Understanding Community Needs for a Long COVID Digital Care Management Platform

Sponsor:
CompendiRx

Principal Investigators:
Eve Bowers, MD

Fauzia Osman, MPH, PhD

Advisor: Grace Almendras-Castillo

Key Information:
You are invited to participate in a study that aims to shape the development of a digital tool for Long COVID. Your input will be gathered through a brief anonymous survey and/or a 30-minute Zoom interview. No identifiable information or PHI (Protected Health Information) will be collected. Participation is voluntary.

Background and Purpose:
Long COVID affects daily functioning and health. This research gathers input to design a digital platform to better support patients, clinicians, and employers.

Procedures:
- Survey (~10 minutes) via online form
- Optional interview (~30 minutes) via Zoom
- Interviews will be recorded only with consent

Risks:
Minor emotional discomfort when sharing experiences.

Benefits:
No direct benefits; your input may improve future tools for Long COVID management.

Confidentiality:
- No names, emails, or identifying info will be collected
- Audio files (if applicable) will be deleted after transcription
- Data stored securely by the CompendiRx team

Voluntary Participation / Withdrawal:
You may decline or withdraw at any time without any consequences.

 

STATEMENT of authorization

See below

 

By signing this form,

 

• I say that I have read or had someone explain this form to me.
• I understand what this study is about.
• I agree that the information I give is true and honest.
• I give permission for the study team to collect, use, and share my answers and health information, as explained in this form.
• I know I will get a copy of this signed form to keep.
• I understand that signing this form does not take away any of my legal rights.
• I have asked any questions I had, and they have been answered. I am signing this form because I want to be part of this study