Migraine Australia CGRP Survey 2024

1
What subtype of migraine do you live with?
I don't know
Migraine without aura
Migraine with aura
Vestibular Migraine
Chronic Migraine
Intractable or Status Migraine
Migraine Aura without Headache
Retinal Migraine
Hemiplegic Migraine
Migraine with Brainstem Aura
Other
2
Which of the following health professionals do you currently see to manage your migraine?
GP
Physiotherapist
Neurologist
Psychologist
Dietician
Immunologist
Other specialist doctor
Other
3
Tell us your migraine storyWhen did you start getting attacks? How has it affected your life?
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4
What symptoms do you get with your migraine attacks?Select as many as you like, or enter anything that isn't on the list under 'other'.
Headache
Neck pain
Other body pain
Nausea/vomiting
Light sensitivity
Noise sensitivity
Other sensitivity (touch, taste, smell)
Weakness (including hemiplegia)
Numbness/pins and needles
Clumsiness
Brain fog
Irritability/mood changes
Anxiety
Visual aura/visual field defects
Dizziness/vertigo Fatigue
Speech difficulties
Insomnia
Other Aura symptoms
Other
5
Of all the symptoms you get with your migraine attacks, which one bothers you the most?You may have heard this referred to as your MBS or most bothersome symptom. Please select only one.
Headache
Neck pain
Other body pain
Nausea/vomiting
Light sensitivity
Noise sensitivity
Other sensitivity (touch, taste, smell)
Weakness (including hemiplegia)
Numbness/pins and needles
Clumsiness
Brain fog
Irritability/mood changes
Anxiety
Visual aura/visual field defects
Dizziness/vertigo Fatigue
Speech difficulties
Insomnia
Other Aura symptoms
Other
6
Have you tried CGRP Medications?* This field is required.Aimovig, Ajovy, Emgality, Vyepti and Nurtec are the currently available CGRP medications.
YESNO
7
How have CGRP therapies helped you?Please be as detailed as you like in your answer. If you have had different results with different CGRPs then please include that information.
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8
On average, over the three months before you started any CGRP treatments, how often were you 'crystal clear' with no migraine symptoms at all?
Every day
A few times a week
About once a week
A few times a month
Once a month
Less than once a month
Never
Other
9
And on average over the three months before you started any CGRP treatments, how often were you debilitated, unable to do much at all?
Every day
A few times a week
About once a week
A few times a month
Once a month
Less than once a month
Never
Other
10
How would you generally describe your health before you started CGRP treatment?
Excellent
Good
Fair
Poor
Very Bad
11
Which CGRP medications have you tried?
Aimovig
Ajovy
Emgality
Vyepti
Nurtec
12
Which of the CGRP medications has worked best for you?
Aimovig
Ajovy
Emgality
Vyepti
Nurtec
None
13
How successful was this treatment option for you in reducing the number of migraine attacks?
I was a super-responder - more than 75% fewer attacks
Very successful - between 50% and 75% fewer attacks
Successful - reduced the number of attacks by up to half
No change
Unsuccessful - I had migraine attacks more frequently
14
How successful was this treatment option for you in reducing the severity of migraine attacks?
I was a super-responder - almost no pain and other symptoms
Very successful - significantly decreased pain and other symptoms
Successful - decreased pain and other symptoms
No change
Unsuccessful - my attacks became more severe
15
Did you get any side effects from this medication? Please detail them below.
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16
And which of the CGRP medications are you currently taking?
Aimovig
Ajovy
Emgality
Vyepti
Nurtec
None
17
On average, over the last three months while taking CGRP treatments, how often were you 'crystal clear' with no migraine symptoms at all?
Every day
A few times a week
About once a week
A few times a month
Once a month
Less than once a month
Never
Other
18
And on average over the three months while taking CGRP treatments, how often were you debilitated, unable to do much at all?
Every day
A few times a week
About once a week
A few times a month
Once a month
Less than once a month
Never
Other
19
How would you generally describe your health while on CGRP treatments?
Excellent
Good
Fair
Poor
Very Bad
20
Have you had to stop taking CGRP medications?
YESNO
21
Why did you have to stop taking your CGRP medication?
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22
Do you plan to try a CGRP Medication? Is there any reason you have not done so yet? If you are still working through the required fail-first medications, or are unable to access a neurologist, please be sure to include that.
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23
Can you afford to pay for CGRP treatments privately (that is, without it being on the PBS), roughly between $260 and $1200 a month?
YESNO
24
If Aimovig is listed on the PBS, is your treatment plan likely to change at all?Please select the most appropriate option for you.
