COA Connected Community

  • COA Connected Community

  • COA is gathering community feedback to understand what matters most to individuals affected by chromophobe RCC, including lifestyle and wellness factors such as how people use wearables and what kinds of research questions feel most urgent.

    This survey is for community planning and future program/grant planning. This is not a research study. Questions are optional and you can skip anything you prefer not to answer.

    Time: ~2–5 minutes. If you choose to share your email at the end, we’ll only use it to notify you about opportunities you opt into.

  • Personal Information

    Your answers help us build support and resources that fit people at different stages and locations.
  • Have you been diagnosed with chromophobe RCC?
  • What was your age at diagnosis?
  • What stage were you diagnosed at?
  • Have you had a recurrence or has your cancer spread to other locations in the body (metastatic)?

  • Wearables + Wellness

  • Do you currently use a wearable device to track health metrics?
  • Which wearable(s) have you used? (Select all that apply)
  • How long have you tracked health metrics with a wearable?
  • What has prevented you from using a wearable (or using it more)? (Select all that apply)
  • What has prevented you from using a wearable (or using it more)? (Select all that apply)
  • Which areas do you use your wearables to help manage or monitor?

  • What matters most

  • Which feels most important to you for chRCC funding to support?
  • If you could choose one area for support or research focus, what would matter most to you? (Choose one)

  • Interest in research participation and donation

  • In general, would you be interested in hearing about future research opportunities (if they become available)?
  • If opportunities become available, which would you consider contributing? (Select all that apply)
  • Would you like to be notified if relevant opportunities become available (wearable programs, research studies, donation pathways)?

  • COA updates (events/programs/webinars/support groups)

  • Have you participated in any COA programs or events? (Select all that apply)
  • Would you like COA to email you about upcoming support groups (Coffee with Chromies), webinars, events, and program updates?

  • Contact information

    We’ll only use this contact information to send the email updates you opted into above.
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