2026 RDW Travel Support Application

2026 RDW Travel Support Application

Cure CMD is delighted to support you in representing the CMD community at 2026 Rare Disease Week on Capitol Hill, February 24-27.

Travel support applications must be received by Friday February 6, 2026, and will only be considered for those who:
- Live in the United States and is/has a loved one affected by one of the following CMD subtypes: Collagen 6, Dystroglycanopathy, LAMA2, LMNA, SELENON
- Will attend Rare Disease Week on Capitol Hill in person for a minimum of three days
- Can advance travel costs and share receipts prior to receiving stipend from Cure CMD after you attend RDW
Scholarship awards will be based on your state of residence (and therefore the cost to travel to Washington D.C.)., and will be no more than $800 per family, based on the number of applicants and funding avaialble. It is unlikely that this travel support will cover the entirety of your trip.

Please keep in mind that funds awarded from Cure CMD originate primarily from donations made by the CMD community. Therefore, we ask that you request funding only as needed and make travel arrangements through the most economic means possible.

Any costs you elect to cover out-of-pocket are eligible for in-kind donation credit. Please submit a summary of your actual out-of-pocket expenses to Cure CMD to receive a donation acknowledgement. Cure CMD is a U.S. registered 501(c)3 nonprofit organization -- donations are tax deductible to the extent allowable by law.

Questions? Contact us at advocacy@curecmd.org.
Applicant Name (must be an adult)*

First NameLast Name
Applicant Email Address*
example@example.com
Your Home Address*

Street Address

Street Address Line 2

CityState/Province

Postal Code
Phone Number (Mobile Preferred)*
310-555-5555
How many affected individuals (have one of the 5 primary subtypes of CMD) are there in your immediate family (including yourself, if applicable)?*

01234+
Please indicate the affected individual(s) CMD Subtype:*

Collagen 6DystroglycanopathyLAMA2LMNASELENONUndiagnosedOther
(1) Affected Individual's Name (enter again if same as above)*

First NameLast Name
(1) Affected Individual's Age*
Enter 0 for infants less than 1 year of age
(2) Affected Individual's Name*

First NameLast Name
(2) Affected Individual's Age*
Enter 0 for infants less than 1 year of age
(3) Affected Individual's Name*

First NameLast Name
(3) Affected Individual's Age*
Enter 0 for infants less than 1 year of age
(4) Affected Individual's Name*

First NameLast Name
(4) Affected Individual's Age*
Enter 0 for infants less than 1 year of age
Please indicate below how many people in your family are planning to attend Rare Disease Week on Capitol Hill (including yourself and any professional caregivers):
Adults (Age 18 years or older)*
How many of these adults are professional caregivers (not members of your family)?*
Teens (Age 13-17 years)
Children (Age 2-12 years)
Infants (Age 0-23 months)
Total Number of Attendees (including yourself)
How many days will you attend RDW?*

1 Day2 Days3 Days4 DaysAll the Days!
Please indicate how this scholarship will be used*

Domestic Air Travel (within the U.S.)Train or Bus Travel (within the U.S.)Personal Vehicle Travel (within the U.S.)Rental Car (within the U.S.)AccommodationsMealsChildcare while I'm awayOther
Expected Cost for Travel (nearest whole dollar, if none, indicate 0)*
Expected Cost for Accommodations (nearest whole dollar, if none, indicate 0)*
Expected Cost for Meals (nearest whole dollar, if none, indicate 0)*
Expected Cost for Childcare While I'm Away (nearest whole dollar, if none, indicate 0)*
Other Expected Costs (nearest whole dollar, if none, indicate 0)*
Please describe the details of "Other Expected Costs" if applicable
Please describe in just a few short sentences why you are attending RDW and how you plan to represent the CMD community. This will be shared on our RDW campaign page(s).
Terms
Please indicate by checking each box below that you understand and agree to these terms.*

I understand that completing this application does not guarantee funding from Cure CMD, but I will be informed of my approximate stipend award before RDW commences.I agree to use funds ONLY to cover my cost to attend 2024 RDW and that funds will only be disbursed after RDW concludes and I've sent my actual travel receipts to Cure CMD.If I do not ultimately attend 2024 RDW, my stipend award will be forfeit.If selected to receive funding, I agree to write a brief description of the impact my participation at 2024 RDW had on myself/family/affected individual for the purposes of public relations awareness and future fundraising campaigns.
Should be Empty:

Terms