European Event Feedback, Jan 2026

Event Feedback

Survey Building Still’s Disease Advocacy in Europe (Online Event)
Thank you for joining our event. Your feedback helps us improve future activities and better support patients and families. This survey should take about 5 minutes.

GDPR & Privacy Notice

Your responses are collected by the Systemic JIA Foundation solely for the purpose of improving patient support, educational activities, and advocacy efforts in Europe.
- Participation is voluntary
- You may skip any question or stop at any time
- No identifying information is required unless you choose to provide contact details
- Your data will be stored securely and will not be shared with third parties
- Data will be used only in an aggregated and anonymized form
By submitting this survey, you consent to the processing of your information in accordance with the EU General Data Protection Regulation (GDPR).

1. About you
PatientCaregiver / ParentOther family memberOther
1.2. Country you are from

Street Address

Street Address Line 2

CityState / Province

Postal / Zip CodeCountry
Under 2 years2–5 years6–12 years13–17 years18–25 years26–40 yearsOver 40 years
1.4. Year of diagnosis
YesMaybeNo
1.6. Email
example@example.com
Better understanding of the disease and treatment optionsLearning about upcoming or ongoing clinical trialsFinding patient or caregiver support groupsHelp with referrals to expert centersUnderstanding my local health systemSupport during flares or complex disease situationsSupport for transition to adult careEmotional or peer supportOther
3. About the Zoom event
3.1. What did you find most useful about the Zoom event?
Very helpfulHelpfulNeutralNot very helpfulNot helpful
3.3. What topics would you like to see more of in future events?
4. Your feedback
4.1. Do you have any feedback about the event (content, format, language, length, accessibility, etc.)?
YesMostly yesSomewhatNoPrefer not to sayPlease use this space if you want to add any comment
5. Looking ahead
5.1. What do you expect or want support from the SJIA Foundation with?
5.2. What is currently most challenging about your (or your child’s) care?
6. Final thoughts
6.1. Is there anything else you would like to share with us?
Should be Empty: