Counselling Survey
  • Counselling Survey

    Counselling Survey

    CASK Research Foundation in conjunction with Rareminds - Mental health for the rare disease community

  • Anonymous Member survey

  • 1. Has parenting or caring for someone with a CASK disorder negatively impacted your mental health?
  • 2. Have you ever been asked about your mental health by your specialist health/social care professionals?
  • 3. Would you like healthcare professionals to be more aware of the mental health impact of living with someone with a CASK disorder?
  • 4. Have you ever been offered or sign-posted to any mental health support services with respect to parenting a child with / caring for someone with a CASK gene disorder e.g. counselling /psychotherapy, psychology, peer support?
  • 5. How has parenting or caring for someone with a CASK gene disorder impacted your family relationships?
  • 6. How has parenting or caring for someone with a CASK gene disorder affected the quality of your relationship with your partner?
  • 7. What are the most challenging aspects for you in living with someone with a CASK disorder? Please tick all that apply:
  • 9. Would you like CASK Research UK to provide more support for mental health and well-being through its activities?

  • Counselling options

    There are two options for counselling support. Either option would be provided free of charge by the charity for the duration of the pilot scheme (8 weeks or 6-12 months). Following the pilot the charity hopes to access grants to enable us to continue delivering this service and may/may not require an additional donation from participating individuals.

  • Option 1 is an Online Group Programme. This is an unstructured 8-week Group Programme called ‘StrongerTogether’ facilitated by a Rareminds Specialist Counsellor. It is a closed group of parents/carers of someone with a CASK disorder, with a maximum of 15 participants per group. This programme facilitates peer to peer support, can overcome isolation and offer tips and techniques for improving mental health by a trained counsellor with an exertise in rare disease and an understanding of CASK-related disorders.

  • Option 2 is the offer of 1:1 (individual) or 2:1 (couples) online counselling sessions for a duration of 6-12 months).

  • 10. I would be interested in:

  • If completion of this survey has raised any issues for you about your mental health, please speak to your GP. 

    Further help is also available at:

    NHS Every Mind Matters https://www.nhs.uk/every-mind-matters/

    Samaritans www.samaritans.org

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