2027-2031 State Plan Survey

Ohio Developmental Disabilities Council 5-Year State Plan Public Survey

2027-2031
The mission of the Ohio Developmental Disabilities Council is to create change that improves independence, productivity and inclusion for people with developmental disabilities and their families in community life.

To do this, the DD Council identifies problems or needs that should be addressed. These problems or needs are agreed upon by Council members and identified in DD Council's 5-Year State Plan on Developmental Disabilities. This State Plan is used to create specific grant proposals.

The 5-Year State Plan Public Survey will be the first step in identifying problems and needs. The DD Council believes it is important to know what people like you find important.

In this survey, DD Council means the full name of the Ohio Developmental Disabilities Council, and DD means developmental disability.

We will not ask for your name or any other information that could be used to identify you. This information is being provided in a confidential manner, and will only be used to help the DD Council develop their next 5-Year State Plan on Developmental Disabilities.

If you do not know how to answer a question, select “I do not know” or do not answer it. If an answer to a question is not listed, please select “Other” and write the answer.
Section 1 - Demographics

These questions are to help us get a profile of who is answering our survey from around the state.
1. Please select the category that best describes you:*

Person with a Disability or Self-AdvocateParent or Family Member or GuardianDevelopmental Disabilities Professional or Other StakeholderOther
2. How old are you?*

Under 1414-1920-3435-4950-65Over 65
3. What is your race/ethnicity?*

White or CaucasianBlack or African AmericanHispanic or LatinoAsianAmerican Indian or Alaskan NativeNative Hawaiian or Pacific IslanderTwo or more racesI prefer not to answerI do not knowOther
4. What is your current gender?*

MaleFemaleTransgender MaleTransgender FemaleNon-BinaryTwo-SpiritPrefer Not to AnswerI do not knowI use a different term.
5. Which of the following best represents how you think of yourself?*

Lesbian or gayStraight, that is, not lesbian or gayBisexualTwo-SpiritI do not knowI prefer not to answerI use a different term
6. What county do you live in?*
7. Do you know anything about the Ohio Developmental Disabilities Council?

I know a little.I know a lot.I don't know anything about it.I am currently a member of the Council.I have served on the Council in the past.

8. Are you a parent with a disability?*

No, I am not a parent.Yes, I have a child and have custody.Yes, I have a child but I do not have custody.I prefer not to answer.Other
8F. What is your relationship to your family member with a disability?*

Parent or Step-ParentGuardian (not related)SiblingSpouse or Significant OtherChildGrandparentOther
8P. Which best describes you?*

EducatorDoctorNurseDentistPT/OTSpeech TherapistDirect Support ProfessionalJob CoachEmployment ProviderDay ProviderIndependent Living CenterCounty Board StaffCounty Board MemberState Agency StaffDD Act Partner StaffCounty CommissionerCity CouncilLegislatorTransportation ProviderFriendI prefer not to answerOther
9. Who is filling out this survey? (The following questions should be answered by the person with a disability. If the person with a disability needs help answering these questions, someone else may help them. However, the answers should be what the person with a disability wants as a response.)*

I am completing it by myselfI am a parent or guardian completing it on behalf of my childI am a sibling completing it on behalf of my brother or sister.I am a direct service provider or caregiver.I am a provider of day services.I am a friend of the person taking this survey.I am the spouse or significant other of the person providing answers for this survey.Other
9F. How old is your family member with DD?*

0-34-1314-1920-3435-4950-65Over 65
9P. If you work with people with DD, which age do you typically work with? (Check all that apply)*

0-34-1314-1920-3435-4950-65Over 65I don't work with people with DD

Section 2 - Priorities for EVERYONE

What do you think is important to people with DD and their families?
In this section, you need to think about about what is important to all people with DD and their families beyond yourself.
10. What are the THREE (3) biggest needs for people with DD to live the life they want to live? (Check no more than THREE (3))

Getting transportation.Understanding their rights.Finding a job or getting a better job or more money.Having better health care.Getting trained service providers.Learning in inclusive environments.Learning about transitioning from school to adulthood.Understanding money and benefits.Finding accessible, safe and affordable housing.Learning about technology and how to get it.Understanding Ohio's support system.Making sure all buildings and information are accessible.Increasing the availability of community-based services.Being active in the community.I don't know.Other
11. Thinking about all families, what do you think are the THREE (3) biggest needs for families being able to assist their family member with a disability? (Check no more than THREE (3))

Finding support due to an aging caregiver.Supporting medical needs.Understanding their rights as a caregiver.Finding day care.Having Early Intervention.Learning how to advocate for their family.Finding respite.Having assistance with daily caregiving.Increasing the availability of community-based services.Meeting other families or people with disabilities.Understanding how to get services.Understanding guardianship options.Understanding estate planning.Understanding benefits including social security eligibility.Receiving information on services in schools, including IEPs.I don't know.Other

12. The following list shows things that may help people with DD live the life they choose. Check how important you think each item will be to helping people with DD achieve the life they want.

