Supporting Students with Cystic Fibrosis

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Cystic fibrosis (CF) causes the body to produce thick, sticky mucus that clogs the airways, leading to*

Chronic Lung InfectionsInflammation of the lung passagesPermanent Lung DamageAll of the above

All are the above are true.

Key Impacts on the Lungs:

Thick Mucus Production: The defective CFTR protein causes mucus to become thick and sticky, which traps bacteria and hinders the lungs' ability to clear germs.

Chronic Infections & Inflammation: Bacteria trapped in the mucus lead to long-term (chronic) infections, resulting in inflammation, damage to the airways, and further mucus production.

Bronchiectasis: The airways become permanently dilated and damaged due to the constant inflammation and infection.

Respiratory Failure: The primary cause of death in CF patients is progressive, severe lung damage leading to respiratory failure.

Physical Changes: Other complications include narrowed airways, mucus plugs, coughing up blood, pneumothorax (collapsed lung), and nasal polyps.

Students with cystic fibrosis (CF) are legally entitled to 504 Plans providing crucial accommodations like*

unrestricted restroom accessunlimited water/snack intake for nutritionflexible attendanceAll of the above

Here is a breakdown of common cystic fibrosis school accommodations and needs:

1. Digestive & Nutritional Needs

Enzyme Support: Easy, quick access to the nurse or permission to self-administer pancreatic enzymes with all meals/snacks.
Unlimited Nutrition: Permission to eat, snack, and drink high-calorie/salty foods and beverages in the classroom to maintain growth.
Bathroom Access: Unrestricted, immediate, and private bathroom access due to frequent digestion issues and coughing episodes.

2. Physical & Health Needs

Respiratory Clearance: Time to cough to clear mucus, and in some cases, scheduled time for airway clearance therapies.
Infection Control: Hand sanitizer in desk, no mandatory sharing of materials, and seating away from sick peers.
Temperature Control: Ability to stay indoors during extreme heat or cold if it triggers coughing.

3. Academic & Attendance Flexibility

Attendance Policy Adjustments: Waived or relaxed rules to accommodate hospitalizations, clinic appointments, and illness.
Missed Work Plan: Provisions for tutoring, take-home work, or recorded classes during absences.
Fatigue Management: Flexibility for breaks if tired from coughing or treatments.

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