Spire Parenting Survey

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Parent Name* This field is required.
First Name
Last Name
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Parent Email* This field is required.
example@example.com
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Do you have at least one child who has been identified by either an educational, medical, or psychological professional as twice-exceptional; identified as both gifted and having been diagnosed with a learning disability?* This field is required.
YESNO
4
Pronouns* This field is required.
She/Her/Hers
He/Him/His
They/Them/Their
Prefer not to reply
Other
5
Primary Language
6
Highest level of education attained by primary caregiver* This field is required.
Less than high school
High school diploma or equivalent (e.g., GED)
Some college, no degree
Associate degree (e.g., AA, AS)
Bachelor’s degree (e.g., BA, BS)
Master’s degree (e.g., MA, MS, MBA)
Professional degree (e.g., MD, JD, DDS)
Doctoral degree (e.g., PhD, EdD)
Prefer not to answer
7
Current Occupation* This field is required.
8
Which race or ethnicity best describes you? (Please choose only one.)* This field is required.
Please Select
Please Select
American Indian or Alaskan Native
Asian / Pacific Islander
Black or African American
Hispanic
White / Caucasian
Multiple ethnicity
Other
9
Other - race or ethnicity
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Which best describes your family structure?* This field is required.
Single Parent Household
Two-parent household
Blended family (e.g., step-parents, step-siblings)
Extended family household (e.g., includes grandparents or other relatives)
Guardian-led household (e.g., foster care, non-parent guardian)
Co-parenting across separate households
Prefer not to say
11
Does anyone in your home identify as LGBTQ+?* This field is required.
Yes
No
Prefer not to say
12
What is your total annual household income before taxes?* This field is required.
Less than $20,000
$20,000 – $39,999
$40,000 – $59,999
$60,000 – $79,999
$80,000 – $99,999
$100,000 – $149,999
$150,000 or more
Prefer not to answer
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Including yourself, how many people live in your household?* This field is required.
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What is your current housing situation?* This field is required.
Own home
Rent home
Live with family/friends without paying rent
Temporary housing
Homeless
Other
15
How would you describe your cultural identity?* This field is required.
Huge
Large
Normal
Small
Ok
Ok
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How much of an impact do your feel that your culture has on how you are raising your child educationally?
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Do you ever experience a cultural mismatch with school?* This field is required.
YESNO
18
Are you a member of any parent support groups?* This field is required.
YESNO
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With which of the following classifications or disorders has your child(ren) been identified or diagnosed?Please select all that apply
Gifted
Autism Spectrum Disorder (ASD)
Attention Deficit Hyperactivity Disorder (ADHD)
Dyslexia (reading-related learning differences)
Dyscalculia (math-related learning differences)
Dysgraphia (writing-related learning differences)
Dyspraxia (developmental coordination disorder)
Tourette Syndrome or other tic disorders
Sensory Processing Disorder
Oppositional Defiant Disorder (ODD)/(PDA)
Developmental Language Disorder (DLD) or speech/language delay
Specific Learning Disabilities
Auditory Processing Disorder
Visual Processing Disorder
Anxiety or Social Anxiety (linked to neurodivergence)
Obsessive-Compulsive Disorder (OCD)
Mood Disorders (e.g., bipolar, linked to neurodivergence)
Traumatic Brain Injury (TBI) with neurodivergent impact
Other neurological conditions (e.g., epilepsy-related cognitive differences)
Other
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For each child that you will be discussing, please list their age and gender.* This field is required.You can add multiple responses and edit them below.
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Study Title: Adaptive Connection: Parents Responding to Their 2e/Neurodiverse Children.

Statement of Informed Consent For Adult Participants

Title of Study: Adaptive Connection: Parents Responding to Their 2e/Neurodiverse Children.

Study Investigator(s):

Karen B. Arnstein, Ed.D.
Barry B. Gelston, Ed.D.

