Generic Ravicti Survey

  • Community-Reported Experiences with Generic Ravicti

    Purpose: NUCDF wants to hear from families and patients using generic Ravicti. We’re gathering real-world experiences to better understand medication switches, insurance coverage, access challenges, and how these changes affect daily life and care.
  • Who is completing this survey?*
  • Patient age group:*
  • Primary insurance provider:*
  • What medication was used prior to generic Ravicti launch?*
  • What medication is currently used?
  • Were you switched from Ravicti to generic?*
  • If yes, which manufacturer?*
  • What caused the switch?*
  • Were you switched from Ravicti to Buphenyl/Sodium Phenylbutyrate due to cost?*
  • Have you encountered any delay or interruption in medication due to the switch?*
  • Have you noticed any changes since starting generic Ravicti?*
  • What changes have you noticed (check all)
  • Any ER visits or hospitalizations since the switch?*
  • Has your out-of-pocket cost changed since switching to generic Ravicti?*
  • Does your insurance cover generic Ravicti?*
  • Since starting generic Ravicti, how much do you pay out-of-pocket per month (copay, coinsurance, or other costs)?*
  • Should be Empty: