Kwestjonarju għall-Ġenituri ta’ Persuni b’Diżabilità: Kif nistgħu ngħinukom? Questionnaire for Parents of Persons with Disabilities: How Can We Support You?

Kwestjonarju għall-Ġenituri ta’ Persuni b’Diżabilità: Kif nistgħu ngħinukom?Questionnaire for Parents of Persons with Disabilities: How Can We Support You?
Għeżież Ġenituri/Kustodji,

Il-Knisja Kattolika f’Għawdex tixtieq toffri kull sapport possibli lill-persuni b’diżabilità u lill-familji tagħhom. Biex inkunu nistgħu nifhmu aħjar u nipprovdu servizzi li hemm bżonnhom, ġentilment nitolbuk timla dan il-kwestjonarju.

Ir-risposti tiegħek jgħinuna ħafna biex nfasslu programmi u servizzi li jindirizzaw direttament il-prijoritajiet u l-inkwiet tagħkom. Kull risposta għal dan il-kwestjonarju jinżammu kunfidenzjali u jintużaw biss għal raġunijiet ta’ riċerka u dejjem b’konformità ma dak li tgħid il-Liġi ta’ Malta dwar id-Data Personali. Jekk ikollok bżonn xi għajnuna biex twieġeb għal dan il-kwestjonarju tiddejjaqx tikkuntattjana, mingħajr ħlas, fuq 79257988.

Jekk għandek iktar minn tifel/tifla wieħed/waħda li għandu diżabilità imla d-dettalji għal-ewwel wild, it-tieni wild, etc...

Dear Parent/Caregiver,

The Catholic Church in Gozo is committed to offering the best possible support to persons with disabilities and their families. To better understand your needs and provide services that are meaningful to you, we kindly ask you to complete this questionnaire. Your responses will help us design programmes and services that directly address your concerns and priorities. All responses to this questionnaire will be kept strictly confidential and used solely for research purposes and always in conformity with what the Laws of Malta state about Personal Data. If you need help in answering this questionnaire please feel free to contact us, free of charge on 79257988.

If you have more than one child who has a disability please fill in for Child 1 and Child 2.
A. i) Informazzjoni personali tal-Ġenitur/Kustodju -

Parent/guardian personal information
1. Eta' tal-ġenitur/kustodju - Age of parent/guardian:
Maskil - MaleFemminil - Female
3. Relazzjoni mal-persuna b'diżabilita' (eż. ġenitur, kustodju) - Relationship to the person with disability (eg. parent, guardian):
Livell Sekondarju - Secondary level educationLivell Post-Sekondarju - Post Secondary levelLivell Terzjarju - Tertiary levelDiploma/DegreeMastersOther
SingleMiżżewweġ/a - MarriedMiżżewweġ/a imma separat/a - Married but separatedF'relazzjoni - In a relationship
6. Impjieg/Professjoni - Your occupation:
Inqas minn €1,000 - Less than €1,000Bejn €1,000 u €2,000 - Between €1,000 and €2,000Bejn €2,000 u €3,000 - Between €2,000 and €3,000Iktar minn €3,000 - More than €3,000
8. Eta' ta' żewġek/martek/il-partner tiegħek - Age of your spouse/partner:
Maskil - MaleFemminil - Female
Livell Sekondarju - Secondary levelLivell Post-Sekondarju - Post Secondary levelLivell Terzjarju - Tertiary levelDiploma/DegreeMastersOther
11. Impjieg/Professjoni ta' żewġek/martek/il-partner tiegħek - Occupation of your spouse/partner:
Inqas minn €1,000 - Less than €1,000Bejn €1,000 u €2,000 - Between €1,000 and €2,000Bejn €2,000 u €3,000 - Between €2,000 and €3,000Iktar minn €3,000 - More than €3,000
ii) Informazzjoni dwar il-persuna b'diżabilita' - Person with disability personal information
0-5 snin - years6-10 snin - years11-15 -il sena - years16-20 sena - years21+ years
Maskil - MaleFemminil - FemaleOther
3. Tip ta' diżabilita'/dijanjosi - Type of disability:
B: Sapport u Servizzi għal bintek/ibnek b'diżabilita' - Support and Services for the child with disability
Sapport fil-komunikazzjoni - Communication supportSapport fis-saħħa mentali - Mental health supportSapport fl-edukazzjoni - Educational supportL-iżvilupp ta' ħiliet soċjali sabiex ibnek/bintek ikun/tkun jista'/tista' tintegra iżjed fil-komunita' - Social skills development for your child to integrate more in the communityŻvilupp ta' life skills għal għixien indipendenti - Life skills development for independent livingServizzi tas-saħħa tal-imġieba (ABA) - Behavioural health services (ABA)Xiri ta' tagħmir ta' teknoloġija assistiva jew tagħmir ieħor - Purchase of specialised assistive technology equipment or other equipmentSaħħa fiżika - Physical health
Servizz ta' Family therapy - Family therapy (support groups, guidance or counselling sessions)Assistenza jew gwida finanzjarja - Financial assistance or guidanceInformazzjoni fuq is-servizzi u r-riżorsi li jeżistu - Information on available resources and servicesServizz ta' Respite (kura temporanja għal ibnek/bintek) - Respite care (temporary care for your child)Viżti fid-dar biex jagħtu għajnuna lil persuna b'diżabilita' jew membri tal-familja - Home visits to help the person with disability or family membersServizz ta' Respite fid-dar tal-familja stess - Respite care in your own homeOther
3. Semmi s-sezzjonijiet ta' terapija li ibnek/bintek jattendi/tattendi għalihom - List the therapies which your son/daughter attends to. (Speech, OT, physio, social groups, swimming, movement therapy, psychologist, ABA...)
4. Għat-terapiji li semmejt fin-numru 3, indika liema huma tal-Gvern u liema trid tħallas għalihom. - For the therapies listed in number 3, indicate which ones are state run and which are run by private companies.
5. Għaliex tagħżel li ibnek/bintek jattendi/tattendi għal terapija li trid tħallas għaliha? - If your son/daughter attends any private owned therapy sessions, what is/are the reason/s that you pay such sessions?
6. Ibnek/bintek jattendi/tattendi għal attivitijiet extra-kurrikulari? Jekk iva agħmel lista ta' dawn l-attivitajiet. - Does your son/daughter attend any specialised extra-curricular activites? If yes, kindly list them below. (e.g. ball handling, dance, music lessons, art lessons athletics, gymnastics, swimming)
Xejn - FreeBejn €10 u €20 - Between €10 and €20Bejn €21 u €30 - Between €21 and €30Bejn €31 u €40 - Between €31 and €40Bejn €41 u €50 - Between €41 and €50Iktar minn €50 - More than €50
Servizz ta' terapija (speech, occupational, physical) -Therapy services (speech, occupational, physical)Childcare speċjalizzata - Specialised childcareProgrammi rikreattivi (sports, arts, social events) - Recreational programs (sports, arts, social events)Sapport groups għall-ġenituri jew għal aħwa ta' persuni b'diżabilita' - Support groups for parents and siblingsPariri dwar Special education jew skola - Special education or school placement assistanceModifikazzjonijiet ġewwa d-dar u adaptive equipment - Home modifications and adaptive equipmentPsikjatra (sapport fis-saħħa mentali) - Psychiatrist (mental health support)Kuntatt mal-ambjent naturali (baħar, raba', eċċ)Other
