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Thinking about gene therapy? Make yourself heard!
The Working Group on Pediatric Gene Therapy & Medical Ethics (PGTME) hosts annual virtual listening sessions with gene therapy stakeholders. The purpose of these sessions is for you to tell us what ethical issues are on your mind, with regard to pediatric gene therapy clinical trials and the introduction of gene therapies into the medical care of kids. Registrants should come to these moderated sessions prepared to share their experiences and discuss amongst themselves.
PGTME wishes to learn from YOU—the true experts in these matters—what ethical challenges, concerns, and/or opportunities should inform our work. PGTME will not be presenting any information at these meetings. Rather, please come ready to share your experiences and thoughts with us! These sessions are intended to be informal and conversational.
Each virtual session operates under a closed-door policy and attendance will be limited to encourage open discussion. Please note that you may only attend ONE of the three sessions. While we understand that many working in this space have multiple roles, please register for the one session that best describes your role. More information about who is eligible for each session is included below.
We kindly ask that members of the media do not register for this event (unless they are participating in one of the invited capacities, e.g., as a patient advocate).
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