ReNU Specialty Skill Set & Interest Survey

Specialty Skill Set & Interest Survey

ReNU Syndrome United
Thank you for being a part of our RNU4-2 / ReNU Syndrome community! Our mission is to Drive Awareness, Build Community, and Advance Research. Please share any skills or interests that you have in helping, so that we can ReNU hope together!
Here is an example of the organizational structure for ReNU Syndrome United that the Board of Directors of RSU (USA) is working towards.

Our organization collaborates with a robust group of global Scientific Advisors, has 1 Board of Directors, and 2 established committees:
- Fundraising & Awareness Committee
- Global Coordination Committee - comprised of ReNU Syndrome association leaders in countries around the world
To expand our capabilities, we're adding 3 more:
- Family Support & Resources Committee
- Special Projects Committee
- Marketing, Communications & Events Committee
If any of these interest you, please indicate within the survey. Volunteering doesn’t have to mean a huge time commitment—every small action is a step forward for all of us! Let’s show the world the power of our community.

With hope and gratitude,

ReNU Syndrome United
Name*

First NameLast Name
Email Address*
example@example.com
Phone Number (Optional)
Please provide your Facebook handle:
Where are you located?
What Time Zone are you in?
What languages do you speak?
Research / Medical / Scientific / Pharmaceutical Expertise

DoctorResearcherPharmaceuticalRegistered NurseOther
Specialities you are interested/experienced in, or comfortable as a medical liaison for

AudiologyCardiologyDieticianDermatologyEndocrinologyEpilepsy/SeizuresGastroenterologyGeneticsNeurologyOpthalmologyOrthopedicsOtorhinolaryngology (ear nose throat)PediatricsPodiatryRadiologyUrologyOther
Therapies you are interested/experience in, or would consider becoming a therapeutic resource liaison for

AAC / SpeechFeedingPhysicalOccupationalVisionABA (Applied Behavioral Analysis)Other
Please Describe Your Professional or Medical Experience
Technology Expertise

Interactive Map Maintenance / Maintain Location TrackerGeneral ITSoftware Vetting and ImplementationWebsite/UX DesignWebsite Scientific CopywritingSquarespaceSalesforce DevelopmentJotformMicrosoft Office 365 AdministrationGoogle Workspace AdministrationOther
Financial / Legal / Non-Profit Expertise

Financial ProfessionalAccountantLawyerParalegalAuditorNon-ProfitBoard ExperiencePatient Advocacy Group (PAG)Partnership Liaison with other Advocacy GroupsOther
Please Describe Your Professional Experience
Development

FundraisingGrant WritingPartnershipsSponsorshipsOther
Event Planning

AmbassadorCommunity AwarenessGlobal Meet-ups / Global LiaisonMain ConferenceParent PanelsVolunteerOther
Marketing and Communications

Branding SpecialistCanva DesignerGraphic DesignMarketing MaterialsNewslettersPhotographyPublic SpeakingPublic RelationsTranslationsVideographyOther
Creative Talents:

Acting / Film / TVArtMusicPortrait ArtistSinging / PerformingOther
Online / Virtual Assistance

Welcome CommitteeFamily MentorOther
Social Media Management

FacebookInstagramTikTokBlueSkyX (Twitter)Other
Please provide additional details about your interests, skills, or areas of expertise:
How many hours per week would you be able to dedicate to helping ReNU Syndrome United?
Are you available mostly (check all that apply)

DaytimeEveningWeekends
Do you prefer tasks that are

Project-basedSocialTechnicalCreative
Do you have any specific ways or ideas in mind of a role or project you would like to work on or contribute to?
Are you interested in joining
Opt In

I would like to be contacted about meetups, events, and/or research opportunities
By submitting this information, I agree to share the provided information with ReNU Syndrome United to advance our mission to spread awareness, build community, and advance research.
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