CMV Action Supporter Survey 2025

CMV Action Supporter Survey 2025

Your Voice Matters
Name

First NameLast Name
Email
example@example.com
Phone Number

Area CodePhone Number
Section 1: How do you see CMV Action?

Share your honest thoughts and help us grow stronger as a charity
A trusted source of information about congenital CMVAn organisation offering a helpline and email support to the communityA charity making a meaningful impactA charity that could do moreOther
If you selected 'other' above, we'd love to hear how you would describe us:

2. Please rate the following statements below: *

Rows	Strongly Agree	Agree	Disagree	Strongly Disagree	Neutral
CMV Action makes a difference
CMV Action needs my support
CMV Action could do more to raise awareness
CMV Action listens to supporters feedback
CMV Action is transparent about its impact

Section 2: Priorities and Areas for Improvement

Guiding our efforts to help us focus on what matters most to our community
Support services for those affected by congenital CMVCongenital CMV education for the publicCongenital CMV education for medical professionalsAdvocacy for better testing, treatments or a vaccineSupporting research in the UKOpportunities to fundraise and raise awareness
What could CMV Action do to improve its work or better support you? (optional)
4. Please rate how CMV Action performs in these areas: (Scale: 1 = Poor, 10 = Excellent)
Community: Brings and connects those affected by cCMV together*

1

2

3

4

5

6

7

8

9

10

1 is Poor, 10 is Excellent
Support: Direct assistance or help for those affected by cCMV*

1

2

3

4

5

6

7

8

9

10

1 is Poor, 10 is Excellent
Information: Shares valuable information through stories, case-studies, and lived experience content*

1

2

3

4

5

6

7

8

9

10

1 is Poor, 10 is Excellent
Training: Educational materials and resources about cCMV for professionals *

1

2

3

4

5

6

7

8

9

10

1 is Poor, 10 is Excellent
Advocacy: Engaging with policymakers and running awareness campaigns*

1

2

3

4

5

6

7

8

9

10

1 is Poor, 10 is Excellent
Research: Contributing to CMV research and collaboration*

1

2

3

4

5

6

7

8

9

10

1 is Poor , 10 is Excellent
Section 3: Connecting with You – Content and Engagement

Help us deliver content that matters to you
Very satisfied – content is engaging and informativeSatisfied – but I’d like more varietyNeutral – content is fine but not always relevant to meDissatisfied – content needs improvementI don’t follow or engage with the content
Information about CMV preventionInformation about CMV testing and treatmentUpdates on research in easy-to-understand languageFamily stories and case studiesFundraising campaigns and eventsInformation about the charity’s work and the difference we makeInformation about how funding is spentInformation about how to donateInteractive content (e.g., films, animations, quizzes)Support and advice for those affected by congenital CMVSignposting to other support services and organisationsOther
If you selected 'other' above, please tell us about the type of content you'd like to see from us?
Section 4: Support and Involvement

Your involvement makes a difference—tell us how you help
7. How do you support CMV Action?
Regular Monthly DonationOne-off donationsNone of the above
Organise fundraising/awareness eventsEvent Participation - Organised eventsServe as a volunteer or support advisorTrusteeNone of the above
Promote awareness among others eg: conversations with friends/colleaguesEngage with CMV Action social media (likes, comments,shares)OtherNone of the above
If you selected 'Other' above, please tell us about how you advocate for CMV Action.
Yes, I'd like to volunteer or fundraiseYes, I'd like to learn about other opportunitiesNo, not at this time
YesNoPrefer not to say
If you answered yes, please share with us how you encouraged support for CMV Action
Section 5: Trust, Confidence and Awareness

Exploring how we can strengthen trust, confidence, and awareness
Yes, I trust them completelyI trust them to an extent but would like more transparencyNo, I'm not sure how resources are being used
Very confident - I see the impact of my supportSomewhat confident - I believe my support helps but would like more updatesNot confident - I'm unsure if my support is making a difference
If you answered 'not confident', please let us know why you feel this way?
12. How can we better raise awareness of CMV Action and the work we do?
Section 5: Trust, Confidence and Awareness

Looking at ways to enhance understanding and support
13. What can CMV Action do to improve your experience or increase your involvement? *
Yes - WhatsApp Community ChannelYes - SMS updatesWebinar/Online EventsNo, I am happy with how I receive updates and news from CMV ActionOther
If you selected 'other', please specify how you would like to hear from us
Yes, I'd love to help and will make a donation todayNot today, but I will donate in the futureNot at this time, but I'll continue to support in other ways
Yes, please subscribe me to this newsletter
Thank you for taking the time to complete our survey!

Your insights are vital in helping us raise awareness and support for

those individuals and families affected by congenital CMV
Should be Empty:

CMV Action Supporter Survey 2025

Section 1: How do you see CMV Action?

Section 2: Priorities and Areas for Improvement

Section 3: Connecting with You – Content and Engagement

Section 4: Support and Involvement

Section 5: Trust, Confidence and Awareness

Section 5: Trust, Confidence and Awareness