Nuqqas ta' informazzjoni - Lack of informationProblemi ta' flus - Financial constraintsĊerti servizzi mhumiex available - Limited availability of servicesDiffikultajiet ta' trasport - Distance of transportation issuesTrid iddum wisq tistenna - Long waiting listsProblema ta' lingwa jew biex nikkomunika - Language or communication barriersOther
C. Edukazzjoni - Educational Needs
Iva - YesLe - No
Iva - YesLe - No
Full-Time 1-1Shared in the same classShared
SpeechFiżjoterapija - PhysiotherapyTingħata l-mediċina min-ners - Medication by a nurseOccupational Therapy
Primarja tal-Gvern (Inkluż Kindergarten) - State Primary (Including Kindergarten)Primarja tal-Knisja (Inkluż Kindergarten) - Church Primary (Including Kindergarten)Middle School tal-Gvern - State Middle SchoolSekondarja tal-Gvern - State SecondarySekondarja tal-Knisja - Church SecondarySixth FormSpecial Unit Sannat Full-TimeSpecial Unit Sannat Part-TimeOther
Iva - YesLe - IvaInsomma - Partially
5 b. Spjega għaliex - Please explain why
6. Liema sapport edukattiv taħseb li jista'/tista' jibbenefika/tibbenefika minnu ibnek/bintek? (*Semmi liema area hija l-iktar ta' inkwiet għalik) - What additional educational support do you think would benefit your child? (*Please specify any particular areas of concern or needs)
D. Is-Saħħa mentali u l-Well-being - Mental Health and Emotional Well-being
Iva - YesLe - NoXi kultant - Sometimes
Counselling jew terapija għall-ġenituri/caregivers - Counselling or therapy for parents/caregiversGrupp ta' sapport - Support groups or peer networksWorkshops dwar it-trobbija jew programmi ta' stress management - Parenting workshops or stress management programsRiżorsi online (webinars, discussion forums, eċċ.) - Online resources (webinars, discussion forums, etc.)Other
Iva - YesLe - NoQed nistenna fil-waiting list - on a waiting list
Iva - YesLe - No
E. Drittijiet - Advocacy and Rights
Iva - YesInsomma - SomewhatLe - No
Iva - YesLe - No
Tajjeb ħafna - Very goodTajjeb - GoodĦażin - BadĦażin ħafna - Very bad
Tajjeb ħafna - Very goodTajjeb - GoodĦażin - BadĦażin ħafna - Very bad
Iva - YesLe - NoInsomma
Iva - YesLe - No
6 b. Jekk iva, liema servizzi? - If yes, which services?
Tajjeb ħafna - Very goodTajjeb - GoodĦażin - BadĦażin ħafna - Very bad
6 d. Jekk ma tużax servizzi tal-ARKA, għaliex le? - If you do not use services offered by ARKA, state the reason why.
Iva - YesLe - No
7 b. Jekk iva, liema waħda? - If yes, which one?
F. Feedback Ġenerali - General Feedback
1. Liema tip ta' sapport ieħor taħseb li l-Knisja f'Għawdex tista' tipprovdi biex ittejjeb il-kwalita' tal-ħajja tal-familja tiegħek? - What other type of support do you believe the Church in Gozo could provide to improve your family's quality of life?
2. Liema hija l-ikbar sfida li qed tiffaċċja bħala ġenitur ta' persuna b'diżabilita'? - What is the biggest challenge you face as a parent/caregiver of a person with a disability?
Laqgħa wiċċ'imbwiċċ - In-person meetingsPermezz ta' email - Email updatesPermezz ta' messaġġi bit-telefon ċellulari - Text messagesPermezz tas-social media bħal facebook, whatsapp eċċ. - Social mediaPermezz ta' newsletters bil-posta regolari - NewslettersOther
G. Kummenti u suġġerimenti oħra - Additional comments or suggestions
Hemm xi ħaġa oħra li tixtieq taqsamha magħna jew xi suġġeriment? - Is there anything else you would like to share with us?
Grazzi talli sibt il-ħin biex timla dan il-kwestjonarju. Il-kontribut tiegħek huwa mprezzabbli biex jgħinna nifhmu kif l-aħjar nistgħu nservu lit-tifel/tifla tiegħek u lill-familja kollha. Tiddejjaqx tikkuntattjana fuq 79257988 jekk għandek xi mistoqsijiet jew tixtieq iktar għajnuna.

Tislijiet,

Il-Knisja Kattolika f’Għawdex

Thank you for taking the time to complete this questionnaire. Your input is invaluable in helping us understand how we can best serve your child and the rest of the family. Please feel free to contact us at 79257988 if you have any questions or need further assistance.

Regards

Catholic Church in Gozo
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Kwestjonarju għall-Ġenituri ta’ Persuni b’Diżabilità: Kif nistgħu ngħinukom?Questionnaire for Parents of Persons with Disabilities: How Can We Support You?