	Not Important at All	Not Very Important	I Don't Know - This Does Not Apply to Me	Somewhat Important	Very Important
Letting people with DD and families know about services and supports, and how to get them.
Educating people with DD how to be leaders and how to speak up for what they need.
Informing the public and employers about the talents and abilities of people with DD.
Making documents and websites easy to read and understand.
Giving people with DD, families and providers information about healthy lifestyles.
Educating policymakers and elected officials about issues important to people with DD.
Making sure all public buildings, schools, hospitals, streets, walkways and more are ADA accessible.
Identifying and creating affordable, safe, accessible housing for people with DD.
Increasing opportunities for people with DD in the community.
Increasing the availability of assistive technology to assist people with DD in their daily tasks.
Developing transportation systems to meet the needs of people with varying types of DD.
Improving the support families receive.
Informing all populations and communities about DD services.
Educating people with DD, families and providers to improve their understanding of money and benefits.
Improving day care services for children with DD.
Assisting aging caregivers to find services and supports including respite.
Improving the health care given to people with DD.
Ensuring people with disabilities can vote and participate in all elections.

13. If DD Council could work on only one problem that keeps people with DD from doing what they want in life, what would you ask DD Council to work on?
16P. In your experiences with people with DD, what typically are the issues for them to live where they want to live? (Check all that apply)

Finding a safe, affordable, accessible home.Finding a home in a neighborhood that they want to live in.Finding a home that has nearby transportation.Finding a job and income to pay rent.Finding support staff.Having furniture, kitchen stuff, a TV and other items.Finding a roommate if he or she wants one.I do not know.Other
17P. In your experiences with people with DD, if a person does not feel safe, why? (Check all that apply)

I believe they are safe.I have not talked with them about an emergency plan for fires, natural disasters and other emergency situations that may happen in their life.The police are not properly trained to understand their disability.People in their life make me feel they are unsafe.Their community is not safe.I worry about their online safety.They do not know who to call in case of an emergency.Their money or belongings are often lost or stolen.They do not know who is safe to come into their home.Their providers call off a lot, so they are alone more than they should be.They do not know who they can talk to who can help them feel safe.I do not know.Other
18P. In your experience with people with DD, who makes the important decisions about their life? Examples of important decisions include deciding where they live, work and who they have as friends.

They make all their own decisions.They make most of their own decisions.Their guardian(s) makes their decisions for them.Their guardian(s) makes their decisions with them.Their family member makes their decisions with them.Their family member make their decisions for them.Their staff make their decisions with them.Their staff make their decisions without them.I do not know.Other
19P. In your experience with people with DD, are they able to say what they want or advocate for what is important to them and others with disabilities? (Check all that apply)

Yes, there are many leaders in their community.Yes, but I think many need more training and experience.No, most are not able to say what they want or advocate for themselves.No, they do not know of any self-advocacy groups like People First in their area.No, groups of people with disabilities are being told what they want by advisors.No, my support staff will not let them belong to advocacy groups.No, transportation is a barrier to joining an advocacy group.I do not know.Other
19.1P. In your experience with family members of people with DD, are they able to say what they want or advocate for what is important to them, their family member and others with disabilities? (Check all that apply)

Yes, there are many leaders in their community.Yes, but I think many need more training and experience.No, they are not listened to by professionals.No, they do not have enough knowledge about the DD system of services and supports.No, many don't know how to do this.No, transportation is a barrier to joining an advocacy group.I do not know.Other
20P. In your experiences with people with DD, have they voted in previous elections or do they plan to vote in the next election, what has been their experience? (Check all that apply)

They do not know how to vote or how to register to vote.They need help voting and no one will help them.The polling location is not accessible.The person that helps them will not let them vote as they choose on the candidates or issues.They are discouraged from voting.The voting machine is not accessible.They do not have the proper identification to vote.They do not have transportation to the voting location.They do not understand the issues because the language is confusing.They do not have problems participating in elections or voting.They are not of voting age.I do not know.Other
23P. In your experience with people with DD, which of the following statements would you make about their current provider(s)? (Check all that apply)

They could be on time more often.They could show up more often.They could treat them better.They could find an alternate when they can't come.They could understand the individual's needs better.They need more training.They do not need to do anything better.I do not know.Other
24P. In your experiences with people with DD, what issues do they have participating in activities in the community? (Check all that apply)

