The MS Collective

How long ago were you diagnosed with MS?

Within the past 12 months

4 – 5 years ago

1–3 years ago

6 – 10 years ago

10 + years ago

Please describe how you felt in the first few weeks or months after your diagnosis?

After you were diagnosed, what were your initial questions or concerns about your condition?

Where did you go for support or information after your diagnosis?

GP or neurologist

Online forums or communities

MS Australia / MS Plus

Family or friends

Local peer support group

Social media

Other

If other, please specify

What information did you find helpful when you were newly diagnosed?

What was the information format?

Websites

Community forums (e.g. Facebook Groups)

Brochures

Podcasts

Social media – organisations and groups

Social media – people with lived experience

Were there any support networks that you wish you knew about earlier?

Do you currently participate in any MS-related support or peer groups?

Yes – in person

Yes – online

No, but I’d like to

No, not interested at this stage

What community services or online resources do you currently use to support your wellbeing?

Are there any websites, apps, books or tools you would recommend to someone newly diagnosed with MS?

What improvements would you like to see from current MS services (locally or online)?

What content would be most useful to include on a new Geelong MS website?

Resources for newly diagnosed people

Local events and activities

Existing Peer Support meeting times and how to join

Local services (e.g. physiotherapy, NDIS providers)

Mental health or wellbeing resources

Stories from local people living with MS

Links to national MS organisations

Links to MS Employment Services

Links to help with NDIS applications

Other

If other, please specify

What kind of tone or feeling would you like the website to convey?

Friendly and informal

Practical and informative

Calm and reassuring

Inspirational

Other

If other, please specify

Would you be interested in any of the following website features

Email newsletter or event reminders

Forum or message board to connect with others

Downloadable resources (e.g., symptom trackers, checklists)

A space to share your story

None of these / Not interested

Other

Would you have accessed a MS Geelong website when you were newly diagnosed?

Would you find a resource like this useful now?

Any other comments, ideas, or feedback to help us build a supportive website for the Geelong MS community?

Would you like to be notified of any future updates about this project?

YESNO

Full Name

First Name

Last Name

E-mail Address

example@example.com

By clicking submit, you agree for the data you provide to be collected. This information will not be shared with any third parties or used in an identifiable way. Please see the Privacy Policy.

The MS Collective