MCAS MP Engagement

Thank you for sharing your MCAS story. With this data, we will present a coordinated and evidenced case for change in the UK health systems for MCAS. We will keep you updated about progress. Please sign up to the Mast Cell Action newsletter to make sure you don't miss an update https://www.mastcellaction.org/become-a-friend-of-mast-cell-action

Thank you for standing with us. Together, we're stronger!

Contact details

Name

First NameSurname

Email

Post Code

About the person affected

Who does this response refer to?

If 'someone else' Please let us know the relationship you have with that person

Age group of the person affected

Sex of the person affected

Ethnicity of the person affected

Do you have any health conditions or illness lasting or expected to last 12 months or more? This includes MCAS or any other health condition

Do your conditions affect daily life and activities?

Do any of your conditions or illnesses reduce your ability to carry out day to day activities? For example eating, washing, walking or going shopping

If you answered 'yes' above, please let us know how your condition affects your daily life and activities?

Brief summary, e.g work, mobility, independence*

In one sentence, what is the biggest challenge you face?

Is your household income below £22,000? (This is classed as low income in the UK. This question helps us to understand the financial challenges some in our community may face)

Does having a health condition or caring for someone with a health condition put your household under financial strain?

MP Engagement

Have you contacted your local MP?

If yes, what is your MPs name? (If known)

What is your MP’s Constituency? (if known)

Did you receive a response?

Are you happy to share your MP’s responses?

Diagnosis and Healthcare Journey

What is your diagnosis status for MCAS

Under what type of medical care were you diagnosed?

Other

Month and year of diagnosis? (don't worry about the specific day)

DayMonthYear

Where were you diagnosed?

Hospital, department, clinic, area or country*

Name of healthcare professional that diagnosed you?

e.g consultant name or specialist type*

How long did it take to receive a diagnosis?

Are you receiving appropriate care for your condition?

Approximately how many healthcare specialists have you seen?

Have you experienced dismissal or felt like you weren't believed?

Do you have any comments about your experience of meeting with health professionals about MCAS?

Symptoms and Impact

Primary symptoms (select all that apply)

Have you / the person you are responding about, required emergency care due to your symptoms?

Optional: Your Health Story

If you feel comfortable sharing, would you email your health journey story to us? This will be used to present a case to MPs, NHS, NICE and in funding applications. We can use your story anonymously if you prefer

How would you like your information to be used?

Are you happy to be contacted about your story? (e.g media, MP engagement)

Country of residence

If you selected 'other' please specify your country.

Please verify that you are human