is in crisis and becomes disconnected from the group, they agree to call 911, 988, or go to the nearest emergency room. Love Bus staff and facilitators will follow the safety protocols outlined above if concerns remain.

    Follow-Up
    A facilitator or Love Bus staff member will check in after the meeting to offer additional resources. If ongoing safety concerns arise, the individual may be asked to step away from the group until they have appropriate support in place.

    3. Facilitator Discretion & Group Participation
    Love Bus facilitators strive to create a safe and supportive space for all members. If a participant’s behavior is disruptive, repeatedly violates group guidelines, or creates safety concerns, facilitators may:

    ✔ Issue a private warning about the concern.
    ✔ Offer alternative resources or recommend one-on-one support outside the group setting.
    ✔ Temporarily or permanently remove the participant from the group if necessary for the well-being of others.

    These decisions will be made with compassion and fairness, and when possible, a Love Bus staff member will follow up to offer alternative support.

    4. Release of Liability
    I unconditionally release and discharge Lucy’s Love Bus, its affiliates, agents, employees, and my peer group facilitator from any liability in connection with my participation in the Love Bus Caregiver Peer Support Group, including but not limited to any claims associated with third parties “hijacking” a virtual group session and potentially accessing confidential information.

  • Emergency Contact Requirement

    To participate in this group, you must provide an emergency contact who can be reached in case of a crisis. This person should be aware of your participation in the group and able to assist if needed.

  • Consent & Agreement

    By signing below, I confirm that I have read and agree to the expectations, crisis protocols, and confidentiality policies outlined above. I understand that this group is a peer-led space and not a substitute for professional mental health care.

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  • LUCY’S LOVE BUS CHARITABLE TRUST, INC.
    RELEASE AND WAIVER OF RIGHTS
                

    This Release and Waiver of Rights (hereinafter, this “Waiver”) is made on behalf of the participant {yourName} (hereinafter, “Participant”).  Participant has requested the assistance of Lucy’s Love Bus Charitable Trust, Inc. and its respective volunteers, officers, directors, employees, agents, and affiliates (collectively, “Lucy’s Love Bus”) in identifying and collaborating with third party providers of certain services (hereinafter, “Provider(s)”).  Providers specialize in services including, but not limited to, acupuncture, massage, therapeutic horseback riding, Reiki, meditation, tai chi, art, music, dance, fertility preservation, therapies, medical support and other activities (collectively, “Services”), such that Providers can render their Services directly to Participant.

                Participant(s) hereby acknowledge and understand that Lucy’s Love Bus identifies, partners with, and makes referrals to Providers.  Participant(s), however, understand that Participant(s) are ultimately wholly responsible for and assume the entire risk of and determination as to whether a Provider and/or Provider Services are safe and proper for Participant.  Such determination includes, but is not limited to, whether a Provider is qualified and fit to adequately perform Services for Participant.  Participant(s) further acknowledge and understand that Participant(s) should consult with Participant’s medical professionals as to whether Provider Services could potentially harm Participant.  Participants(s) also acknowledge and understand that Provider Services and/or the location of Provider Services have the potential to pose certain risks which could lead to injuries and even death of Participant.

                In consideration of Lucy’s Love Bus’s identification of Providers and other services: 

    1.     PARTICIPANT HEREBY ACKNOWLEDGES AND FULLY ASSUMES THE RISKS INHERENT IN PROVIDER SERVICES.  Such risks may include, but are not limited to, physical or psychological injury, property damage, or other physical, economic, or emotional losses, or other damages caused in part or in whole by the location of the activities, personal negligence, or the negligence of others, among other potential contributing factors.  After consideration of the risks inherent in Provider Services, including, but not limited to, those contemplated herein, Participant(s) hereby acknowledge and fully assume any and all risks in connection with referral by Lucy’s Love Bus and Participant’s participation in any and all Provider Services.

    2.     PARTICIPANT HEREBY WAIVES ANY AND ALL CLAIMS AGAINST LUCY’S LOVE BUS ON THEIR OWN BEHALF. Participant agrees to waive and release and promise to indemnify, reimburse, defend, and hold harmless Lucy’s Love Bus against any and all legal or equitable claims and proceedings of any description, known or unknown, that Participant, and/or their respective heirs, have or may have in the future, directly or indirectly, against Lucy’s Love Bus for any losses, damages, expenses, or injuries, including, but not limited to, physical or psychological injury, pain, suffering, illness, disfigurement, temporary or permanent disability (including paralysis), economic or emotional loss, property damage, and death, suffered from, or in connection with, referral by Lucy’s Love Bus and/or participation in any and all Provider Services.

    3.     PARTICIPANT HEREBY AGREES, THAT, TO THE EXTENT ALLOWED BY APPLICABLE STATUTE OR CASE LAW, THIS WAIVER IS ALSO FOR NEGLIGENCE ON THE PART OF LUCY’S LOVE BUS.  Participant acknowledges and understands that the injuries and outcomes contemplated herein may arise from the negligence of others. Participant hereby agrees, that, to the extent allowed by applicable statute or case law, Lucy’s Love Bus shall not be liable to Participant for any negligence by Lucy’s Love Bus in connection with its referral of Providers or other services.

    4.     PARTICIPANT HEREBY AGREES TO ARBITRATION, IN ACCORDANCE WITH MASSACHUSETTS LAW, IN THE EVENT OF ANY DISPUTE. In the event a dispute shall arise between Participant and Lucy’s Love Bus out of or relating to this Waiver or the construction, interpretation, performance, termination, enforceability or validity of this Waiver, Participant hereby agrees to binding arbitration in accordance with the then applicable American Arbitration Association Commercial Rules of Arbitration.  Further, Participant hereby agrees that such arbitration shall be the agreed upon exclusive dispute resolution for any and all matters arising between the parties to this Waiver, now or in the future.  In the event of arbitration, Participant and Lucy’s Love Bus shall mutually agree on a single arbitrator.  In the event that Participant and Lucy’s Love Bus cannot agree on a single arbitrator, each party shall appoint an arbitrator and those chosen arbitrators shall, in turn, mutually agree on a third arbitrator for a complete panel of three arbitrators.  The dispute(s) shall then be resolved by the single chosen arbitrator or the panel, in either case applying the substantive law of The Commonwealth of Massachusetts without regard to any applicable choice of law rules.  Any decision or award rendered by an arbitrator or panel shall be final and legally binding, and judgment may be entered thereon.

    Each party shall be responsible for its share of costs associated with arbitration.  In the event a party fails to proceed with arbitration, unsuccessfully challenges the arbitrator’s award, or fails to comply with the arbitrator’s award, that party shall reimburse the other party for costs of the legal suit, including reasonable attorney’s fees, for having to compel arbitration or to defend or enforce the award.

    5.     PARTICIPANT HEREBY AUTHORIZES AND CONSENTS TO PARTICIPATION IN PROVIDER SERVICES.  Participant acknowledges and understands that referral to and participation in Provider Services is completely voluntary, and that Participant is free to not participate in any Provider Services. After consideration of the risks inherent to participating in Provider Services, Participant hereby consents to, and authorizes, Participant’s participation in any and all such Services with full knowledge that Lucy’s Love Bus will not be liable to Participant for any related personal injuries or property damage that may occur.

    Participant hereby acknowledges that they have read, understood, and agreed to this Waiver in its entirety, including, but not limited to, the above paragraphs numbered one through six (1 – 6).  Participant hereby agrees that signing below binds themselves and their respective heirs, successors, assigns, and estates to the terms and conditions described herein.  Participant further acknowledges that by signing below they have entered into this Waiver willingly and knowingly, without fraud, duress, or coercion by Lucy’s Love Bus.  Participant hereby agrees that this Waiver is an accurate understanding of the entire agreement between the parties on the subject, that neither party has relied on any outside representation or statement on the matters described herein, and that this Waiver has not been modified orally.  Participant hereby agrees that if any provision of this Waiver is or becomes illegal, unenforceable, or invalid in any jurisdiction for any reason, it shall not affect the enforceability or validity of any other provision of this Waiver.

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  • What happens now?

    Our Caregivers Program Manager, Colleen Tierney, will reach out to you!

    We will add your email address to our list for virtual programs, including an invitation to join our weekly support groups and monthly integrative therapy healing sessions. Please watch for email reminders and Zoom links. 

    Welcome aboard the Love Bus!

  • Important notes

    1. You must reserve and pay for your services and/or stay with the provided gift card- we are not allowed to reimburse you so please do not pay for anything out of pocket.

    2. Be sure to check and abide by the cancellation policy for each Airbnb reservation so that you don't lose your funding if you need to cancel for any reason.

    3. Once you receive a gift card from Lucy's Love Bus (LLB), LLB is not liable for any incidents during services/stays. LLB is not responsible for assisting you with scheduling of any sort, including rescheduling or cancellations. Be sure to learn the company's cancellation policy; LLB cannot offer additional funding for any money lost due to cancellations or rescheduling.

    By signing below, you acknowledge adherence to these guidelines.

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