Thank you for being a part of the Global PCOS Stories Project. This is a safe, inclusive space to share your story about living with Polycystic Ovarian Syndrome (PCOS). Whether it's about your diagnosis, challenges, triumphs, or what you wish more people understood - your voice matters.Stories will be featured (with your permission) on social media, digital publications, and future awareness campaigns. You may choose to remain anonymous.
About You
Name (optional)
First Name
Last Name
Pronouns (optional)
Email (only used if we need clarification or updates)
*
example@example.com
Country
*
Age Range (optional)
Under 18 (with guardian permission)
18-24
25-34
35-44
45-54
55+
Your PCOS Story
Here are some prompts for you to share your story. You can be as open as you feel comfortable.
If you prefer to submit a video or audio file to answer these questions, please upload here
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When and how you were diagnosed
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How PCOS has affected your daily life, identity, or relationships
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What's helped you manage, cope or thrive
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Anything you wish others knew about PCOS
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PCOS in Your Country
What kind of healthcare professional diagnosed you?
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General practitioner/family doctor
Gynecologist
Endocrinologist
Traditional or alternative healer
I self-diagnosed
Other
If Other, please elaborate below
How long did it take to receive your PCOS diagnosis after noticing symptoms?
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Less than 6 months
6 months to 1 year
1-2 years
More than 2 years
I am still undiagnosed
How accessible is reproductive or hormonal healthcare in your country?
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Very accessible
Somewhat accessible
Not very accessible
Not accessible at all
Was the cost of diagnosis or treatment a barrier for you?
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Yes
No
Somewhat
Not applicable
Do you have access to health insurance or public healthcare that covers PCOS?
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Yes - private insurance
Yes - public/national healthcare
No - I pay out of pocket
Not sure
Other
If Other, please elaborate below
How is PCOS viewed in your culture or country? (e.g. well-known, misunderstood, not spoken about etc.)
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Have you experienced stigma or shame related to PCOS symptoms (like facial hair, weight, infertility etc) in your country?
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Yes, often
Yes, occasionally
No
Prefer not to say
Where did you first hear about PCOS?
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Doctor or health professional
Family or friend
Social media
School/university
News or traditional media
I researched it myself
Other
If Other, please elaborate below
Are PCOS support groups or resources available in your native language?
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Yes
No
I'm not sure
Have you made any lifestyle or dietary changes to manage PCOS? If yes, were these changes easy to implement in your country?
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Are PCOS-friendly tools, supplements, or medications readily available where you live?
Yes
Somewhat
No
I'm not sure
Is PCOS awareness were to improve in your country or region, what would you want to see change first?
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Sharing & Participation Preferences
What title would you give to your story? (optional)
Can we share your story publicly?
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Yes
No
Maybe
Would you like to include a photo or image? This can be a personal photo, artwork or anything that expresses your story. Uploading is optional.
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Would you be interested in being contacted for an interview, video feature or panel discussion?
*
Yes
No
Maybe
How did you hear about this project?
Permissions and Privacy
Thank you for completing this survey! By submitting this form, you acknowledge and agree that this information may include personal health information, including details about your experience with PCOS. While we are not a healthcare provider and this survey is not collecting Protected Health Information (PHI) as defined by HIPAA, the information you provide may still be considered sensitive. All data will be stored securely and used only for nonprofit research and educational purposes. We are committed to protecting your privacy and your information will not be shared publicly without your consent. If you have questions, you can contact us at office@pcosaa.org.
Consent & Terms
*
I confirm that this story is my own and I give permission for it to be shared as part of the Global PCOS Stories Project.
I understand that my story may be edited slightly for clarity, spelling, or length, but the meaning will not be changed.
I am 18 years or older, or I have the consent of a parent/guardian.
I understand that I am voluntarily providing this information and consent to its use for research and educational purposes.
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