BARE Community: Year-End Feedback Survey

BARE Community: Year-End Feedback Survey

Thank you for being part of the BARE Connection Network. Your feedback helps us strengthen our education, support, and resources for families affected by Biliary Atresia. This brief survey takes just a few minutes.
Parent/CaregiverAdult with BAPrefer not to sayOther
Which State do you reside in?
Less than 6 months6–12 months1–3 yearsMore than 3 years
Please rate your overall experience being part of the BCN
ConnectGet UpdatesOther
If 'Other', please specify
If you could add a function to the BCN, what would it be?
How likely are you to recommend the BARE Connection Network?

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1 is Absolutely not!, 5 is Definitely!
What did you like MOST about the BCN in 2025?
What did you like LEAST about the BCN in 2025?
How helpful were BARE’s communication and updates?

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4

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1 is Not Helpful, 5 is Very Helpful
How helpful was BARE’s educational content this year?

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1 is Not Helpful, 5 is Very Helpful
How helpful were BARE’s resources (guides, posts, infographics, etc.)?

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1 is Not Helpful, 5 is Very Helpful
How helpful was the BCN community for support and connection?

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1 is Not Helpful, 5 is Very Helpful
Overall, how much impact did BARE have on your BA journey this year?

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1 is No Impact, 5 is Major Impact
What would you like to see more of?
BARE did a good job highlighting partnerships & collaborations?

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1 is Absolutely not!, 5 is Definitely!
How helpful was BARE’s social media content?

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1 is Not Helpful, 5 is Very Helpful
Any final thoughts you’d like to share with the BARE team?
Optional: Please provide your name
Providing a name allows BARE to follow up on any items, feedback or recommendations
Optional: Please provide a testimony or quote BARE could use for future marketing & educational materials.
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