Family CareGiver Insights Survey

Family CareGiver Insights Survey

The Voices Of CG Prject - The CareGivers Grief Commission
The Family Caregiver Insights Survey is part of the Voices of CG Project. Our initiative to raise 100,000 CareGiver Voices and break the silence around caregiving. Your answers will help us understand the real needs, barriers, and experiences of Family CareGivers.

This survey is about making sure support, resources, and change reflect the truth of what caregivers actually live every day. Your voice matters, and what you share here will guide how we advocate, design resources, and push for better systems of support.
Name*

First NameLast Name
Email*
example@example.com
Which state do you live in?*
What is your Primary CareGiving Role ?*

Spouse/PartnerAdult child caring for parentParent caring for childSibling/relativeFriend/neighborOther
How many Hours a week do you provide Care?*

Less than 10 hours10–20 hours20–40 hours40+ hoursOther
What area of caregiving feels most challenging right now? (pick as many as apply)*

Physical care (feeding, bathing, mobility)Medical coordination (appointments, meds, providers)Emotional support for loved oneFinancial stressBalancing my own life and caregivingOther
When it comes to resources, what do you most need more of? (pick as many as apply)*

Emotional support (counseling, groups, safe spaces)Financial help (tax credits, stipends, paid leave, assistance programs)Training/education (how to provide care safely)Information (clearer communication from providers/systems)Respite care (time off, short-term help)Other
How aware are you of resources for family caregivers in your community?*

Very aware - I know what’s availableSomewhat aware - I’ve heard of a few thingsNot very aware - I’m unsure what’s out thereNot at all aware - I’ve never been told about caregiver resourcesOther
Have you ever been directly offered support as the caregiver (not just for the patient)?*

Yes - oftenYes - once or twiceNeverOther
What keeps you from using caregiver resources? (pick as many as apply)*

I don’t have timeI don’t know what existsToo expensiveNot convenient/accessibleFeels overwhelming to navigateDon’t feel comfortable askingOther
How does caregiving most impact your personal well-being?*

Physical health (fatigue, illness, pain)Emotional health (self-care, burnout, boundaries, stress)Financial health (income loss, costs)Relationships/social lifeSpiritual/faith lifeOther
If you could change one thing about the way caregivers are supported, what would it be?*

More financial supportMore community awarenessMore emotional/mental health supportMore accessible training/resourcesStronger policies/laws/advocacyOther
In what format would you find support and resources most useful?(pick as many as apply)*

Online community/support groupPrinted materials (guides, journals, handouts)Audio/podcast style contentIn-person groups/eventsOther
How hard has it been to access resources ?*

1

2

3

4

5

1 is Impossible, 5 is Very Easy
Please share anything else you feel is important about your caregiving role or support needs.
Please verify that you are human*
Should be Empty: