The Schinzel-Giedion Syndrome Foundation appreciates the support of families and caregivers willing to share their experiences with Schinzel-Giedion Syndrome (SGS). Your stories help raise awareness about SGS, the Foundation’s mission and rare diseases.
We value your privacy and confidentiality. By providing your information, photographs, and videos, you're granting permission for us to use them in various materials such as publications, websites, social media, videos, brochures related to the Schinzel-Giedion Syndrome Foundation. When showing a child's face, we will only include their first name, age, and country of residence.