No change - I will continue on Aimovig
No change - I will continue on my current medication (not Aimovig)
I was on Aimovig before, and will switch back to Aimovig
I was not on Aimovig before, but I would like to try it
I will discuss it with my Doctor
My migraine is not severe enough to qualify for the monthly injectables on the PBS
I don't know
Other
25
Would you like to say anything else about CGRP medications?
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26
Lastly, a little about you. Can we get your name?
First Name
Last Name
27
Where do you live?
Street Address
Street Address Line 2
City
State / Province
Postal / Zip Code
Please Select
Please Select
Afghanistan
Albania
Algeria
American Samoa
Andorra
Angola
Anguilla
Antigua and Barbuda
Argentina
Armenia
Aruba
Australia
Austria
Azerbaijan
The Bahamas
Bahrain
Bangladesh
Barbados
Belarus
Belgium
Belize
Benin
Bermuda
Bhutan
Bolivia
Bosnia and Herzegovina
Botswana
Brazil
Brunei
Bulgaria
Burkina Faso
Burundi
Cambodia
Cameroon
Canada
Cape Verde
Cayman Islands
Central African Republic
Chad
Chile
China
Christmas Island
Cocos (Keeling) Islands
Colombia
Comoros
Congo
Cook Islands
Costa Rica
Cote d'Ivoire
Croatia
Cuba
Curaçao
Cyprus
Czech Republic
Democratic Republic of the Congo
Denmark
Djibouti
Dominica
Dominican Republic
Ecuador
Egypt
El Salvador
Equatorial Guinea
Eritrea
Estonia
Ethiopia
Falkland Islands
Faroe Islands
Fiji
Finland
France
French Polynesia
Gabon
The Gambia
Georgia
Germany
Ghana
Gibraltar
Greece
Greenland
Grenada
Guadeloupe
Guam
Guatemala
Guernsey
Guinea
Guinea-Bissau
Guyana
Haiti
Honduras
Hong Kong
Hungary
Iceland
India
Indonesia
Iran
Iraq
Ireland
Israel
Italy
Jamaica
Japan
Jersey
Jordan
Kazakhstan
Kenya
Kiribati
North Korea
South Korea
Kosovo
Kuwait
Kyrgyzstan
Laos
Latvia
Lebanon
Lesotho
Liberia
Libya
Liechtenstein
Lithuania
Luxembourg
Macau
Macedonia
Madagascar
Malawi
Malaysia
Maldives
Mali
Malta
Marshall Islands
Martinique
Mauritania
Mauritius
Mayotte
Mexico
Micronesia
Moldova
Monaco
Mongolia
Montenegro
Montserrat
Morocco
Mozambique
Myanmar
Nagorno-Karabakh
Namibia
Nauru
Nepal
Netherlands
Netherlands Antilles
New Caledonia
New Zealand
Nicaragua
Niger
Nigeria
Niue
Norfolk Island
Turkish Republic of Northern Cyprus
Northern Mariana
Norway
Oman
Pakistan
Palau
Palestine
Panama
Papua New Guinea
Paraguay
Peru
Philippines
Pitcairn Islands
Poland
Portugal
Puerto Rico
Qatar
Republic of the Congo
Romania
Russia
Rwanda
Saint Barthelemy
Saint Helena
Saint Kitts and Nevis
Saint Lucia
Saint Martin
Saint Pierre and Miquelon
Saint Vincent and the Grenadines
Samoa
San Marino
Sao Tome and Principe
Saudi Arabia
Senegal
Serbia
Seychelles
Sierra Leone
Singapore
Slovakia
Slovenia
Solomon Islands
Somalia
Somaliland
South Africa
South Ossetia
South Sudan
Spain
Sri Lanka
Sudan
Suriname
Svalbard
eSwatini
Sweden
Switzerland
Syria
Taiwan
Tajikistan
Tanzania
Thailand
Timor-Leste
Togo
Tokelau
Tonga
Transnistria Pridnestrovie
Trinidad and Tobago
Tristan da Cunha
Tunisia
Turkey
Turkmenistan
Turks and Caicos Islands
Tuvalu
Uganda
Ukraine
United Arab Emirates
United Kingdom
United States
Uruguay
Uzbekistan
Vanuatu
Vatican City
Venezuela
Vietnam
British Virgin Islands
Isle of Man
US Virgin Islands
Wallis and Futuna
Western Sahara
Yemen
Zambia
Zimbabwe
Other
Country
28
What is your best email address?* This field is required.So we can send you the results of the survey and how we're going in the fight for Aimovig.
example@example.com
29
Would you like to be added to Migraine Australia's email list? * This field is required.If you are already on our list you can skip this question, if you're not sure please select 'Yes'
YESNO
30
Do you consent to your story being used in submissions and other material by Migraine Australia?* This field is required.Note we do not use full names in patient comments. We will only use your first name, or no name at all.
YES I CONSENTNO
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