Cannot get there or get back home.Do not have available money to spend.Do not know what goes on in the community.Do not have friends to go with.Not comfortable trying new things.A provider or parent won't support participation.An interpreter is not available.Accessible seats are not available.Tickets are too difficult to buy.Accessible parking is not available or convenient.Companion seating is not available.Menus are not in an accessible format.Bathrooms are not accessible.Buildings are not accessible.Support animals are not welcome.There are not barriers to participating in activities the community.I do not know.Other
26P. In your experience with people with DD, what can you tell us about their job? (Check all that apply)

They don't work.They don't like the people they have to work with.Their boss doesn't treat them well.They aren't offered more hours to make more money.They aren't making the same money as others are making.The work is too hard for them.They have trouble getting to and from work.They have trouble with their job coach.They need a job coach.They don't have any problems. They like their job.I do not know.Other
27P. In your experiences with people with DD, if they do not have a job in the community, what are the reasons? (Check all that apply)

They like their job in the workshop.They don't want to leave their friends.They don't want a job in the community.They need a job coach.They need help finding a job.No one will hire them.They want to stay home and not work.They are afraid of losing their benefits.They need transportation to be able to work.They are a student or minor.They are retired.I do not know.Other
28P. What are your thoughts on the transportation options available to people with DD? (Check all that apply)

It's too expensive.It does not stop near their home.They do not understand how to use my Medicaid waiver for transportation.Transportation doesn't cross county lines.It does not stop near their job.There are no transportation providers.There are not enough accessible vehicles.It does not come on time.Their car or van breaks down a lot.They don't have problems because they drive their own car.They don't have problems with the transportation in their community.I do not know.Other
30P. Which of the following statements describe people with DD's health? (Check all that apply)

They need to lose or gain weight.They need to exercise more or learn how to exercise.They need help taking medication.They need help taking care of their teeth.They need to stop smoking.They need help eating balanced meals.They need money to buy healthy food.They need to be more active.They need money for medical or dental needs.They need to go to doctors and dentists more often.They need to get help for an addiction.They need to see a mental health care professional.They are in good health.I don't know.Other
31P. In your experience with people with DD, if they are not getting good health care, what do you think is the problem? (Check all that apply)

Doctors don't know how to treat their disability.Dentists don't know how to treat their disability.Doctors and dentists don't accept Medicaid.Doctors and dentists don't listen to them.Medical offices are not accessible.Equipment is not accessible.They can't get to appointments.Doctors and dentists who treat people with DD are not available.There are few specialists available (i.e. psychiatrist, neurologist).There is a lack of nursing services.Doctors and dentists who treat people with DD don't help patients transition to adult care.They can not understand information because of the words or language used.There are few available therapies (i.e. ABA).I don't know.Other
33P. In your experience with people with DD, what is keeping them from getting more education or special training after high school? (Check all that apply)

They don't know who to ask how to do this.The county board of DD is not helping them.Opportunities for Ohioans with Disabilities will not help them.They need money.They don't have a person available to go with them to class.They don't know what classes to take.They need transportation to get to class.They don't know what programs are available.They need technology.They can't get the accommodations they need.There are few programs available.People that support them do not think they can do it.They don't want more education.They have not finished high school.I do not know.Other
34P. In your experiences with people with DD, what issues do they encounter while in school? (Check all that apply)

They do not participate in outside activities such as sports or the arts with other students.Schools are not totally accessible.They are bullied.They are not ready to get a job when they graduated.School is not helping them with what to do after graduation.Teachers don't know how to work with them.They are not able to participate in their IEP meetings.There are not taught how to say what they want.They do not graduate.They do not receive the accommodations on their IEP.They have to travel a long time to get to school.They do not understand information because of the words or language used.There are no problems.I do not know.Other
34.1P. In your experience with families, what issues do families experience with the education system? (Check all that apply)

The are met with resistance from the school staff.The IEP process was difficult.They did not know what to ask for or what they could ask for.They did not know enough about the DD system.They did not feel supported when engaging with the school.The school did not have the resources needed for my family member.They were not listened to at IEP meetings.The eligibility process was difficult.They did not feel the school knew how to teach or care for their family member.They could not understand information because of the words or language used.There were no problems.I do not know.Other
35P. In your experiences with people with DD, which of the following statements pertaining to assistive technology do you agree with? (Check all that apply)

They don't know what kind of technology would help them.They don't know where to find information.They haven't seen examples of technology that would help them.They don't know how to pay for it.They don't know who would teach them how to use it.I do not know.Other

36P. In your experience with people with DD, would you agree or disagree with the following statements about their race and ethnicity?

	Agree	Not Applicable - I Don't Know	Disagree
Their race or ethnicity has never been an issue for them.
They have the ability to raise their concerns if they think they are being treated unfairly due to their race or ethnicity.
I believe their services are provided in a manner that respects their race and ethnicity.

37P. Are there any other issues regarding race or ethnicity that you would like to add?

