Register with the CASK Coalition

Counting CASK - the global CASK disorders census

Counting CASK is the fastest way to show our potential partners the number of families they can impact. The more individuals with a CASK disorder we can document, the more attractive our rare disease becomes to pharmaceutical companies, biotech firms, research institutions, clinicians, government funding, and donors — all of whom we need to move treatments forward! The CASK Coalition are a worldwide network of families and organisations interested in helping people with a CASK-related disorder live their best lives.
This form is for caregivers of an individual (patient) with a CASK mutation only. Please note: For families with more than one CASK case, please register separately for each patient.
Contact information
Full Name

First NameLast Name
Spouse or partner's name

First NameLast Name
Country

Street Address

Street Address Line 2

CityState / Province

Postal / Zip CodeCountry
E-mail
example@example.com
Patient name

First NameLast Name
My CASK warrior is
Patient Date of birth

MonthDayYear
Date
Has the patient been given a named disorder?
What type of mutation does the patient have? (skip question if unknown or unsure)
Has a doctor told you that the mutation on the CASK gene is the reason for your child's problems?

Other
Address

Street Address

Street Address Line 2

CityState / Province

Postal / Zip Code
Phone Number
Format: (000) 000-0000.
Media:
Volunteering
Fundraising
Confirmation
Should be Empty:

Counting CASK - the global CASK disorders census