External application form - Stakeholders - Data Holders

  • EUCAIM stakeholders: application for data incorporation use cases

    Please read the Background Information before proceeding to questions.

  • Background Information:

    Pre-Requirements (if not done yet):

    • Complete the TIERs Maturity Level Questionnaire
    • Complete the Expression Of Interest

    Definitions of TIER 1, 2 and 3:

    • Tier 1: The datasets hosted by the federated node are registered in the central catalogue. Users can explore the metadata of the datasets registered in EUCAIM’s platform.
    • Tier 2: The data of the federated node is searchable through its local searching service, which is queried by the federated search system. The users can explore the actual number of studies fulfilling the search criteria defined by the user.
    • Tier 3: The federated node has a materialisation component that makes the data available to the federated processing, according to EUCAIM’s model. The user will be able to run processing actions on the actual data, if the access to them is granted.

    Onboarding process overview:

    More information:

    • EUCAIM Glossary
    • EUCAIM Technical Documentation (incl. Data Holders Handbook)
    • EUCAIM Legal Handbook (ethical and legal requirements explained). 

  • Contact Details

    Organization
  • Organisation type*

  • Contact Person (PI)

  • Other contacts in the Organization

  • 0/600

  • Please provide the details of your Data Protection Officer:

  • Scientific background of the applicant

  • Type of contribution and maturity level

    Please indicate that you are applying to contribute with data (data holder).
  • Please specify if data will be shared through the EUCAIM central repository or through a federated node (Data Holders Handbook, section 6.1. "Reference nodes", section 7. "Setting up a Federated Node"):*
  • Please indicate the level of compliance with the EUCAIM Data Federation Framework  (see Data Holders Handbook, section 5. "Requirements for Tier 1, 2 and 3"):*
  • Please indicate the level of compliance with the EUCAIM Data Federation Framework that you plan to reach by the end of the project?*
  • Is the dataset you are going to provide created as a closed existing collection or is it still ongoing?*

  • Scientific relevance of your participation in EUCAIM as a data holder

  • 0/600
  • Which types of data can be made available?
  • 0/300

  • Please describe your imaging datasets. In case you have data for multiple cancer types (multiple datasets), please provide the information separately for each type.

  • Dataset 1

  • General Metadata:

  • 0/300

  • Imaging and Clinical (or Other) Metadata:

  • De-identification. Please select which of the following statements applies for your dataset.*
  • Please state whether the data sets you are providing (if applicable):
  • Do you have more datasets to provide?*

  • Dataset 2

  • General Metdata

  • 0/300

  • Imaging and Clinical (or Other) Metadata:

  • De-identification. Please select which of the following statements applies for your dataset.*
  • Please state whether the data sets you are providing (if applicable):
  • Do you have more datasets to provide?*

  • Dataset 3

  • General metadata

  • 0/300

  • Imaging and Clinical (or Other) Metadata:

  • De-identification. Please select which of the following statements applies for your dataset.*
  • Please state whether the data sets you are providing (if applicable):
  • Do you have more datasets to provide?*

  • Dataset 4

  • General metadata

  • 0/300

  • Imaging and Clinical (or Other) Metadata:

  • De-identification. Please select which of the following statements applies for your dataset.*
  • Please state whether the data sets you are providing (if applicable):
  • Do you have more datasets to provide?*

  • Dataset 5

  • General metadata

  • 0/300

  • Imaging and Clinical (or Other) Metadata:

  • De-identification. Please select which of the following statements applies for your dataset.*
  • Please state whether the data sets you are providing (if applicable):

  • Ethical and legal requirements

  • Please select which of the following options applies:*
  • If a certificate of ethics approval is required, please select the option that applies:*
  • If you are willing to contribute data to the EUCAIM Infrastructure, please select which of the following options applies:*
  • You are able to demonstrate the due diligence in complying with the GDPR by:*
  • Indicate whether the dataset(s) you will provide are subject to any restrictions on use defined by the data holder or general legislation.

  • Technical details, capabilities and functionalities

  • Does your data follow any standard data model? If yes, please specify which data models (e.g. OMOP-CDM)?*
  • Does your data follow the HL7 FHIR standard for exchange purposes?*
  • Have you adopted any standard vocabularies and terminologies to describe your data (e.g. SNOMED-CT, ICD-10 etc.)? If yes, please specify which ones. If no, EUCAIM can support you with specific tools and guidance once the application is accepted.*
  • Does your organization store any type of image data annotations (i.e., image segmentations)?*
  • What is your estimated time needed to finalise dataset preparation for data imaging extraction and clinical data (see Data Holders Handbook, section 5.1 "Data Preparation")?
  • Will you need some support from EUCAIM on data preparation (anonymisation, quality checking, data modeling, metadata definition, etc. - see Data Holders Handbook, section 5.1 "Data Preparation")?
  • What is your availability for regular follow-ups?

  • Supporting documentation

    Please upload the following documentation:
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  • Any documents which may be required and which are not available at the time of completion of this form must be provided at the time your application is successful or at such other time as may be required under applicable law.

  • Estimated timeline for completing the missing legal documentation (see Legal Handbook):*

  • Download the ownership control assessment questionnaire here: https://ec.europa.eu/info/funding-tenders/opportunities/docs/2021-2027/common/temp-form/af/ownership-control-declaration_en.docx

  • EIBIR, as managing partner, will process your data in order to evaluate your application. To exercise your data protection rights and to know the full terms and conditions of the processing, please see our terms and conditions and our privacy notice.

    By completing this form, you are providing consent for us to process your information for the EUCAIM data incorporation use cases. Your data will be used exclusively to assess your application and send you relevant updates. You can opt-out at any time. You have the right to access, rectify, object to, and erase your personal data at any time. To exercise these rights or to obtain more information on how we handle your data, you can contact the project coordinator EIBIR at contact@cancerimage.eu.

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