38P. In your experience with people with DD, would you agree or disagree with the following statements about their sexual orientation?

	Agree	Not Applicable - I Don't Know	Disagree
Their sexual orientation has never been an issue for them.
They are able to express their sexual orientation without fear of losing services.
They have the ability to raise concerns if they think they are being treated unfairly because of their sexual orientation.
They are afraid to express their sexual orientation.
Their provider has treated them differently after learning their sexual orientation.

39P. Are there any other issues regarding sexual orientation that you would like to add?

40P. In your experiences with people with DD and families, when engaging with a county board of DD, would you agree or disagree with the following statements?

	Agree	Not Applicable - I Don't Know	Disagree
They had difficulty with the Individual Service Plan (ISP) process.
They had difficulty with the eligibility determination process.
They are confident in the staff's understanding of available resources and benefits, including Medicaid.
Planning was person-centered.
They are not informed about all the options available.
Their plan does not provide the level of freedom that I think they desire.
They do not know what they can ask for.
They are told they can appeal decisions or how the appeal process worked.
There are resources they need that the county board does not provide.
They feel like the county board staff person listens to their needs.
They are comfortable to speak up and tell the county board when they are not happy.
They are not receiving the services on their plan.
They are happy with the level of service their county board provides.
They do not understand information because of words or language used.

42P. In your experience with people with DD, what issues did families encounter when receiving Early Intervention Services? (Check all that apply)

The IFSP process was difficult.They did not know what to ask for or what they could ask for.They did not know enough about the DD systemThey did not feel supported.They did not have the resources needed for their family member.They were not listened to at IFSP meetings.The eligibility process was difficult.They did not feel the service system knew how to teach or care for their family member.Their child did not receive the services on their plan.They could not understand information because of the words or language used.There were no problems.I do not know.Other
43P. In your experience with people with DD and their families, which of the following do you think would help you them with planning for the future? (Check all that apply)

Understanding STABLE Accounts.Receiving information on Supported Decision-Making.Understanding Special Needs Trusts.Finding professionals to help them.Understanding estate planning.Understanding benefits including Medicaid, SSI, and SSDI.Learning more about aging caregiving.Understanding the different types of guardianships.Simplifying the guardianship process.They have not started a future planning process for their child yet.They have already completed planning for their child's future.I do not know.Other

Section 3 - Priorities for YOU

Answer these questions based on your own life and experiences.
14. Where do you live?

With family.In a house or apartment with my spouse or significant other.In a house or apartment with a roommate.In a house or apartment by myself.In a group home.In an ICF.In a nursing home.In a developmental center.In a supported living arrangement (foster home).Other
14F. Where does your family member live?

With family.In a house or apartment with a spouse or significant other.In a house or apartment with a roommate.In a house or apartment alone.In a group home.In an ICF.In a nursing home.In a developmental center.In a supported living arrangement (foster home).Other
15. If you would like to live somewhere else, where would it be?

In a house or apartment with family or a sibling.In a house or apartment with a roommate that I select.In a house or apartment by myself.In a house or apartment with my spouse or significant other.In a group home.In a developmental center or ICF.In a supported living arrangement (foster home).I like where I live, I don't want to move.I do not know.Other
15F. If you would like your family member to live somewhere else, where would it be?

In a house or apartment with family or a sibling.In a house or apartment with a roommate that he or she selects.In a house or apartment alone.In a house or apartment with a spouse or significant other.In a group home.In a developmental center or ICF.In a supported living arrangement (foster home).I like where they live, I don't want them to move.I do not know.Other
16. If you want to move, what do you need to be able to move? (Check all that apply)

A safe, affordable, accessible home.A home in a neighborhood that I want to live in.A home that has nearby transportation.A job and income to pay rent.Support staff.Furniture, kitchen stuff, a TV and other items.A roommate if I want one.I do not want to move.I do not know.Other
16F. If you would like your family member to move, what do they need to be able to move? (Check all that apply)

A safe, affordable, accessible home.A home in a neighborhood that they want to live in.A home that has nearby transportation.A job and income to pay rent.Support staff.Furniture, kitchen stuff, a TV and other items.A roommate if they want one.I don't want them to move.I do not know.Other
17. When you think about your own safety, which statements do you agree with? (Check all that apply)

I feel safe.I do not have an emergency plan for fires, natural disasters and other emergency situations.The police do not understand my disability.People in my life make me feel unsafe.My community is not safe.I am worried about my online safety.I do not know who to call in case of an emergency.My money or belongings are often lost or stolen.I often do not know who is safe to come into my home.My providers call off a lot, so I am alone more than I should be.I do not know who to talk to who can help me feel safe.I do not know.Other
17F. When you think about the safety of your family member with a disability, which statements do you agree with? (Check all that apply)

I believe they are safe.I have not talked about an emergency plan for fires, natural disasters or other emergencies with my family member with a disability.I am worried the police are not properly trained to understand my family member's disability.People in their life make me feel they are unsafe.Their community is not safe.I am worried about their online safety.I do not know who to call in case they have an emergency.Their money or belongings are often lost or stolen.I do not know who is safe to come into my or my family member's home.Their providers call off a lot, so they are alone more than they should be.I do not know who they can talk to who can help them feel safe.I do not know.Other
18. Who makes the important decisions about your life? Examples of important decisions include deciding where you live, work and who you have as friends.

