The MenoHealth Survey

European Survey on Menopause and Health in Women with HIV - The MenoHealth Study
Dear Participant

Thank you for participating in this confidential survey on menopause and health in women with HIV. As more women with HIV reach menopause, it’s crucial to understand this life stage to ensure the best care and support.

This survey was co-created together with women living with HIV and takes about 20 minutes to complete. Some questions may feel personal, but your participation is entirely voluntary. All responses are anonymous, and no one will be able to identify you or your answers.

If you prefer not to answer a question, you can select "I do not know." If you’re unsure of an answer, please choose the option that feels most accurate to you.

Thank you for helping us with this important research.

Privacy Notice: By participating in this survey, you agree to the collection and processing of your IP address and survey responses in accordance with the General Data Protection Regulation (GDPR) (EU) 2016/679. This data is collected to ensure data integrity, prevent duplicate submissions, analyse response patterns, and maintain system security. The legal basis for processing is legitimate interest (Article 6(1)(f) GDPR) or consent (Article 6(1)(a) GDPR) where applicable. Your data will be stored securely for 6 months, after which it will be deleted or anonymised unless legally required for a longer period. We do not share your data with third parties unless required by law, and all processing occurs within the European Economic Area (EEA) or by GDPR-compliant providers. You have the right to access, correct, delete, or restrict processing of your data, withdraw your consent at any time (if applicable), and lodge a complaint with your national Data Protection Authority. For any inquiries or to exercise your rights, contact info@eacsociety.org.
Consent to participate in the research project: European Survey on Menopause and health in Women with HIV (The MenoHealth Study)

I understand that my participation is voluntary and that I am free to withdraw at any time, without giving a reason and without it affecting my current or future medical treatment.

All responses will be treated confidentially and in accordance with the data protection rules and regulations.
I voluntarily agree to take part in this study.

Almost there....
Do you have further comments about the questionnaire or the project?
Please share your feedback on the questionnaire
You have now completed the survey.

As a final step, please complete the simple calculation below before pressing the “Submit” button. This helps us prevent automated submissions and ensures that your valuable contribution is correctly included in our research.

If this survey has raised any concerns or brought up issues that you would like to talk about, please consider speaking with your healthcare provider or contacting a support helpline.

Thank you very much for taking the time to participate and for helping with this important research.
One final step. Please complete the calculation below to verify your answer:
Should be Empty:

Rows	None	Mild	Moderate	Severe	Very severe
Hot flushes, sweating (episodes of sweating)
Heart discomfort (unusual awareness of heart beat, heart skipping, heart racing, tightness)
Sleep problems (difficulty in falling asleep, difficulty in sleeping through, waking up early)
Depressive mood (feeling down, sad, on the verge of tears, lack of drive, mood swings)
Irritability (feeling nervous, inner tension, feeling aggressive)
Anxiety (inner restlessness, feeling panicky)
Physical and mental exhaustion (general decrease in performance, impaired memory, decrease in concentration, forgetfulness)
Sexual problems (change in sexual desire, in sexual activity and satisfaction)
Bladder problems (difficulty in urinating, increased need to urinate, bladder incontinence)
Dryness of vagina (sensation of dryness or burning in the vagina, difficulty with sexual intercourse)
Joint and muscular discomfort (pain in the joints, rheumatoid complaints)
Other symptoms

Rows	0	1	2	3	4	5	6	7	8	9	10
Work (work outside the home)
Social activites (time spent with family, friends etc.)
Leisure activities (time relaxing, doing hobbies etc.)
Enjoyment of life
Overall quality of life

Rows	Not at all	Several days	More than half the days	Nearly every day
Feeling nervous, anxious or on edge
Not being able to stop or control worrying
Worrying too much about different things
Trouble relaxing
Being so restless that it is hard to sit still
Becoming easily annoyed or irritable
Feeling afraid as if something awful might happen
Little interest or pleasure in doing things
Feeling down, depressed, or hopeless

Rows	Within the last year	More than a year ago	Never	I do not know
Anxiety disorder
Depression
Posttraumatic Stress Disorder (PTSD)
Eating disorder (e.g., anorexia or bulimia)
Stress
Self-harm without suicidal intent (e.g., by cutting, hitting or burning yourself)
Suicidal thoughts or suicide attempt
Other mental health problem

Rows	No, not in the past 2 weeks	Yes, less than once a week	Yes, 1-2 times a week	Yes, 3-4 times a week	Yes, 5 or more times a week
Did you have trouble falling asleep?
Did you wake up several times a night?
Did you wake up earlier than you had planned to, and were unable to fall back asleep again?

European Survey on Menopause and Health in Women with HIV - The MenoHealth Study