Genomics Research Strategy Feedback Form 

  • Genomics Research Strategy

    Feedback Form

  • 5. We have outlined seven (7) priority research themes. Do you agree with these?

  • 8. We also have identified key actions to address our objectives. How strongly do you agree with these objectives and actions?

    a. Objective 1. Deliver a framework that brings together academia, NHS and industry to provide strategic leadership for genomics research in Wales.

    • Action 1.1 Through close partnership between Welsh Government, Health and Care Research Wales, and Genomics Partnership Wales, we will establish a strategic leadership role to champion Welsh genomics research.·
    • Action 1.2 We will refine the strategic advisory structure of the GPW R&I Group so that the Group can better support the strategic lead to develop genomics research in Wales that align with Welsh NHS priorities and needs and strengthen and expand links with UK and global genomics initiatives.

  • b. Objective 2: Build on this framework to grow the genomics research community in Wales and establish it as a hub for collaborative genomics research.

    • Action 2.1 We will investigate ways to support the development of Wales-led multidisciplinary collaborations to access funding, attract talent and drive advancements in emerging research areas.
    • Action 2.2 We will raise awareness and visibility through a Welsh national genomics event to complement the UK’s Festival of Genomics or Genomics England’s research symposia GPW [delivery: annual or biennial event]
    • Action 2.3 We will explore ways to enhance collaboration with industry to drive innovation and translate research into practical applications via initiatives such as industry-academia partnerships and shared research projects.
    • Action 2.4 We will develop and implement a National Public Engagement Strategy that encompasses not only the Genomics Partnership Wales Sounding Board but also the broader public, ensuring a more inclusive and extensive public conversation by safeguarding independence and targeting representation from wider groups such as BME, LGBTQIA+ and other protected characteristics groups.
    • Action 2.5 We will actively explore and exploit funding opportunities to accelerate genomic driven trials with commercial partners and the VPAG investment programme to improve patient access to commercial clinical trials.

  • c. Objective 3: Establish the key building blocks for the sharing and use of genomic data (pathogen and human) in Wales.

    • Action 3.1 We will develop a vision and ambition for the safe sharing of data for research purposes that will include consideration of things such as Wales-wide agreements covering information governance and consent; mechanisms, processes and technical specifications that will be needed to support the sharing of these data; and the resources that will be required both within the clinical and the research teams.
    • Action 3.2 We will develop a single national NHS genomic research consent mechanism that is clear, efficient, and adaptable. The model will be scalable and easily integrated into activities across the NHS.
    • Action 3.3 We will encourage the involvement of Welsh stakeholders, as collaborators or leaders, in large scale UK-wide projects such as Our Future Health.

  • d. Objective 4: Ensure that Wales is equipped with the required computational infrastructure and analytical expertise to exploit data that is generated in Wales for genomics research.

    • Action 4.1 We will coordinate with the Genomic Digital Strategy activities to understand computational infrastructure needs for genomics research in Wales to build a cohesive ecosystem.
    • Action 4.2 We will work with NHS partners to understand parallels between their computational infrastructure, the research infrastructure and the broader community to help inform funding requests and decisions and assist with future planning.
    • Action 4.3 We will support the specific research related actions listed in the Strategic Workforce Plan for Genomics, The Healthcare Science Research and Innovation Strategy, and Advanced Therapies Wales workforce plan to ensure that the workforce is in place with the required skills to support genomics research in Wales.

  • If you have any questions on this form, please email:

    GenomicspartnershipWales@wales.nhs.uk

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