Submit Your Story

Submit Your Story

Sharing your story is a powerful form of advocacy. By sharing the experiences of your GM1 loved one(s) and family, you can help humanize this disease and spread awareness.
Your Name

First NameLast Name
Email
example@example.com
Phone Number
Please enter a valid phone number.Format: (000) 000-0000.
Where do you live?
What is your GM1 loved one's name?
What is your GM1 loved one's date of birth?

MonthDayYear
Date
How did you feel when your child received a diagnosis of GM1?
What is the impact of GM1 on your child? / What was the impact of GM1 on your child?
How does GM1 impact your family? / How did GM1 impact your family?
What is the hardest part of being a GM1 caregiver? / What was the hardest part of being a GM1 caregiver?
What do you wish people understood more about rare diseases and the experience of living with GM1?
If we could tell people just one thing about GM1 gangliosidosis, what would it be?
Why should people support the Cure GM1 Foundation and rare diseases?
Is there anything else you would like to add to your story?
Can you share 3-5 photos of your GM1 loved one and your family?

Cancelof
First and last name of subject(s) in photos.
By voluntarily providing photos and media to Cure GM1, you hereby consent to any use, reproduction or publication of any photos/video/audio (or excerpts thereof) containing your image/likeness/voice by or on behalf of Cure GM1 Foundation (and its representatives) for any promotional, educational or general purposes related to Cure GM1 Foundation’s mission, including in websites, social media or other means. You hereby waive all rights to any claims for payment or royalties in connection with such use, copying or publication, as well as any right to inspect or approve any photo, video, or audio recording taken by or on behalf of Cure GM1 Foundation (or its representatives), and you acknowledge and agree that neither Cure GM1 Foundation (nor its representatives) will have any obligation to seek further permission nor notify you before making use of such media or any excerpts of such media.
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