RNU4-2 / ReNU Syndrome - International Map

RNU4-2 / ReNU Syndrome - International Map
Thank you for contributing to the RNU4-2 / ReNU Syndrome International Map!

This map may be used to facilitate collaboration within our community in the following ways:
- DRIVE AWARENESS: Locate clusters of patients & identify areas that may benefit from clinical specialists
- BUILD COMMUNITY: Find convenient locations for holding events, conferences, or regional meetup groups
- ADVANCE RESEARCH: Track numbers of patients globally to encourage research and treatment development
Thank you for registering for the map so we can ReNU hope together!
Information that may display on map

Map will display GENERAL location, not exact address. Zip Code differentiates your pin from others in your city.
If your location wasn't listed, please add it here
Please do not include your specific house or apartment number
Date of Birth of ReNU Patient

MonthDayYear
*ReNU is a syndrome name and RNU4-2 is a gene, NOT a variant type. If you do not know the variant, enter "unknown". If you enter ReNU or RNU4-2, it will be changed to "unknown" on the map entry". You may contact us at any time to update it once you confirm what the variant is.
RNU4-2 Variant
Gender
Was the diagnosis received before or after age 1?

Diagnosed <1, enter # of months
Years of Age at Diagnosis
How old was the person when they were diagnosed?
Contact information and names will NOT be displayed on the map

Email is required in case you need to edit your submission at a later date
Email Address Parent/Caregiver 1
example@example.com
Email Address Parent/Caregiver 2
example@example.com
Phone Number
ReNU Patient First Name
Opt In
By submitting this information, I agree to share the provided information with ReNU Syndrome United to advance our mission to spread awareness, build community, and advance research.

If you have opted in, we may contact you about any of the following, or more! RNUopathy centers, upcoming conferences, events, meetups, information about RNU4-2 in the news, new resources available, scientific and research developments, recruiting opportunities for research, or if specialists in the field want to connect with you. We also facilitate caregiver connections, so we may contact you if someone wants to connect because they are local or share the same variant.
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RNU4-2 / ReNU Syndrome - International Map

Information that may display on map

Contact information and names will NOT be displayed on the map