Share your porphyria story
Help us raise understanding and awareness of porphyria by sharing your story on UPA's website and social media platforms. Please complete this interest form and a member of our team will contact you for next steps.
Name
*
First Name
Last Name
Email
*
example@example.com
Phone Number
What is your relationship to porphyria?
*
I have porphyria
My child has porphyria
A family member or friend has porphyria
Other
What type of porphyria?
Acute Intermittent Porphyria (AIP)
ALAD-Deficiency Porphyria (ADP)
Congenital Erythropoietic Porphyria (CEP)
Erythropoietic Protoporphyria (EPP)
Hepatoerythropoietic porphyria (HEP)
Hereditary Coproporphyria (HCP)
Porphyria Cutanea Tarda (PCT)
Variegate Porphyria (VP)
X-Linked Protoporphyria (XLP)
Other
Please share your social media handles, if applicable
Submit
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