I make all my decisions.I make most of my decisions.My guardian makes my decisions for me.My guardian makes my decisions with me.My parents make my decisions with me.May parents make my decisions without me.My staff make my decisions with me.My staff make my decisions without me.I do not know.Other
18F. Who makes the important decisions about your family member's life? Examples of important decisions include deciding where they live, work and who they have as friends.

They make all their own decisions.They make most of their own decisions.Their guardian makes their decisions for them.Their guardian makes their decisions with them.As their family member, I make their decisions with them.As their family member, I make their decisions for them.Their staff make their decisions with them.Their staff make their decisions without them.I do not know.Other
19. Are you able to say what you want or advocate for what is important to you and others with disabilities? (Check all that apply)

Yes, I am a leader in my community.Yes, but I want to be a better leader with training and experience.No, I am not able to say what I want or advocate for myself.No, I do not know of any self-advocacy groups like People First in my area.No, groups of people with disabilities are being told what they want by advisors.No, my support staff will not let me belong to advocacy groups.No, transportation is a barrier to joining an advocacy group.I do not know.Other
19F. Are you able to say what you want or advocate for what is important to you, your family member and others with disabilities? (Check all that apply)

Yes, I am a leader in my community.Yes, but I want to be a better advocate and leader with training and experience.No, I am not listened to by professionals.No, I do not have enough knowledge about the DD system of services and supports.No, I don't know how to do this.No, transportation is a barrier to joining an advocacy group.I do not know.Other
20. If you have voted in previous elections or plan to vote in the next election, what has been your experience? (Check all that apply)

I do not know how to vote or how to register to vote.I need help voting and no one will help me.The polling location is not accessible.The person that helps me will not let me vote as I choose on the candidates or issues.Other people do not think I should vote.The voting machine is not accessible.I do not have the proper identification to vote.I do not have transportation to the voting location.I do not understand the issues because the language is confusing.I do not have problems participating in elections or voting.I do not know.Other
20F. If your family member has voted in previous elections or plans to vote in the next election, what has been their experience? (Check all that apply)

They do not know how to vote or how to register to vote.They need help voting and no one will help them.The polling location is not accessible.The person that helps them will not let them vote as they choose on the candidates or issues.They are discouraged from voting.The voting machine is not accessible.They do not have the proper identification to vote.They do not have transportation to the voting location.They do not understand the issues because the language is confusing.They do not have problems participating in elections or voting.They are not of voting age.I do not know.Other
21. What does the term "self-advocacy" mean to you?
22. Who helps you with daily activities?

A direct service provider.A caregiver that I select and pay.A family member or spouse or significant other.I am able to handle activities by myself.I need help and I don't have anyone.Other
22F. Who helps your family member with daily activities?

A direct service provider.A caregiver that they select and pays.A family member or spouse or significant other.No one, because they are able to handle activities independently.They need help and does not have anyone.I do not know.Other
23. Which of the following statements would you make about your current provider? (Check all that apply)

They could be on time more often.They could show up more often.They could treat me better.They could find an alternate when they can't come.They could understand my needs better.They need more training.They do not need to do anything better.I do not have a provider.I do not know.Other
23F. Which of the following statements would you make about your family member with a DD's current provider? (Check all that apply)

They could be on time more often.They could show up more often.They could treat them better.They could find an alternate when they can't come.They could understand my family member's needs better.They need more training.They do not need to do anything better.My family member does not have a provider.I do not know.Other
24. What issues do you have participating in activities in the community? (Check all that apply)

Cannot get there or get back home.Do not have available money to spend.Do not know what goes on in the community.Do not have friends to go with.Not comfortable trying new things.A provider or parent won't support participation.An interpreter is not available.Accessible seats are not available.Tickets are too difficult to buy.Accessible parking is not available or convenient.Companion seating is not available.Menus are not in an accessible format.Bathrooms are not accessible.Buildings are not accessible.Support animals are not welcome.There are not barriers to participating in activities the community.I do not know.Other
24F. What issues does your family member have participating in activities in the community? (Check all that apply)

Cannot get there or get back home.Do not have available money to spend.Do not know what goes on in the community.Do not have friends to go with.Not comfortable trying new things.A provider won't support participation.An interpreter is not available.Accessible seats are not available.Tickets are too difficult to buy.Accessible parking is not available or convenient.Companion seating is not available.Menus are not in an accessible format.Bathrooms are not accessible.Buildings are not accessible.Support animals are not welcome.There are not barriers to participating in activities the community.I do not know.Other
25. What do you do during the day?

