Exercise Engagement Among Young-Onset Parkinson's Disease Patients
This survey aims to gather information about the exercise habits and preferences of individuals with Young-onset Parkinson’s Disease (YOPD). The data collected will help us understand the barriers and facilitators to exercise participation in the Y.O. population and inform the development of tailored exercise programs.
STOP! This survey is to be completed by individuals diagnosed with Young-onset Parkinson's Disease, individuals aged 55 years old and younger. If you are not a YOPD patient, please DO NOT complete the survey.
Instructions:
Please answer each question to the best of your ability. Your responses will remain confidential and will only be used for research purposes.
How did you hear about the survey?
Rock Steady Boxing Affiliate
Parkinson's Foundation
Davis Phinney Foundation
PD Support Group
Young Onset Parkinson's Network
LSVT
Dance for PD
PMDAlliance
Demographic Information
Age
18-21
22-25
26-31
32-37
38-43
44-49
50-55
Age At Onset (AAO)
Age at Diagnosis
Gender
Female
Male
Non-Binary
Prefer not to say
Occupation
Are you retired?
Yes
No
State/Country of residence
Have you shared your diagnosis with non-family members?
Yes
No
Survey Question Instructions:
Thank you for completing the survey. Your honest responses will greatly contribute to our understanding of exercise participation among individuals with YOPD. Please answer each question to the best of your ability. Your responses will remain confidential and will only be used for research purposes.
Have you ever participated in a structured exercise program designed for individuals with Parkinson's disease?
Yes
No
Have you participated in a structured exercise program designed for individuals with Parkinson's Disease? (Check all that apply)
Rock Steady Boxing
Parkinson's Wellness Recovery (PWR!)
LSVT BIG
Dance for PD
Pedal for PD
I have not participated in a structured exercise program designed for PWP
Other
If yes, please briefly describe your experience with the program. What aspects did you find beneficial, and were there any challenges you encountered?
Have you heard of Rock Steady Boxing, a non-contact boxing program designed for people living with Parkinson’s disease?
Yes
No
If "Yes," Where did you hear about Rock Steady Boxing?
Medical professional
Personal Trainer/Group Ex Instructor
Family/Friend
News Media (Local or National coverage)
Social Media (Instagram, FaceBook, TikTok,etc.)
Web Search
Other
What types of exercise do you typically participate in? (Check all that apply)
Aerobic Training
Strength/Resistance Training
Circuit Training/Bootcamp
CrossFit
Yoga/Pilates
Tai Chi/Qigong
Cycling/Cycle Classes
Other
On average, how many days per week do you engage in structured exercise (e.g., gym workouts, classes, etc.)
0
1-2
3-4
5 or more
How do you prefer to train/exercise?
Personal Training
Small Group Training (3-4 people)
Group Exercise (5 or more people)
lndependently
Do you prefer In-Person, Virtual, or Hybrid training options?
In-Person
Virtual
Hybrid (Options for both in-person and virtual)
What are the primary reasons motivating you to engage in exercise? (Check all that apply)
Improving physical strength
Improving mobility, balance, agility
Managing PD symptoms
Enhancing mood and mental well-being
Social interaction/Connecting with others
Weight management
Other
What barriers, if any, prevent you from participating in regular exercise? (Check all that apply)
Fatigue
Lack of motivation
Mobility challenges
Financial constraints
Lack of access to suitable facilities
Lack of transportation
Time constraints
Fear of injury
Other
Additional Comments: Would you like to share anything else about your experience with exercise while living with Young-onset Parkinson's disease?
THANK YOU!
Thank you for completing the survey. Your input is invaluable in shaping future exercise interventions for individuals with young-onset Parkinson’s disease.
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