Generic Ravicti Survey

Community-Reported Experiences with Generic Ravicti

Purpose: NUCDF wants to hear from families and patients using generic Ravicti. We’re gathering real-world experiences to better understand medication switches, insurance coverage, access challenges, and how these changes affect daily life and care.
Who is completing this survey?*

PatientCaregiverOther
Patient age group:*

0-56-1213-1718+
State of residence:*
Primary insurance provider:*

MedicaidMedicareCommercial (e.g., BCBS, UnitedHealthcare, Aetna, Cigna)UninsuredOther / not sure
If known, specific plan name (optional):
What medication was used prior to generic Ravicti launch?*

Brand RavictiBuphenyl/Sodium PhenylbutyrateSodium Benzoate
What medication is currently used?

Brand RavictiGeneric RavictiBuphenyl/Sodium PhenylbutyrateSodium BenzoateOther
Were you switched from Ravicti to generic?*

YesNo
If yes, which manufacturer?*

ENDO/Par HealthLupin PharmaceuticalsNot sure
What caused the switch?*

InsurancePharmacyProviderFamily choiceI don't know
Were you switched from Ravicti to Buphenyl/Sodium Phenylbutyrate due to cost?*

YesNo
Have you encountered any delay or interruption in medication due to the switch?*

YesNo
Have you noticed any changes since starting generic Ravicti?*

YesNo
What changes have you noticed (check all)

No changeAmmonia controlGI symptomsTaste/smellAdherence issuesBehavior/energy changesOther
Any ER visits or hospitalizations since the switch?*

YesNo
Please explain the ER visit(s) or hospitalization(s).
Has your out-of-pocket cost changed since switching to generic Ravicti?*

No changeIncreasedDecreasedNot sure
Does your insurance cover generic Ravicti?*

Yes, fully coveredPartially coveredNot coveredNot sureUninsured no coverage
Since starting generic Ravicti, how much do you pay out-of-pocket per month (copay, coinsurance, or other costs)?*

$0 (fully covered)$1–$50$51–$100$101–$250$251–$500More than $500Not sure / prefer not to answer
Anything else you would like to share?
Should be Empty:

Community-Reported Experiences with Generic Ravicti