I have a job in the community.I am a student.I am a student who also works in the community.I attend a workshop.I am in an enclave.I am a homemaker or stay-at-home parent.I work at a business I own.I attend a day program.I don't do anything.I volunteer.Other
25F. What does your family member do during the day?

They have a job in the community.They are a student.They are a student who also works in the community.They attend a workshop.They are in an enclave.They are a homemaker or stay-at-home parent.They work at a business they own.They attend a day program.They volunteer.I do not know.Other
26. What can you tell us about your job? (Check all that apply)

I don't have a job.I don't like the people I have to work with.My boss doesn't treat me well.They won't let me work more hours to make more money.I'm not making the same money as others are making.The work is too hard for me.I have trouble getting to and from work.I have trouble with my job coach.I need a job coach.I don't have any problems. I like my job.I do not know.Other
26F. What can you tell us about your family member's job? (Check all that apply)

They don't have a job.They don't like the people they have to work with.Their boss doesn't treat them well.They aren't offered more hours to make more money.They aren't making the same money as others are making.The work is too hard for them.They have trouble getting to and from work.They have trouble with their job coach.They need a job coach.They don't have any problems. They like their job.I do not know.Other
27. If you don't have a job in the community, why not? (Check all that apply)

I like my job in the workshop.I don't want to leave my friends.I don't want a job in the community.I need a job coach.I need help finding a job.No one will hire me.I want to stay home and not work.I am afraid of losing my benefits.I need transportation to be able to work.I am a student or minor.I am retired.I do not know.Other
27F. If your family member does not have a job in the community, what are the reasons? (Check all that apply)

They like their job in the workshop.They don't want to leave their friends.They don't want a job in the community.They need a job coach.They need help finding a job.No one will hire them.They want to stay home and not work.They are afraid of losing their benefits.They need transportation to be able to work.They are a student or minor.They are retired.I do not know.Other
28. What are your thoughts on the transportation options you have available to you? (Check all that apply)

It's too expensive.It does not stop near my home.I do not understand how to use my Medicaid waiver for transportation.I can't cross county lines.It does not stop near my job.There are no transportation providers.There are not enough accessible vehicles.It does not come on time.My car or van breaks down a lot.I don't have problems because I drive my own car.I don't have problems with the transportation in my community.I do not know.Other
28F. What are your thoughts on the transportation options available to your family member? (Check all that apply)

It's too expensive.It does not stop near their home.They do not understand how to use their Medicaid waiver for transportation.Transportation doesn't cross county lines.It does not stop near their job.There are no transportation providers.There are not enough accessible vehicles.It does not come on time.Their car or van breaks down a lot.They don't have problems because they drive their own car.They don't have problems with the transportation in their community.I do not know.Other
29. Do you think you are healthy?

Yes, I am in good health.I have a few health problems.I have serious health issues.I don't know.Other
29F. Do you think your family member is healthy?

Yes, they are in good health.They have a few health problems.They have serious health issues.I don't know.Other
30. Which of the following statements describe your health? (Check all that apply)

I need to lose or gain weight.I need to exercise more or learn how to exercise.I need help taking medication.I need help taking care of my teeth.I need to stop smoking.I need help eating balanced meals.I need money to buy healthy food.I need to be more active.I need money for medical or dental needs.I need to go to doctors and dentists more often.I need to get help for an addiction.I need to see a mental health care professional.I feel like I'm in good health.I don't know.Other
30F. Which of the following statements describes your family member's health? (Check all that apply)

They need to lose or gain weight.They need to exercise more or learn how to exercise.They need help taking medication.They need help taking care of their teeth.They need to stop smoking.They need help eating balanced meals.They need money to buy healthy food.They need to be more active.They need money for medical or dental needs.They need to go to doctors and dentists more often.They need to get help for an addiction.They need to see a mental health care professional.They are in good health.I don't know.Other
31. If you are not getting good health care, what do you think is the problem? (Check all that apply)

Doctors don't know how to treat my disability.Dentists don't know how to treat my disability.Doctors and dentists don't accept Medicaid.Doctors and dentists don't listen to me.Medical offices are not accessible.Equipment is not accessible.I can't get to appointments.Doctors and dentists who treat people with DD are not available.There are few specialists available (i.e. psychiatrist, neurologist).There is a lack of nursing services.Doctors and dentists who treat people with DD don't help patients transition to adult care.I could not understand information because of the words or language used.There are few available therapies (i.e. ABA).I don't know.Other
31F. If your family member is not getting good health care, what do you think is the problem? (Check all that apply)

Doctors don't know how to treat their disability.Dentists don't know how to treat their disability.Doctors and dentists don't accept Medicaid.Doctors and dentists don't listen to them.Medical offices are not accessible.Equipment is not accessible.They can't get to appointments.Doctors and dentists who treat people with DD are not available.There are few specialists available (i.e. psychiatrist, neurologist).There is a lack of nursing services.Doctors and dentists who treat people with DD don't help patients transition to adult care.They can not understand information because of the words or language used.There are few available therapies (i.e. ABA).I don't know.Other
32. If you are a student, what school are you attending?