Contact information:

Karen B. Arnstein, Ed.D., 1516 Laramie Ave, Redlands, CA 92374,
karen.arnstein@bgs.edu, (909) 648-3060

Barry B. Gelston, Ed.D., 280 Woburn Street, Lexington MA, 02420, barry.gelston@spiralresearch.net, ‭(617) 306-2845‬

INTRODUCTION

You are being asked to be in a research study of parents of 2e learners. This study is being conducted online. This study is being conducted by: Karen Arnstein, Ed.D., Core Faculty at Bridges Graduate School of Cognitive Diversity in Education (BGS) and Barry Gelston, Ed.D., Bridges Graduate School of Cognitive Diversity in Education (BGS) Alumni.

Each Zoom interview will be conducted in an open-ended, semi-structured interview style to allow for discussion and reflection. Participants will be sent the interview questions in advance so they can consider memories that they would want to share with the researchers. If the participant asks, or is visibly upset, the researcher will ask if they need to take a break or want to end the interview.

Each Zoom interview will be recorded, stored in the Zoom cloud, transcribed using Otter.ai, and stored with pseudonyms in a secure, password protected, online location. Each participant will receive a cleaned copy of the full transcript and an executive summary to review for accuracy for member checking purposes before the transcript is uploaded into Dedoose, a secure, online qualitative data analysis tool. Once member checking has been completed, Zoom recordings will be deleted.

Only the researchers will have access to the transcripts, executive summaries, Zoom recordings, and login information.

You were selected as a possible participant because you were referred by a shared acquaintance or you responded to the recruitment flyer as a parent of a twice-exceptional student and you have met the inclusion criteria for this study. Please read this consent form and ask any questions you have before agreeing to be in the study.

PROCEDURES:

If you decide to participate, please sign the Jotform below, indicating your consent to participate. If you have been selected as meeting the inclusion criteria, one of the researchers will contact you to schedule an interview date.

Participants will be asked to engage in one or more private online interviews lasting no longer than 60 minutes. Interviews will explore the participants’ experience parenting a twice-exceptional child. Follow-up interviews and/or emails may be conducted if agreed upon. The interviews will be recorded and transcribed. This information will be stored in a secure, password protected location.

COMPENSATION/INCENTIVES:

There is no compensation for participation in this study.

The records of this study will be kept private and your confidentiality will be protected. In any sort of report the researcher(s) might publish, no identifying information will be included.

Research records will be stored securely and only the researcher(s) will have access to the records. All data will be kept in the master file listing the names of participants, dates of signed consent forms, interview dates, and user identification codes (UICs) will be stored on a password protected, encrypted server and only accessible by the investigators.

Any study records that identify you will be kept confidential to the extent possible by law. All study records, including approved IRB documents, tapes, transcripts, and consent forms, will be destroyed by shredding and/or deleting after 3 years.

We will protect the confidentiality of your research records by using pseudonyms. Your name and any other information that can directly identify you will be stored separately from the data collected as part of the project.

It is possible that other people may need to see the information we collect about you. These people may include administration at BGS, the co-investigator, Barry Gelston, Ed.D., and the BGS Institutional Review Board (IRB).

We will keep your research data to use for future research and publications. Your name and other information that can directly identify you will be kept secure and stored separately from the research data collected as part of the project.

VOLUNTARY NATURE OF THE STUDY:

Participation in this study is voluntary and requires your informed consent. Your decision whether or not to participate will not affect your current or future relations with Bridges Graduate School or the SPIRE Research Institute. If you decide to participate, you are free to skip any question that is asked. You may also withdraw from this study at any time without penalty.

CONTACTS AND QUESTIONS:

The researchers(s) conducting this study: Karen Arnstein, Ed.D. and Barry Gelston, Ed.D. If you have questions, you are encouraged to contact the researcher(s) at:

Karen B. Arnstein, Ed.D., (909) 648-3060, karen.arnstein@bgs.edu

1516 Laramie Ave, Redlands, CA 92374

Barry B. Gelston, Ed.D., ‭(617) 306-2845‬, barry.gelston@alumni.bgs.edu

280 Woburn Street, Lexington MA, 02420,
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Confirmation* This field is required.Please confirm that you have read the consent form above.
YESNO
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SignatureBy signing this form, you are consenting to engage in this study.
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