High school, special education classes.High school, regular curriculum.Technical school.Community CollegeUniversity.Graduate school.I am not a student.Other
32F. Is your family member a student? If so, what school are they attending?

Early Intervention.Preschool.Elementary school, special education classes.Elementary school, regular curriculum.Middle school, special education classes.Middle school, regular curriculumHigh school, special education classes.High school, regular curriculum.Technical school.Community CollegeUniversity.Graduate school.They are not a student.Other
33. If you have finished high school and would like to get more education or special training, what is keeping you from doing it? (Check all that apply)

I don't know who to ask how to do this.My county board of DD is not helping me.Opportunities for Ohioans with Disabilities will not help me.I need money.I don't have a person available to go with me to class.I don't know what classes to take.I need transportation to get to class.I don't know what programs are available.I need technology.I can't get the accommodations I need.There are few programs available.People that support me do not think I can do it.I don't want more education.I have not finished high school.I do not know.Other
33F. If your family member has finished high school and would like to get more education or special training, what is keeping them from doing it? (Check all that apply)

They don't know who to ask how to do this.The county board of DD is not helping them.Opportunities for Ohioans with Disabilities will not help them.They need money.They don't have a person available to go with them to class.They don't know what classes to take.They need transportation to get to class.They don't know what programs are available.They need technology.They can't get the accommodations they need.There are few programs available.People that support them do not think they can do it.They don't want more education.They have not finished high school.I do not know.Other
34. When you were in school, did you experience any of these issues? (Check all that apply)

I could not participate in outside activities such as sports or the arts with other students.School was not totally accessible.I was bullied.I was not ready to get a job when I graduated.School did not help me with what to do after graduation.Teachers didn't know how to work with me.I was not able to participate in my IEP meetings.I wish I was taught how to say what I wanted.I did not graduate.I did not receive the accommodations on my IEP.I had to travel a long time to get to school.I could not understand information because of the words or language used.There were no problems.I do not know.Other
34F. When your family member was in school, did they experience any of these issues? (Check all that apply)

They could not participate in outside activities such as sports or the arts with other students.School was not totally accessible.They were bullied.They were not ready to get a job when they graduated.School did not help them with what to do after graduation.Teachers didn't know how to work with them.They were not able to participate in their IEP meetings.There were not taught how to say what they wanted.They did not graduate.They did not receive the accommodations on their IEP.They had to travel a long time to get to school.They could not understand information because of the words or language used.There were no problems.I do not know.Other
34.1F. When your family member was in school, what was your experience with the education system? (Check all that apply)

I was met with resistance from the school staff.The IEP process was difficult.I did not know what to ask for or what I could ask for.I did not know enough about the DD system.I did not feel supported when engaging with the school.The school did not have the resources needed for my family member.I was not listened to at IEP meetings.The eligibility process was difficult.I did not feel the school knew how to teach or care for my family member.I could not understand information because of the words or language used.There were no problems.I do not know.Other
35. When thinking about getting the assistive technology that you think you need in life, which of the following statements do you agree with? (Check all that apply)

I don't know what kind of technology would help me.I don't know where to find information.I haven't seen examples of technology that would help me.I don't know how to pay for it.I don't know who would teach me how to use it.I do not know.Other
35F. When thinking about getting the assistive technology that you think your family member needs in life, which of the following statements do you agree with? (Check all that apply)

I don't know what kind of technology would help them.I don't know where to find information.I haven't seen examples of technology that would help them.I don't know how to pay for it.I don't know who would teach them how to use it.I do not know.Other

36. When thinking about your race or ethnicity, would you agree or disagree with the following statements?

	Agree	Not Applicable - I Don't Know	Disagree
My race or ethnicity has never been an issue for me.
I feel that I have the ability to raise my concerns if I think I'm being treated unfairly due to my race or ethnicity.
I believe my services are provided in a manner that respects my race and ethnicity.

36F. When thinking about your race or ethnicity, would you agree or disagree with the following statements?

	Agree	Not Applicable - I Don't Know	Disagree
My family member's race or ethnicity has never been an issue for them.
I feel that I have the ability to raise my concerns if I think my family member is being treated unfairly due to their race or ethnicity.
I believe my family member's services are provided in a manner that respects their race and ethnicity.

37. Are there any other issues regarding race or ethnicity that you would like to add?

38. When thinking about your own sexual orientation, would you agree or disagree with the following statements?

	Agree	Not Applicable - I Don't Know	Disagree
My sexual orientation has never been an issue for me.
I feel that I have the ability to express my sexual orientation without fear of losing services.
I feel that I have the ability to raise my concerns if I think I am being treated unfairly because of my sexual orientation.
I am afraid to express my sexual orientation.
My provider has treated me differently after learning my sexual orientation.

38F. When thinking about your family member's sexual orientation, would you agree or disagree with the following statements?

	Agree	Not Applicable - I Don't Know	Disagree
Their sexual orientation has never been an issue for them.
I feel that my family member has the ability to express their sexual orientation without fear of losing services.
I feel that I have the ability to raise my concerns if I think my family member is being treated unfairly because of their sexual orientation.
My family member is afraid to express their sexual orientation.
My family member's provider has treated them differently after learning their sexual orientation.

39. Are there any other issues regarding sexual orientation that you would like to add?

40. When engaging with your county board of DD, would you agree or disagree with the following statements?

	Agree	Not Applicable - I Don't Know	Disagree
I had difficulty with the Individual Service Plan (ISP) process.
I had difficulty with the eligibility determination process.
I was confident in the staff's understanding of available resources and benefits, including Medicaid.
Planning was person-centered.
I was not informed about all the options available.
My plan does not provide the level of freedom that I desire.
I did not know what I could ask for.
I was told that I could appeal decisions or how the appeal process worked.
There are resources I need that the county board does not provide.
I felt like the county board staff person listened to my needs.
I felt comfortable to speak up and tell the county board I wasn't happy.
I did not receive the services on my plan.
I'm happy with the level of service my county board provides to me.
I could not understand information because of words or language used.

40F. When engaging with your county board of DD, would you agree or disagree with the following statements?

	Agree	Not Applicable - I Don't Know	Disagree
I had difficulty with the Individual Service Plan (ISP) process.
I had difficulty with the eligibility determination process.
I was confident in the staff's understanding of available resources and benefits, including Medicaid.
Planning was person-centered.
I was not informed about all the options available.
My family member's plan does not provide the level of freedom that I think they desire.
I did not know what I could ask for.
I was told that I could appeal decisions or how the appeal process worked.
There are resources I need that the county board does not provide.
I felt like the county board staff person listened to my needs.
I felt comfortable to speak up and tell the county board I wasn't happy.
My family member did not receive the services on their plan.
I'm happy with the level of service my county board provides to my family member.
I could not understand information because of words or language used.

42F. When your family member was receiving Early Intervention Services, what issues did you encounter? (Check all that apply)

The IFSP process was difficult.I did not know what to ask for or what I could ask for.I did not know enough about the DD systemI did not feel supported.They did not have the resources needed for my family member.I was not listened to at IFSP meetings.The eligibility process was difficult.I did not feel they knew how to teach or care for my family member.My family member did not receive the services on their plan.My family member did not receive Early Intervention Services.I could not understand information because of the words or language used.There were no problems.I do not know.Other
43F. When think about planning for your family member's future, what would help you with this process? (Check all that apply)

Understanding STABLE Accounts.Receiving information on Supported Decision-Making.Understanding Special Needs Trusts.Finding professionals to help me.Understanding estate planning.Understanding benefits including Medicaid, SSI, and SSDI.Learning more about aging caregiving.Understanding the different types of guardianships.Simplifying the guardianship process.I have not started thinking about planning for my child's future yet.I have already completed planning for my child's future.I do not know.Other
44P. In your role as a DD professional or other stakeholder, what do you think could help you and others in this role? (Check no more than three (3))

Receiving more training on how to work with people with DD.Understanding the DD service delivery system.Receiving more on-the-job support.Understanding the rights of people with DD.Understanding benefits received by people with DD.Getting information about my agency to people with DD and families.Improving the training on how to work with people with DD.Getting more support from families.Getting more support from management.Knowing where to refer people to get help.Increasing the wage received.Meeting more people with DD or families.Understanding the needs of people with DD and their families.Having technology available.Having buildings and materials accessible.Getting more time to work with people with DD rather than completing paperwork.Understanding how to get services for people with DD.Making the rules and regulations less complicated or in an easy to understand format.I do not know.Other
45. Thinking about all the questions you have answered, what issue(s) do you think we missed?
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Ohio Developmental Disabilities Council 5-Year State Plan Public Survey

Section 1 - Demographics

Section 2 - Priorities for EVERYONE

Section 3 - Priorities for YOU